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Information on Addison's Disease, Cushing's syndrome, and Acromegaly. Includes the personal stories of two Cushing's patients and contact info for support groups.
E-mail: Joan Hoffman
E-mail: Joan Southam
Current Controlled Trials is dedicated to promoting the exchange of information about controlled trials in all areas of healthcare.
You can use this site to find a wealth of information related to clinical trials, such as a listing of more than 41,000 industry- and government-sponsored clinical trials as well as new drug therapies recently approved by the FDA. Our site is designed to be a resource both for patients interested in participating in clinical trials and for research professionals.
The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies.
A great information source for clinical trials.
ICSL Clinical Studies is one of the nation's leading clinical research organizations. Working in conjunction with pharmaceutical companies, we are committed to researching new medications for a wide range of illnesses and conditions.
The NHMRC Clinical Trials Center of the University of Sydney is a leader in clinical trials research in Australia, coordinating its own and assisting others in conducting large-scale, multi-center clinical trials. The Clinical Trials Center plays a vital role in promoting evidence based medicine in Australia.
A wonderful site showcasing the research of a pituitary patient diagnosed with an ACTH-positive tumor and Polycystic Ovaries.
Popovic V, Micic D, Nesovic M, Howlett T, Doniach I, Kendereski A, Djordjevic P, Manojlovic D, Micic J, Besser M.
Institute of Endocrinology, Diabetes Mellitus and Metabolism, Belgrade/Yugoslavia.
Cycles of excessive cortisol secretion have been reported interposed with phases of remission lasting from few days to several months. In this study we report a ten year follow up on a patient who had four episodes of hypercortisolism and Cushing's syndrome associated with hypokalemia and edema and three long lasting spontaneous remissions...
Cushing's Disease My True StoryPersonal story about this disease.
CUSH Organization
This organization is getting the word out about Cushing's, through a book, Cushing's awareness pins, brochures for doctors, information for potential patients, media interviews, local meetings and much more.
Visit http://www.CUSH.org to become a member or to learn more about this new and exciting organization. CUSH Officers are listed here.
Third Department of Internal Medicine, Hirosaki University School of Medicine, Aomori, Japan.
We experienced an extremely unusual combination of Cushing's disease and corticosteroid-binding globulin (CBG) deficiency that has been reported in only one similar case to date. A 53-year-old woman presented at a medical clinic with clinical Cushing's disease....
AB Atkinson, A Chestnutt, E Crothers, R Woods, JA Weaver, L Kennedy and B Sheridan
A 71-yr-old woman with clinical signs of Cushing's syndrome was studied continuously for an extended period after demonstration of a paradoxical response to dexamethasone...
The Neuroendocrine Clinical Center - A multidisciplinary approach to patients with pituitary and hypothalamic disorders. Including the Neuroendocrine Center Bulletin; A newsletter with information regarding pituitary tumors. Information on acromegaly, Cushing's disease or syndrome, prolactinoma, chromophobe or nonfunctioning pituitary adenoma, and thyrotroph adenomas.
Pituitary tumors represent from 10% to 25% of all intracranial neoplasms, depending on the study cited, and can be classified into 3 groups according to their biological behavior: benign, invasive adenoma, and carcinoma. Adenomas comprise the largest portion of pituitary neoplasms with an overall estimated prevalence of approximately 17%, but only a minority are symptomatic. Invasive adenomas, which account for approximately 35% of all pituitary neoplasms, may invade into the dura mater, cranial bone, or sphenoid sinus. Carcinomas account for 0.1% or 0.2% of all pituitary tumors...
Information about pituitary tumors and their affects.
Provides concise, basic information regarding prolactinomas, acromegaly, Addison's and Cushing's.
Kozo Hashimotoa, Tadafumi Kanedaa, Isao Naganoa, Koichiro Asabaa, Kyoko Takedab, Tosihiro Takaoa. Second Department of Internal Medicine and Central Laboratories, Kochi Medical School, Nankoku, Kochi, Japan
by John R. Mangiardi, M.D. and Howard Kane, Wm.
