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- The newest bios, listed by date
- Our Bios
In Memory: 40 Cushie have lost their lives before their time.
- Alice Baker
- Bonny Hamm
- Cassandra Dills-Dailey
- Charles Hamilton Hawn, the fourth
- Christopher “Migs” Migliore
- Cookie Rothenberg
- Deloreese Owens
- Diana Crosley
- Diane
- Erica Michelle “GaGa” Meno
- Erin Lee Rechel Pugh
- Gregory J. Bart Jr.
- Hermina Dala
- Janice
- Jenni Moore
- Jill's Father
- Joanne Swain
- Kalyn Allen
- Kandace Bankston 'Kandy' Kline
- Kassey Whiterock
- Kate Meyers
- Katheryn McBride 'Bridie' Miller
- Lenise Petersen
- Liz Raftery
- Lori Holt
- Malia Kenney
- Marie Richardson
- Martha A tribute to Martha on Robin's Blog.
- Melinda Smith
- Melissa (Missy) Young
- Millie Niss
- Natalie Fay
- Patti
- (Alena) Renea Weeks Greenhill
- Robert Brown (November 2, 2015)
- Ryan Tyler Monds
- Samantha Cohn
- Sarah Fraik
- Stacy Ollenberger
- Sue (SuziQ) and Donald Koziol
- Thomas F. Zachman
- Our Bios
Names in parens are user names on the message boards.
Bios of Caregivers of Cushing's Patients
ConcernedRose (ConcernedRose)
ShiBios of Cyclic Patients
Amy
Cynthia
Delina (adrenal)
Donna (adrenal)Jeanne
Jennifer S (cyclical pituitary)Liz R (possibly pituitary)
Natalie BSusie
Bios of Ectopic Patients
Anne (annabel)
Audrey
Brian
Catherine G
Cher
Crystal
Damon
Daniel (Danny Boy)
Dwight (Rocky)Joyce (had BLA)
Judy H (Judy H)
Kirsty (kirstymnz)
Lark
Laura S (had BLA)
Lee B (both lung and pituitary tumors)
Lori (Frog)
Keith
Kim (Kim)LisaG (lung tumor)
Michelle R
Peggy (Peggy)Sean S
Suzy (lung tumor)
Tina (Tina)
Travis
Bios of Food-Dependant / GIP-Dependant Cushing's Syndrome Patients
Magdalena (BLA)
Bios of Patients with Other Diseases
Anita
Barry
ErinJudy
KarenKim J
LaraLisa
MariaLaura (Maria Laura)
Mark
Larry S
MarySierra
Bios of Steroid Induced (Iatrogenic) Patients
Addiegirl (Jackie)
Adrienne
Alfie
Angela (AngelainOk)
Anne (Lu2)
Bob (RDP)
Brenda
Bridgette
CaraLynS (sicushie2)
Cathe
Cathy R
Catie (Catiebree)
Cheri
Cherie
Cindy F
ClintRey
Cyndie Sue
Denise's Father
Dianna S (Dianna)
Donna DElizabeth (laurie31)
Emily
Frank
Gina
Helen (Flower)
Irene
Ivy
Joanna
Joanne (Josie426)
Judy
Judy (judyb)
Julie (JulieS)Kaelynn
Karla D (Kay)
Kim (eureka)
Kristina
Kristina
Leslie (Sage)
Linda (lsfranz2001)
LizMc (LizMc)
Lu (Weezay)
Marie B (Cookiemarie)
Mary
Mary F
Maxine
Melissa B
Meme
Michelle (michelle)
Nancy (chance)
Mimi (MimiLaRosa)
Nellie
Pat
Phyllis (Phyllis)Robin
Sandy (jsdewys)
Seanette's daughter
Sherry
Sherry
Shirley's daughter
StaceyJenn (StaceyJenn)
Stephanie (steph)
Sue
Susie (turbulentstorm)
Sydni (sydni)
Tauni Zee
Terry
Terry L
Tori (Tori)
Trish (luv4life)
Valerie (vj713)
Vance
Wanda
Yvonne
- Articles
- Photos
- Medical
- ACTH Excesses
- Adrenal Glands
- Androgen
- Diagnosing Cushing's Syndrome
- Diagnosing Cushing's Syndrome, another approach
- The Endocrine System
- Fractionated Stereotactic Radiation (Melinda Freels)
- HPA Axis: Hypothalamic-pituitary-adrenal Axis Modelling
- Hormone Photosynthesis
- Glands of the Body
- Multiple endocrine neoplasia type 1 (MEN1)
- Pituitary Gland
- Thyroid
- Videos (Online) on several topics of interest to Cushing's Patients, including Gamma Knife Radiosurgery; Growth Hormone; PET, SPEC, MRI, MRS and 3D Imaging scans; Prolactinoma; Transsphenoidals; Dr. Friedman on Brain Tumor Treatments; and many more. Some may be viewed using the YouTube viewer. Others require Real Player, available free from http://www.real.com
