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Debbie's Story

OMG...I am in tears now reading your website. I am still undiagnosed after 8 years of doctors. Being a military wife, finding a good doctor isn't always easy. Most have access to be able to pick up a phone and make an appointment with any specialist. I have to go through my PCP who refers me to an in-house specialist who then (if he or she can't help) will refer me out to a specialist in the local area.

My first symptoms began to occur during my 7th month of pregnancy with my youngest child. I lived in SC at the time and my doctor told me it was just my pregnancy and it would go away as soon as I had the baby. It didn't.

We then went to Germany and the "Family Practice" physician said I must be depressed and suggested anti-depressants. From there I went to Texas and my doctor there sent me to see a psych doctor who put me on anti-depressants and they were ineffective.

My current doctor here has been as helpful as she could by doing all the testing she thought I needed. Since being here I have been diagnosed with fibromyalgia, then it was myotonic dystrophy (which I ended up testing negative for). I have seen a rhumatologist who said he couldn't help me. The best neurologist in town who said that he couldn't find anything wrong with me. My own doctor continues to tell me to exercise and diet.

I have gained 60 lbs in just 2 years. I have gone from a size 8 to a size 18. My husband thinks I'm just crazy because everytime I get a new symptom, I'm on here looking. It wasn't until I saw the show on Mystery Diagnosis that HE said..."baby, this might be what you have!!"

I have a doctors appt next week and I am going to request to do the 24hr. urine. This is the only test I can be SURE that I have not taken. I did have 2 MRI's done to rule out cystic fibrosis and because I had some eye issues. I still have eye issues, especially at night (I chalk that up to age.) I'm 39 but feel like I'm 60. I try to be active, but one of the symptoms I have that no one else has mentioned is the intollerance to heat. I have to be inside and cool all the time. I have had 2 episodes of heat exhaustion so my outside time is limited to the seasons. My back hurts so much I bought a new mattress thinking that was the problem. I take Cymbalta to help with the chronic pain in my hands.

I sure hope that this is what the problem is because I've just about given up hope. Thanks everyone for listening.

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