Aly (Aly H), pituitary bio
Hi, my name is Aly and I am a 26 year old from NY.
I have been dealing with cushing's for the past 4 years. Like most suffering from cushing's, I went to a handful of different doctors who ordered test after test to try and get a definitive diagnosis.
I would hear the same line over and over again from the doctors I would see “I think you have Cushing’s but I would like you to see another doctor to confirm findings.” I have seen at least 10 different doctors during this nightmare. Might I add that during my treatment/diagnosis process, 3 of the doctors left & moved away from the practices where I was seeing them. So I was forced to start over with new doctors and go back to square one.
Within the past month I have found amazing doctor’s at Mt. Sinai Medical Center in NYC and within a few weeks of my initial consult I was scheduled (and completed) Petrosal Sinus Sampling. Those results just came back and showed to have positive findings so the doctor now feels we are good to go for surgery. When I heard the words that the doctor was ready to do surgery
I felt like the weight of the world was lifted off my shoulders. A glimmer of hope is now in my future. We are hoping to plan the surgery as soon as possible.
For anyone who feels like there is no hope or that the road is never ending, keep going and fighting and you will make it to the end of the rainbow.
Email Aly
I have been dealing with cushing's for the past 4 years. Like most suffering from cushing's, I went to a handful of different doctors who ordered test after test to try and get a definitive diagnosis.
I would hear the same line over and over again from the doctors I would see “I think you have Cushing’s but I would like you to see another doctor to confirm findings.” I have seen at least 10 different doctors during this nightmare. Might I add that during my treatment/diagnosis process, 3 of the doctors left & moved away from the practices where I was seeing them. So I was forced to start over with new doctors and go back to square one.
Within the past month I have found amazing doctor’s at Mt. Sinai Medical Center in NYC and within a few weeks of my initial consult I was scheduled (and completed) Petrosal Sinus Sampling. Those results just came back and showed to have positive findings so the doctor now feels we are good to go for surgery. When I heard the words that the doctor was ready to do surgery
I felt like the weight of the world was lifted off my shoulders. A glimmer of hope is now in my future. We are hoping to plan the surgery as soon as possible.
For anyone who feels like there is no hope or that the road is never ending, keep going and fighting and you will make it to the end of the rainbow.
Email Aly