Discusses different types of tumors and methods of treating them. Explains where the pituitary gland is located and describes its functions.
Shereen Ezzat; Sylvia L Asa
Pituitary tumors exhibit a spectrum of biology, with variable growth and hormonal behaviors. They therefore provide an opportunity to examine pathogenetic mechanisms that underlie the neoplastic process. These include alterations in hormone regulation, growth-factor stimulation, cell-cycle control and cell-stromal interactions that result from genetic mutations or epigenetic disruption of gene expression. Mouse models have validated the roles of these alterations, which can be targets for the development of therapies that can manage these lesions. These therapies are increasingly recognized as critical for quality of life...
*** Requires FREE MEDscape registration
The size of a pituitary tumor does not predict headache symptoms, according to the results of a prospective study published in the May issue of the Archives of Neurology. Rather, headache was associated with family history.
"Pituitary tumors are commonly associated with disabling headache. The accepted mechanisms for headache are dural stretch and cavernous sinus invasion," write Miles J. Levy, from the Institute of Neurology in London, England, and colleagues. "The fact that headache can be dramatically improved or worsened by endocrine treatments, in the absence of any measurable change in pituitary size, suggests that pituitary tumor–associated headache...
*** Requires FREE MEDscape registration
Stereotactic Radiosurgery for Pituitary Tumors***
Pituitary adenomas frequently pose challenging clinical problems. Stereotactic radiosurgery (SRS) is one treatment option in selected patients. The purpose of this report is to identify the advantages and disadvantages of radiosurgery in cases of pituitary tumors to assess better its role in relation to other treatment. Methods for optimizing outcome are described. The author reviews several recent series to determine rates of growth control, endocrine response, and complications. In general, growth control is excellent, complications are very low, and reduction of excessive hormone secretion is fair. Depending on the clinical situation, SRS may be the treatment of choice in selected patients....
*** Requires FREE MEDscape registration
Treatment of Patients With a Pituitary Adenoma: One Clinician's Experience (By Dr. Mary Lee Vance) ***
The diagnosis and treatment of a patient with a pituitary adenoma or another type of pituitary lesion requires a team approach involving the neurosurgeon, endocrinologist, primary care physician, and, in some patients, an ophthalmologist and radiation therapist. The diagnosis of excessive pituitary hormone secretion and/or loss of pituitary function is based on biochemical findings and can usually be confirmed by performing blood tests, except for patients with suspected Cushing syndrome. The primary treatment of pituitary adenomas is resection, except in patients with a prolactin- producing tumor, who are most successfully treated medically with a dopamine agonist. In this article the author reviews the principles of diagnosis and treatments and offers recommendations for ideal patient care....
*** Requires FREE MEDscape registration
Thyrotropin-secreting Pituitary Tumor and Hashimoto's Disease: A Novel Association***
*** Requires FREE MEDscape registration
Objectives
Pituitary adenomas are the most common type of pituitary tumor. They cause a variety of disorders including acromegaly (excess growth hormone), Cushing's disease (excess ACTH), elevated prolactin (prolactinoma), and rarely elevated thyroid stimulating hormone (TSH). Craniopharyngiomas and Rathke's cleft cysts are other lesions that arise in the pituitary.
(adrenal, ectopic, steroid induced). Some links include pituitary info
Information on Addison's Disease, Cushing's syndrome, and Acromegaly. Includes the personal stories of two Cushing's patients and contact info for support groups.
CUSH Organization
This organization is getting the word out about Cushing's, through a book, Cushing's awareness pins, brochures for doctors, information for potential patients, media interviews, local meetings and much more.
Visit http://www.CUSH.org to become a member or to learn more about this new and exciting organization. CUSH Officers are listed here.
A brief description of the symptoms and diagnosis of this disease by Eric Daiter, MD.
Provides info on local and national organizations and additional links.
