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Amy's Story...

I was diagnosed with Cushing's, bi-lateral, adrenal, Oct. 2004 by my local internal medicine doctor who referred me to an endo in Erie to confirm diagnosis. The endo referred me to Cleveland Clinic and I had a BAL, laproscopy, July 2005. The only symptoms I didn't have were the stretch marks and excessive facial hair. I lost hair on my head in patches. Somehow I was able to lose 20 pounds with Weight Watchers.

I take 30 mg of cortef and 0.1 fludrocortison a day. My recovery went well and I returned to normal activities in about a month. In Dec. I came down with erythema nodosum (bumps in my legs, infection). In Jan. I got shingles on the left side of my head. ( I am only now getting back on my feet from them.) At the end of Jan I had severe pain in my left side to find out that my left kidney was only functioning 50% and the uterer was closing up. (hydronephrosis-congenital) They put a stent into the uterer and I might have to have surgery in the future-pyeloplasty)

Presently I realize the importance of learning all I can about Cushing's and recovery from a BAL. I now wish that I had done more research when I was first diagnosed but left that all to the doctors, not recognizing the fact that I know my body better than anyone else and I need to be knowledgeable to work with the doctors to have a healthy, as possible, life. Finding this website is just what I neededed.

I would be interested in hearing from anyone else to share information and support.

Wishing all of you the best.


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