- Webcasts. These require Real
Player, available free from http://www.real.com
- Endoscopic Transsphenoidal Hypophysectomy December 13, 2007 at 6:00 PM CST
- Laparoscopic Adrenalectomy December 13, 2007 6:30 PM CST
- Video: Transnasal Pituitary Surgery
- Webcast: NIH, Friday, October 29,
2004 Pituitary tumors are not rare and occur in nearly 20% of adults, worldwide.
Although clinically significant, many of these tumors go undiagnosed for years. The
abnormal hormone production caused by these tumors has severe and debilitating effects on
growth, reproductive and sexual function, and neuroimmune function. Therefore, the purpose
of this symposium is to increase awareness and scientific understanding of the
all-encompassing nature of pituitary disorders in order to increase earlier diagnosis,
disseminate knowledge of state of the art treatments, and pique interest in novel
scientific study of the pathophysiology of these disorders and their many ramifications.
- Vivian W. Pinn, M.D.
Associate Director for Research on Women's Health, NIH
Director, Office of Research on Women's Health
- Family Hormonal Health: the Broader Picture
Yvonne Maddox, Ph.D.
Deputy Director
National Institute of Child Health and Human Development - Hormonal Disease is no Apparent Impediment to Good
Health
Captain Mohamed K. Shakir, M.D., F.A.C.P., F.R.C.P.
Director, Department of Endocrinology
National Naval Medical Center
Professor of Medicine
Uniformed Services University of the Health Sciences
- Ian McCutcheon, M.D.
Professor of Neuosurgery
University of Texas
M.D. Anderson Cancer Center
- The
Pituitary Gland in Health and Disease
Sylvia Asa , M.D., Ph.D.
Professor, Department of Laboratory Medicine and Pathobiology
University of Toronto
Pathologist-in-Chief
University Health Network and Toronto Medical Laboratories
- Impact of Hormonal Disorders in Childhood
George P. Chrousos, M.D.
Chief, Pediatric and Reproductive Endocrinology Branch
National Institute of Child Health and Human Development
- The Transition Years: Neither Child nor Adult
Alan Rogol, M.D., Ph.D.
Professor of Pediatrics
University of Virginia
- The Endocrinology of the Stress Response and Its Relevance to Depression,
Anxiety, and Other States
Phil Gold, M.D.
Chief, Clinical Neuroendocrinology Branch
National Institute of Mental Health
- Three Personal Perspectives on Living with Hormonal Disorders
Sharmyn McGraw, Bram Levy and Robert Knutzen
- Edward Oldfield, M.D.
Chief, Surgical Neurology Branch,
National Institute of Neurological Diseases and Stroke
- The
Young Male: What are his Options and Choices?
Marc R. Blackman, M.D
Chief, Endocrinology
National Center for Complimentary and Alternative Medicine
- A Young Woman's Hormonal World
James Segars, M.D.
Staff Clinician
National Institute of Child Health and Human Development
- Hormonal Needs and Disorders in the Mature Female
Janet A. Schlecte, M.D.
Endocrinologist
University of Iowa
- Surgical Treatment of Pituitary Disorders
Edward Laws, M.D., Ph.D.
Professor of Neurosurgery & Medicine
University of Virginia
- Difficult Pituitary Problems: Options and Solution
Ian McCutcheon, M.D.
Professor of Neurosurgery
University of Texas M.D. Anderson Cancer Center
- PANEL DISCUSSION
Moderator: Shereen Ezzat, M.D.
Professor of Medicine and Oncology
Head, Endocine Oncology
University of Toronto
What do we Know, Where do we Go from Here and What is the Future Role of Research?
