Wednesday, January 7, 2009

Joanne (Josie426), pituitary and steroid-induced bio

I am 39 yrs old-and for 35 yrs I have been battling life threatening asthma-i have been in respiratory failure/cardiac arrest 5 times in the past 17 yrs. I had been diagnosed with COPD in the summer- I was never a smoker but because of recurrent bronchial and pneumonia infections, my body has had enough.

I was just diagnosed with Cushings after 10 months of thinking i was nuts-i have gained over 50 lbs- I can no longer work because of the asthma and cushings-I look in the mirror and try to figure out who the person is I am looking at- because it is not me.

I have been hospitalized this year because of heart failure issues, repeated asthma issues etc-finally my nurse ractitioner sent me to the endo as an emergency-he saw the bloodwork and examined me and said I am in an acute stage of cushings-Thank God! Finally an answer.

I feel worthless and my medical bills keep piling up-How does anyone deal with this all at once? I am so tired and just would like some relief...I am unable to stop the steroids and the endo thinks the damage has been done to my pituitary because of sinus surgery I had a few months back-I used to be strong- but lately I am just so overwhelmed-any suggestions-

I have a therapist and she is wonderful- but does anyone have advice as to how to just keep going when you feel like such crap???

I am glad to find a site where people can relate- I hope to hear from some of you!

Email Joanne

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