My name is TracyS. In 2003, I started to have a verity of very
disturbing health symptoms. Headaches ( a few a month), upper body weight gain,
facial hair, irregular periods, to name a few. In August 2004, I went to my gyn.
to see if these symptoms were hormone related. After he some tests, he found
cysts on my ovaries and fibroid cysts in my uterus. He said this may have been
causing my hormones to be unstable and this could explain the other problems.
The solution, was for me to have a full hysterectomy. This I did, without even
really questioning him….it did seem to make sense.
I recovered quickly and went on for a few months not thinking much about
it… beyond taking a pill once daily for estrogen replacement….a small price to
pay. However, I did not lose any weight. After a few months, all the same
symptoms had returned, especially the headaches (coming more frequently). At
that time I started thinking the symptoms were from the hormone replacement. So
back to the doctor I went. He also believed it was from the estrogen and
changed my dosage. He said hormone therapy could take a long time for my body
to get used to, that I had to be patient. I believed this too and off I went!
The headaches kept getting worse, the weight gain was huge, the weakness in my
muscles and bones was at times debilitating. (But I would “give it time”). By
now, it is late into 2005. and my son ended up with a sinus infection during his
Christmas break. I thought I might have one also and made an appointment with my
general doctor. She was asking about the problems I was having and when I
started to describe them, she said, “Oh my, this sounds a bit like migraines or
sever tension headaches. I’ll treat the sinus infection symptoms, but also give
you something to relax the muscles in your neck and something for the pain. But,
I’ll send you for an MRI also, just in case something else is going on.” That
diagnosis for migraines did not sit well with me so I did not take the medicine
for the headaches, however, I did go for the MRI. Low and behold! Within 2 days
they informed me I had a 1.9cm. X 1.9cm tumor on my pituitary gland and the
radiologist felt it appeared to be bleeding. With that I almost felt relief!
Relief, to know I had a tumor! It sounds crazy, but that is what I thought. NOW,
I can get someone to fix this.
Well, it was not that easy…I was sent to a neurologist, who looked at me, then
the MRI and told me that I had “a red herring”. That the tumor was not causing
these symptoms, that it was hormones, that I did in fact have migraines. He
told me that 25% of the population has tumors on their pituitary glands
according to the experts at time of autopsy and these usually didn’t cause any
symptoms what so ever. He prescribed some Verapamill,(which is a calcium blocker
for high blood pressure) and told me I should see a neurosurgeon and have a
field study test and some blood work of sorts… if I wanted to and was so
concerned…. I took my prescription and left with my husband almost in tears. I
was so confused.
I have this bleeding tumor that doesn’t mean any thing to anyone! At this point
we didn’t know what to do…I needed to sit back from this for a few days to
decide what to do. Meanwhile the headaches where coming every 2-3 days and
keeping me from functioning. I started the verapamill and it didn’t touch the
headaches. I now wanted to find a neurosurgeon that was not connected with this
doc. My oldest daughter sees an ENT for allergies and he suggested a doc in
Pittsburgh. We were on it quickly. Saw him on 2/7/06. He had a whole pit study
done, a field study, a cat scan, another MRI and had plans for a patrusol sinus
study. I was so grateful that he was taking me seriously. He was in contact with
an ENT and an Endo right away. On my second, visit he wanted another MRI to see
any changes and discovered that the tumor had hemorrhaged again. Right then he
admitted to the hospital to have the tumor removed. I was blown away. All this
time…then boom! I’m having this tumor removed. Next day, surgery, then 3 days
in ICU from withdraw from cortisol so high., temp diabetes, potassium and
electrolytes all out of wack. Not to mention that wonderful catheter up my nose!
I feel alot better now!
It’s been a month or so since the surgery. I don’t yet know if I am cured… I’m
just glad I found you guys! I wish I had a lot sooner. But….you know what they
say….better late then never! Thank you for this site and for listening!
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