Drs. McCutcheon, Asa, Chrousos, Rogol, Laws, Oldfield and Schlechte
- Vivian W. Pinn, M.D.
- Webcast: ENDO 2004: from Controversies in the Treatment of Obesity to the differential diagnosis of Cushing's Syndrome or Thyroid Cancer, ENDO Webcast includes a diverse array of the clinical symposia presented at ENDO 2004. This easy to view format includes slide graphics. These require Real Player, available free from http://www.real.com
- Photo Gallery
- Slideshow
- Pictures from the Clifton, NJ. Lunch, December 1, 2007.
- Pictures from the Rockford, IL, 2nd Bi-Annual Cushings gathering, October 4-6, 2007.
- Pictures from the Columbus, OH Cushings Help Anniversary Dinner, July 21, 2007.
- Pictures from the Pittsburgh, PA Christmas Dinner, December 13, 2006.
- Heather's pictures
- Jen's pictures
- twires' pictures
- Medical
- Cushing's Awareness Day Medical Forum, presented by CUSH, held in
Oklahoma City, OK,
April 5-8, 2006. - Cushing's lunch,
Nashville, TN,
October 29, 2005. - CUSH Meetings, Brighton, MI,
October 20-22, 2005. - CUSH Meeting and Pituitary Days Conference at the University of
VA,
April 1, 2 and 3, 2004. - CUSH Conference, Portland,
Oregon,
October 15-18, 2003.- Day 1, Informal Meetings, Martha's pictures
- Day 1, Informal Meetings, Tom's pictures
- Days 2 and 3, Doctor Seminars and Oregon Coast, Melinda's pictures
- Day 2, Doctor Seminars and Dinner Out, Shauna's pictures
- Day 2, Doctor Seminars, Tom's pictures
- Day 3, Oregon Coast, Martha's pictures
- Day 3, Oregon Coast, Tom's pictures
- CUSH Meeting and Pituitary Days Conference at the University of
VA,
September 12, 13 and 14, 2002. - Pituitary Days Conference University of
VA,
April 13 and 14, 2001. - Other Local Meetings:
- Individual Pictures:
- Handiman
- Lisa (ikho1967)
- Melinda Freels' Fractionated Stereotactic Radiation
- Sue, On the Go
- Message Board Members - Picture Uploads
- All About Cushing's
- Adrenal Tumor
- Adrenal Incidentaloma
- Causes
- Cyclical (Intermittent) Cushing's
- How Is Cushing's Syndrome Diagnosed?
- Diagnostic Tests
- Diagnostic Tests
- The Biochemical Investigation of Cushing Syndrome
- Blood tests
- Blood tests
- 2-Hour Post-Prandial Glucose
- ACTH
- Aldosterone Testing
- Androstenedione
- Blood Calcium (Ca+)
- What is hypocalcaemia (abnormally low calcium levels) and why is it important?
- Dexamethasone Suppression
- Fasting Plasma Glucose
- HPA Axis
- HPA Axis Diagram
- IGF-1 (Somatomedin C)
- Insulin
- Insulin Tolerance
- Interpreting
- Lab Values
- Metyrapone
- Plasma ACTH
- Plasma Cortisol
- Plasma Renin Activity
- Renin Testing
- Somatomedin C (IGF-1)
- Total Carbon-Dioxide Content
- Clinical Trials
- Dex Tests
- Growth Hormone Tests
- Lab Tests
- MSS (Magnetic Stereotaxis)
- PSS (Petrosal Sinus Sampling)
- Salivary Cortisol
- Urine tests
- Dr. Harvey Williams Cushing, for whom this disease is named
- Help Yourself
- Help Yourself
- Eat Well
- Food Journal
- Nutrition for Patients with Cushing Syndrome (National Institutes of Health, Clinical Center) - PDF file
- Helpful Hints For Dealing with Cushing's Symptoms
- Kate's Family Letter
- Kate's Packing Suggestions For Surgery
- Kate's Pituitary Surgery Observations
- LindaP's Cushing's Tips
- MelissaTX's tips for new patients: How to steady your feet and get diagnosed quickly
- Medical Journal
- Cushings Help Medical Journal (Excel Version)
- Stay Healthy
- Swedish Hospital Camp Cushie
- Talk to Your Doctor
- On the Message Boards:
- Pets: Dogs With Cushing's Disease
- Pituitary Tumor
- Symptoms
- Symptoms
- Buffalo Hump
- Checklists
- Central Serous Retinopathy (CSR)
- Depression (NIMH)
- Depression (Troya)
- Dry Mouth
- Pituitary Tumors and Headaches
- hGH (Growth Hormone)
- Adult Growth Hormone Replacement
from The Society for Endocrinology - Adult Growth Hormone Deficiency
Syndrome
by David Cook, M.D. - hGH (Growth Hormone)
- hGH (Growth Hormone) FAQ (Frequently Asked Questions)
- Premature Aging
- Webcast on Diagnosing and
Treating Adult Growth Hormone Deficiency
with David Cook, M.D., Marie Cook, BSN, Mary Andrews and several patients - Zomacton
- Adult Growth Hormone Replacement
- Hirsuitism (excess hair)
- Infertility
- Osteoporosis
- Pituitary Tumors
- Rosacea
- Stress
- Steroids
- You'd Rather Be Dead ...