Damian G. Morris and Ashley B. Grossman
Cushing's Syndrome results from chronic exposure to excessive levels of glucocorticoids: its investigation and management remains an on-going challenge in clinical endocrinology. Although the condition is considered rare, the clinical spectrum of the disease is broad, and its investigation is frequently required given the high prevalence of many of its non-specific symptoms such as obesity, muscle weakness and depression. Clinicians are now considering the diagnosis in its earlier manifestations, often before the development of the more classic signs and symptoms as described by Harvey Cushing early in the last century. In its severe form and when untreated, the metabolic upset of Cushing's syndrome is associated with a high mortality, approximately 50% at five years. However, more subtle excesses of cortisol may have significant effects on glycaemic control and blood pressure, and may therefore be an important cause of morbidity....
Provides info on the causes, symptoms, incidence, diagnosis, treatment, and quality of life for Cushing's syndrome.
Stewart PM, Venn P, Heath DA, Holder G. Department of Medicine, University of Birmingham.
Department of General Medicine, Tan Tock Seng Hospital, Singapore.
A woman with cyclical Cushing's syndrome due to periodic hormonogenesis from a corticotropin (ACTH) secreting pituitary adenoma is discussed...
Carson DJ, Sloan JM, Cleland J, Russell CF, Atkinson AB, Sheridan B. Department of Child Health, Queen's University, Belfast, UK.
A young male patient demonstrated unusual features of Cushing's syndrome, atrial myxomas and freckled skin pigmentation. At 4.5 years of age he presented with intermittent swelling of his face and abdomen associated with weight gain and mild hypertension...
Atkinson AB, Kennedy AL, Carson DJ, Hadden DR, Weaver JA, Sheridan B.
Reported cases of cyclical Cushing's syndrome are rare. Of 14 successive patients with Cushing's syndrome nine collected sequential urine samples for the estimation of cortisol:creatinine ratio.
A good site for a brief overview of Cushing's syndrome, treatment options, prognosis and research. Also includes lists for a number of other organizations with available information.
Blau N, Miller WE, Miller ER Jr, Cervi-Skinner SJ.
A 23-yr-old male student presented with clinical and biochemical evidence of Cushing's syndrome. One month later, his elevated plasma and urinary adrenal steroids had returned to normal...
Steroid Induced Cushing's Syndrome - Ann's Story
A wonderful site showcasing the research of a pituitary patient diagnosed with an ACTH-positive tumor and Polycystic Ovaries.
Popovic V, Micic D, Nesovic M, Howlett T, Doniach I, Kendereski A, Djordjevic P, Manojlovic D, Micic J, Besser M.
Institute of Endocrinology, Diabetes Mellitus and Metabolism, Belgrade/Yugoslavia.
Cycles of excessive cortisol secretion have been reported interposed with phases of remission lasting from few days to several months. In this study we report a ten year follow up on a patient who had four episodes of hypercortisolism and Cushing's syndrome associated with hypokalemia and edema and three long lasting spontaneous remissions...
Cushing's Disease My True Story
Personal story about this disease.
Third Department of Internal Medicine, Hirosaki University School of Medicine, Aomori, Japan.
We experienced an extremely unusual combination of Cushing's disease and corticosteroid-binding globulin (CBG) deficiency that has been reported in only one similar case to date. A 53-year-old woman presented at a medical clinic with clinical Cushing's disease....
AB Atkinson, A Chestnutt, E Crothers, R Woods, JA Weaver, L Kennedy and B Sheridan
A 71-yr-old woman with clinical signs of Cushing's syndrome was studied continuously for an extended period after demonstration of a paradoxical response to dexamethasone...
Stewart PM, Venn P, Heath DA, Holder G. Department of Medicine, University of Birmingham.
Department of General Medicine, Tan Tock Seng Hospital, Singapore.
A woman with cyclical Cushing's syndrome due to periodic hormonogenesis from a corticotropin (ACTH) secreting pituitary adenoma is discussed...
Carson DJ, Sloan JM, Cleland J, Russell CF, Atkinson AB, Sheridan B. Department of Child Health, Queen's University, Belfast, UK.
A young male patient demonstrated unusual features of Cushing's syndrome, atrial myxomas and freckled skin pigmentation. At 4.5 years of age he presented with intermittent swelling of his face and abdomen associated with weight gain and mild hypertension...
