Thursday, January 15, 2009

Susan (susan911), adrenal bio

I am 57 years old, and have had a hump on my back since childhood. Even my surgeon doesn't know what it is. I had gastric bypass surgery in May 2007 and have lots 55 pounds. Unfortunately, I have only gone down two sizes in pants because of my large abdomen. I have hirsutism on my face, neck, tummy, upper thighs, and even on the edges of my ears. My doctor just laughs when I say that. I have had depression for many, many years, and my concentration is sorely lacking. I sleep very poorly due to restless legs and inability to relax.

My lab tests in 2005 showed an elevated cortisol, but a negative dexamethasone test. I have a 1.1 cm adrenal adenoma. My latest 24-hour cortisol test last week was 53.7, highest in that lab being 50. At my doctor's suggestion, I emailed an endocrinologist for whom I do transcription, and he commented that it is possible, although not definitive that I have Cushing syndrome. My regular doctor seems reluctant to order the tests advised, probably because he thinks I'm grasping at straws to find out why my weight loss has stopped and my abdomen remains large. He is reluctant, although willing, to order the tests, I think, but time will tell.

I am very frustrated by this issue. I have questioned it for YEARS, but no one has paid attention. I am tired and fed up with the lack of answers. I hope this new testing will shed some light on the issue and either prove or disprove Cushing syndrome.

Email Susan

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