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Sommer's Story...

I am a 28 year old female who has been suffering from an array of mysterious health problems for the past 11 years of my life. I have seen countless doctors, mostly “specialists”, and so far, my health continues to decline, and I am almost at my breaking point.

Recently, my Gynecologist, upon a routine visit, has acknowledged that something is definitely wrong, and has decided to some detective work. He decided to do blood work at the three different stages of my cycle to see what my various hormone levels are.

After the results of the first test came back, he called me to request a Dexamethasone Suppression test, because my Cortisol levels were “high”. He said he suspected Cushing’s Disease. I immediately went on line and read everything I could find. I was amazed and overwhelmed with what I learned.

For the first time in the last 11 years, I have read something that really sounds like me, and all that I have been going through. However, I am finding out that the road to a Cushing’s Diagnosis can be a difficult and frustrating one. My suppression test came back negative. My doctor was certain that I did not have Cushing’s, but I was NOT ready to give up. I urged him to test further, and today am waiting for the results of my 24 UFC test.

Meanwhile, I have requested a referral to a Cushing’s expert, who just happens to be only 45 minutes away from my home. I am convinced that Cushing’s is the culprit. I believe I have moderate symptoms, and that my symptoms tend to be cyclical, though the last time I felt and looked like me was over four years ago now.

I can’t imagine what advanced or severe Cushing’s can do to a person’s life, because what I have been through the last 11 years has nearly destroyed mine before it has really had a chance to begin. The only thing I take comfort in is that my family and my significant other are the most supportive and understanding people I could ever hope to have in my life. I hope I have a name to put to all of this soon, and can get busy getting better.

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