Atkinson AB, Kennedy AL, Carson DJ, Hadden DR, Weaver JA, Sheridan B.
Reported cases of cyclical Cushing's syndrome are rare. Of 14 successive patients with Cushing's syndrome nine collected sequential urine samples for the estimation of cortisol:creatinine ratio.
Blau N, Miller WE, Miller ER Jr, Cervi-Skinner SJ.
A 23-yr-old male student presented with clinical and biochemical evidence of Cushing's syndrome. One month later, his elevated plasma and urinary adrenal steroids had returned to normal...
A site dedicated to maintaining a society of pediatric, reproductive endocrinologist and furthering clinical endocrinology.
(404) 633-3777
Basic information and support for all types of brain tumors.
(assists Christians in paying medical bills)
Box 3948
Akron, OH 44314
800-269-4030
Provides an overview of the endocrine system, hormone secretion pathways, pituitary structure and function and pituitary hormones.
Fact sheets on endocrine-related topics, legislative updates, publications, scientific meeting info, and additional links to endocrine-related sites.
(714) 921-0150
(IFFGD)
MedicAlert bracelets and pendants protect and save lives by providing identification and information in emergencies. It is critical in an emergency situation that you have easily accessed medical information.
MedicAlert is a nonprofit membership service whose mission since 1956 has been to protect and save lives. There is a fee of $35 to join and an annual renewal fee of $20 which includes a bracelet and access to their service. For more information check out their web site or call them at 800-432-5378.
from the Pituitary Foundation in the U.K.
Search MedLine and a host of other medical databases. Also provides special information and research programs.
A national (US), non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
A large list of links relating to pituitary tumors provided by the Wake Forest University School of Medicine. Includes two personal narratives.
Information on Vanderbilt, in Tennessee, pituitary diseases, Cushing's Disease. Many members of the message boards have been treated there, by Dr. Lewis Blevins. Dr Blevins is the author of a new book called Cushing's Syndrome.
From Harvard Medical School and Massachusetts General Hospital - patient stories and question/answers regarding pituitary tumors and medications. New and old pituitary patients will find support and lots of information at this site.
"Pituitary Apoplexy, severe sudden headache, loss of and/or double vision, protruding eyeballs
This site provides links for other contacts, where to find patient chats, and other web sites.
This site allows you to search the National Institutes of Health (NIH) ongoing research studies database to find one similar to the study that I participated in. Also provides info on how to participate in a study, refer a patient, and other ongoing NIH research.
Best Hospitals Finder analyzed 6,247 institutions to come up with a list of 173 hospitals that it says provide the best level of medical care. You can search by medical specialty or geographic area.
An essay comparison of two dopamine agonists, Cabergoline and bromocriptine, for tumor shrinkage.
Doctors information on Doxtinex
For more information on Vaniqa, call Bristol-Myers Squibb at (877) 829-9715 or log on at www.vaniqa.com.
Dr. Albert L Rhoton, Jr., M.D. has performed surgery on more than one thousand pituitary tumors. This site explains all pituitary tumor treatment options, and most notably takes you step-by-step through the preparing, undergoing, and recovering from transsphenoidal surgery.
The title about just about says it all.
Cushing's syndrome, with its high morbidity and mortality, requires a diagnostic workup which includes verifying the patient's cortisol excess, then documenting the site of hormone overproduction. ACTH-dependent causes include pituitary tumors (Cushing's disease) and ectopic ACTH-secreting (or rarely CRH-secreting) tumors, while ACTH-independent Cushing's is due to a primary adrenal lesion...
Good information on Petrosal Sinus Sampling for doctors and medical personnel may be found here. The information includes test and normal values, as well as diagrams and pictures.
Baby Alison's MySpace
Baby Alison Cushing's video on YouTubeBrook's Cushing's page
Brook's space on myspace.com has Cushing's information and her pictures
Cathy's (ChatiCat) Cushing's BlogCathy's (ChatiCat) MySpace pageCushing's Syndrome
This site includes a downloadable chart tokeep a record of all your blood tests, abstracts, photos, personalstories and much more.