- Treatments
- Treatments
- Complementary Approaches and Alternative Medicine Guide
- Dostinex (Cabergoline)
- Gamma Knife (pituitary radiation)
- Get Top Care
- Surgery
- Surgery
- Packing Suggestions For Surgery
- 911 - Adrenal Crisis
- Adrenal Crisis, More Info
- Adrenal Insufficiency
- Cortisol Withdrawal
- Adrenal (Boards)
- Adrenal Laproscopic
- Adrenal Post-Op (Boards)
- Pituitary
- Pituitary (Boards)
- Pituitary Post-Op
- Pituitary Post-Op (Boards)
- Transsphenoidal
- Post-OP over 2 Years (Boards)
- Recurrences (Boards)
- When a Loved One has Surgery
- Other Surgeries (Boards)
- Radiation (Boards)
- What is Cushing's?
- The Difference between Cushing's Syndrome and Cushing's Disease
- Add A Doctor
- GUEST CHAT TRANSCRIPTS
- Barbara Craven, Ph.D., RD, LD, Cushing's and Diet, October 27,
2004.
- Dr. Ted Friedman, Diagnosing Cushing's, November 11, 2003.
- Dr. Ted Friedman, Diagnosing Cushing's, March 2, 2004. First Dr. Friedman Live Voice Interview
- Dr. Dori Middleman, Psychiatric Issues with Cushing's Disease, April 14, 2004
- Shauna Nelson, a patient who has dealt with a very rare, unusual form of Cushing's. Instead of a tumor, she has ACTH hyperplasia, meaning her ACTH cells are spread all over her pituitary. She has had both pituitary and adrenal surgeries, June 9, 2004.
- Upcoming Guest Speakers
- Dr. Ted Friedman, Diagnosing Cushing's, November 11, 2003.
- Barbara Craven, Ph.D., RD, LD, Cushing's and Diet, October 27,
2004.
- Travel Resources
- US States Not Listed Individually Below
- Non-US Doctors
- Teaching Hospitals
- Abstracts
- Endo News
- Drugs
- Drugs
- Drug Interactions
- Flutamide for Hirsuitism (excess hair)
- Lipitor
- Lipitor / Heart Attack
- New Drugs
- Endocrinology
- Helpful Books
- Amazon Health Section
- Adrenal
- Chronic Illness
- Cushing's
- Doctors
- Endocrinology
- Fibromyalgia
- Fertility
- General Health
- Medications
- Pituitary
- Thyroid
- Links to More Help
- Meetings
- Music Therapy
- New Studies
- Newsletter Archives
- Research
- Amanda.
- AutumnOMA April 8, 2006, National Cushings Awareness Day Holds Special Meaning for Local Woman
- Carrin Ketchum will soon be getting control of her life after a longtime illness that caused sudden gain in weight, hypertension and more
- Camille K, who had Cushing's and endonasal pituitary surgery, was on CBS NEWS February 27, 2002!
- Chanelle, Fredericksburg VA Free Lance–Star
- Cheryl F, CUSH Vice President, in The Oklahoman, March, 2006
- Claudette, Waukesha (WI) Freeman (Conley), Jun 17, 2006
- Denise, Shreveport Times, July 16, 2007
- Dr. Dori Middleman
- Ellen (Beetlebug), Rare Care for a Rare Disease, added March 27, 2009
- EyeRishGrl August 20, 2008
- Erella Ganon. Neighbourhood Stories is a documentary series profiling interesting people who live and work in Toronto’s distinct neighborhoods. It was created by a some very talented people for Rogers TV in Toronto and broadcast April 2010.
