Print this Page Cushing's Message Boards

Toni S' Story

I just underwent surgery at the Mayo Clinic in Rochester, Minn on Thursday, August 14, 2003. For several years I had extreme pain especially under my ribcage. The moonface and hump on the back of the neck. Could not lose weight no matter what I did. Extreme fatigue, depression. Bruising very easily. The list goes on and on. Went to several Drs. Know one ever mentioned Cushing's. Until in July I went to a gastroenterologist for I.B.S. and he knew me personally so he was familiar with how I normally looked. He asked me if I had been using steroids? My response was absolutely not, why? He checked me over and said I think you have a disease called Cushing's.

At that point, I had never heard of it and of course wanted to know more. My regular physician was on vacation and I started research on my own. I had almost every symptom. But after awhile, you get to thinking you are crazy and just a hypochondriac.

I got on the Mayo website and made my own appointment. Flew there and went through a rugged series of tests. After all was said and done, they were almost positive it was a pituitary tumor. The tumor did not show up on an MRI. They went in and located it, removed it and here I am at home now.

Five days after the surgery and I am wanting information about how the healing process works. The Dr. explained things to me but I still have questions that I think only another Cushing's patient could answer.

Please excuse my spelling because my vision has been severally impaired by this Disease. I would just like those people that are walking around with Cushing's to get diagnosed properly.


Toni S

Update April 14, 2006

I had a pituatary tumor that in August of 2003. It took me years to get the proper diagnosis. Several surgeries for different things, but nothing assiciatd with Cushing's. My doctor's thought I was crazy I'm sure. I had my surgery done at the Mayo Clinic in Rochester, Minn. They are wonderful there. I was on thirty ,g. of Hydrocortozone until August of 2005.

I went back for a follow-up and was kept because my medications were not helping me. I began slowly weening of the cotizone. Finally, a few weeks ago I was off. But, I have no energy and am really depressed. They took half my pituatary gland.

I am struggling something awful. Please, if anyone can explain to me why, after the surgery and so long after it, I am still feeling this way. Is ther anyone that can help me with this?



HOME | Contents | Search | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Interactive | Bios | Add Your Bio | Pituitary | • Toni S |