Sunday, April 5, 2009

Yol, mother of possible Cushing's Patient

I am a mother to a 12 year old. My daughter Jules, is going through testing for cushing which is what her pediatrician/ endocrinoligist seems to believe that she may have.

I am frustrated because to weeks ago today we sumbitted her 24 hour urine samples and they still do not have the results???

Julia has been putting on weigh almost weekly for the past few months, she has developed stretch marks on her thighs, she has complained about headaches, has been missing periods, apparently she has high pressure as well.

Our largest issue is that she has a very high tolerance for pain. I don't know what else to do. In my heart I have known for a while that something is wrong, yet no one took us seriously.

Any suggestions on what we should do to expedite testing? Is an endocrinologist the only one who deals with Cushings? I am open to any advise. Is there any testing we could perhaps do privately?

Many thanks,

Labels: , ,