Wednesday, January 28, 2009

Michele (blakeanddbrycemom), undiagnosed bio

My name is Michele. I am going to be 42 years old.

I have suffered from a variety of mysterious symptoms since I can remember. I was diagnosed with hydrocephalis in 2002. I was vp shunted. Once shunted and several years had passed with symptoms continuing I had two MRI's arrive with a abnormal pituatary and this final MRI show a meningioma.

I am still jumping through hoops to get a diagosis. My first 24 hr urine came back with a cortisol level of 56. I have not had a menstrual cycle in 6 months and have a random weight gain of 15 lbs that made me seek again medical help. I am angry and from what I have read since I found this board I am not the only one.

I had an ACTH cortisol stimulation test done yesterday morning. I felt so bad when I woke up today that I honestly thought I was going to have to go to the emergency room. My head really and I mean really hurts and my eyes feel like they are going to explode. The headache has subsided some but my vision is not getting better and the swelling of my eyes is not getting better either.

I am scheduled to see a Neurosurgeon next week but I am feeling like it is going to be a waste of time since I haven't been through several different tests several times. I am hoping this is not going to be a long drawn out deal like it was when I was finally diagnosed with hydrocephalus.

Email Michele

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