And It's About Time There Was Some Support For Cushing's!
Christy's Story
Hi I am a 33 year old mother of six. I have mixed feelings when reading
everybody's bio's. I am so glad to hear that I am not the only person in the
world feeling like this but I hate to hear that others are going through this
too. My story started, I suppose, after the birth of my 3rd child in '96, but
didn't start getting tested until 11-2003. I had a plasma cortisol test that
came up high so my PCP did a 24 hour UFC and when it came up high he sent me to
the endo Here is the list of symptoms I typed for the first visit.
11-95: Miscarriage
12-95: Pregnant
8-96: Placental Abruption, baby born
4 days early weighed 7-15
10-97: First period very heavy for 4
months very irregular next 6 months
12-97:
Backaches at least once a month
with no relief from any pain medicine<
7-98:
Pregnant
4-99:
Baby induced almost 3 weeks
early after same symptoms as first abruption weighed 8-8
4-99:
No periods unless on birth
control
10-99:
Surgery for mastitis after
extreme pain during every feeding starting at birth
11-99:
Teeth breaking easily
6-00:
Sudden swelling in feet ankles
and wrists (from mild to elephant ankles), acne
7-00:
Boils on arms, thighs, and
breasts, rapid pulse
11-00:
Pregnant
12-00:
Exhausted after simple tasks
like taking a shower or getting dressed. No energy
2-01:
Sent to cardiologist for pulse
rate (100 resting) dx-anxiety, stress
3-01:
Shortness of breath, dizzy
spells
8-01:
Baby induced 10 days early
weighed 8-10
8-01:
Severe pain with nursing
9-01:
Surgery on same breast for
mastitis
10-01:
Depression, possibly from death
of grandma
weight gain to 215
boils, so bad that one was dx as brown recluse bite
Skin tags removed from around eyes
3-02:
Started weight watchers no
weight loss
5-02:
Taking ephedra products
increased energy but no weight loss
5-02:
Severe elbow pain, cant hold
even light things without dropping them
6-02:
Suddenly dropping weight fast
from 215 to 183 in 1 months
8-02:
Pregnant stopped weight loss
products and weight loss
4-03:
Elbows stopped hurting as
suddenly as they started
6-03:
Baby born weighing 11-2 , no
glucose testing during pregnancy with midwife, lost 20 pounds that day and
10 more that week.
6-03:
Bad headaches with no relief
from pain med only relief eating sugar
Swelling from mild to bad every day
Acne continued
Dizzy spells
Swelling in face
Waxy substance between fingers
Skin tags returning on eyes
Seeing yellow
Excessive sweating
Night sweats
Burning, stabbing pain in lower back and hips
Tender hip joints
Facial hair
Dry brittle hair
On and off depression
No energy
Dry brittle fingernails
Crying for no reason
7-03:
Gained 30 pounds
Trouble sleeping
Severe pain in heels especially when first standing elbows turning brown
Headaches every morning, if I get more than 5-6 hours sleep headaches are
horrible
8-03:
Gained another 20 pounds while
taking diet pills
11-03:
Bronchitis lasting until 1-04
12-03:
Sharp pains in upper back and
shoulders
Pain in right side of neck going up into head
Headaches on daily basis
Fingers tingly and numb
Can't think of words I'm trying to say
Increased appetite
Can't sleep more than 5-6 hours
1-04:
Rash on top of both hands
Liver enzymes elevated
No periods
Pulse 96
Blood pressure 130/98
1-04:
Pulse 120
Blood pressure 110/90
Ultrasound showing gall stones surgery set for 2-24-2004
Had the surgery and liver enzymes down to normal now. He ordered an
overnight dex test and mumbled that if it came up normal he would just dx as
post-partum. When the nurse called me she just said it showed "abnormal
cortisol levels" and ordered another 24 hour UFC (high again) and am now to do
the low dose dex test. Every time I come home with a bright orange jug my
oldest son cringes and I hear oh not again mom! Of course I am doing this all
to disrupt his life! :-)
That is pretty much my story and I would like to get this solved and over
with, hopefully before I gain anymore weight since I make the Stay Puff
marshmallow man look thin!