- Erella Ganon Toronto Star, May 20, 2008, updated January 22, 2011.
- Jackie, Medical Mystery: 11th Doctor Sees Ghost, added March 7, 2009
- Jaimie was interviewed for TV This link
includes both text and Quicktime video with options to download to your computer, iPod or
your mobile device
- Jayne's local newspaper: Cushing's didn't rob woman of her fertility
- Jess and Justin in their local newspaper: Siblings Deal With Rare Cushing's Diagnoses
- Joselle Diagnosis of rare disease brings area woman hope
- Karen Nolan (rooon55), MedfordNews, May 15, 2006
- Kate (Fairley) and Dr. Ted Friedman, National Geographic TV, September 2007
- Kelli: Against all odds: The story of a miracle.
- Laura and Jayne's local newspaper: After years, mystery ills diagnosed
- Lee Udall Bennion in the news.
- Lisa E in the news.
- Lorrie's local paper published her story.
- MaryO
- Sharmyn
- Sharmyn on Montel
- "Mystery Diagnosis" featuring Cushing's has returned to the Discovery Health Channel. Sharmyn McGraw (Sharm on the
boards), long-time patient advocate tells her story.
- Cushing's Disease: Fighting back to fitness Bristol (UK) Evening Post, May 29, 2010
- Woman's Day magazine, March 9, 2003 issue
- Steve (sowens), NewsRadio 1190 KEX, May 21, 2006
- Sue (SuziQ) was featured in her local paper.
- Tammie was featured in her local paper.
- Other Media Articles.
- Interactive
- Add
your...
- Attend...
- Local Meetings
- Attend...
- Participate...
- Participate...in the Chatroom, Wednesdays, 9PM EST
- Message Boards
- Secret Someone (Fall only)
- Acanthosis (Dark Rash Involving the Body Folds)
- Acromegaly, a
Pituitary Tumor
- Acromegaly Diagnosis
- Acromegaly and Gigantism
- Overview of Acromegaly by Troya Renee Yoder
- Symptoms of Acromegaly
- Adrenal Gland
Disorders
- 21-Hydroxylase Deficiency
- 911: Adrenal Crisis
- Adrenal Crisis, More Info
- Addison's Disease (Adrenal Insufficiency)
- Addison's Disease, More Info
- CAH: Congenital Adrenal Hyperplasia
- Conn's Syndrome (adrenal glands)
- Adrenal Fatigue
- Adrenal Info
- Herbal Therapy and the Adrenal Glands
- Hyperaldosteronism
- Adrenal Gland Surgery
- Carney Complex
- Conn's Syndrome
- Diabetes Insipidus
- Aspirin: Diabetics Urged To Take Aspirin
- Aspirin Therapy in Diabetes
- Hypoglycemia
- Osteoporosis: Diabetes Linked To Increased Risk
- Resistin: Hormone May Be Key to Diabetes
- Empty Sella Syndrome
- Fibromyalgia: When It Hurts All Over
- Fibromyalgia Books
- 7 Ways to Cope With Fibromyalgia
- Coping with Fibromyalgia
- Lisa's Story: Facing Fibromyalgia
- Symptoms of Fibromyalgia
- Hypopituitarism
- Insulin Resistance
- MSL
(Multiple Symmetrical Lipomatosis); Benign Symmetric Lipomatosis;
Madelung's Disease; Lanois-Bensaude Syndrome - PCOS: Polycystic Ovary
Syndrome
- From Health Talk: Polycystic Ovarian Syndrome
- New PCOS Study in Virginia
- Low Carbohydrate PCOS Diets: Hype, Hoax or Cure?
- High Prolactin Levels in PCOS Women
- PCOS: Antagon, A New Infertility Drug
- PCOS: Clomid and Infertility
- PCOS Symptoms
- Prolactinoma, a Pituitary Tumor
- Rathke's Cleft Cyst
- Thyroid Disease Often Missed
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All site features are available free of charge. But donations are gratefully accepted!
All site features are available free of charge. But donations are gratefully accepted!