And It's About Time There Was Some Support For Cushing's!
My name is Debbie, I'm 34 years old and have been suffering from Cushing's since 1987.
I was undiagnosed till 1992. By that time, I had ballooned from 126lbs to 325lbs. Had my first surgery in 1994, was fine for 16 months, then it came back.
Second Pit surgery in 1997, unsuccessful.
Adrenalectomy in 1997-unsuccessful. Developed Nelson's in 1998.
Third pit surgery in 1999, followed by 6 weeks pit radiation.
Complications since then: growth hormone deficient, tear duct surgery and zero estrogen...ACTH is climbing in last few months. This disease will never leave me alone. Trying to fight, but I have no fight left.