D'Shawns Journey to Germany
Shawn lists her Cushing's symptoms in Blog format (Note: watch out for the pop-ups)
Diane's Radiotherapy journal
On the message boards - you must be a member to read. Diane posts all her experiences with radiotherapy to help others going through the same process or trying to decide if its for them.
A page created by Duggan Foster, a pituitary tumor patient. It contains personal experiences of the trials associated with having a pituitary tumor and also has many helpful links.
Erella Ganon
Erella had her second transphenoidal surgery in 2004 for a pituitary tumour, in Toronto. The CBC did a one hour documentary about her first surgery. She is wondering about some of her symptoms and whether anyone else had something similar occur.
In researching her own pituitary tumor, Lori Majestic circulated a survey to other pituitary sufferers.The results are posted here, as well as additional links, research projects, and an experience exchange.
Andy suffered from gigantism as a child. His pituitary gland was removed at the age of 11 (in 1981), and he's been taking medication ever since. His posts his experiences about the illness on this website, and offers help for pituitary patients have to deal with major problems on a day to to day basis...as well as a free pen!
Information from David S. Parnas, M.D.
IBOVERW8 SparkPeople page
Jennye's (surpriseaz2007) MySpace page
I do have a Myspace page that talks about my Cushing's issues. Right now, I have it set to private, but I will gladly add anyone (PM surpriseaz2007 on the message boards). I set it to private after I kept getting a lot of advertisments and weird messages.
Kate (Fairley) See the Cushing's segment on YouTubeKate (Fairley) See the Cushing's segment on Yahoo! VideoKiri's
Adrenal Source Health IssuesLisa C
(Blog) The Cushing's Disease Journey
I've suffered with Cushing's Disease for 20+ years. Soon I should be hearing from the neurosurgeon's office to schedule surgery to remove two pituitary adenomas and a Rathke Cleft Cyst. Now that I am beginning to see the light at the end of the tunnel, I am blogging the end of my journey.
Llama3234's Cushie Blog
Lorrie's (LorrieI) MySpace pageMaryO's Cushing's Cancer and Music blogMaryO's Cushing's Help on multiply.comMaryO's Cushing's Help on Yahoo! VideosMonicaroni's Addison's and Adrenal Insufficiency SparkPeople pageMonicaroni's Cushing's Syndrome SparkPeople page
MySpace Cushing's Group
Natalie F's webpage, with her picturesNicole's space on myspace.com
with Cushing's discussions
Mary Lou Jepsen writes about her experiences.
This site has lots of interesting articles anddiscussion about them. Not just of Cushing's but other
Teresa Sullivan, in conjunction with a research project with the Henry Ford Hospital, Detroit, MI providesconcise basic pituitary tumor information, survey participation, and many relevant links. In addition, you can find meeting and topic information for support group meetings at the Henry Ford West Bloomfield Medical Center.
Read through a pituitary tumor patient's medical update archives. He chronicles his experience with a pituitary tumor, first and second surgeries, radiation, and life without a pituitarygland. He tells a wonderful story of hope and strength - all willbenefit from visiting this site.
Written by a family member of a prolactinomapatient, this site provides the basics of prolactinomas, symptoms, treatment options, and many useful links. It also includes a section on Polycystic Ovaries with relevant links.
Robin's
Cushing's "Flake
Robin writes: Getting "Flakey" in a geeky way, Research, bookmarks, and general info to share
I've been having a lot of fun "flaking"..... I'm exploring the new Web 2.0 technologies which include wiki's, podcasts, newsfeeds, and flakes.....
I've built a flake for Cushing's to share what info I have with anyone who wants to use it. I'm still working on it and have a lot more to add, but I'll do it as I can. A lot of things I've put there point back to this site, and if it's a link to the boards, only board members will be able to see it.
http://www.pageflakes.com/staticnrg.ashx?
I've put a feed of my bookmarks on the flake site, but I also have another public site for them, too:
The neat thing about all this is you can do this, too, and we can "network", sharing with each other. You can incorporate my stuff in to your flake, and I can incorporate yours. It's a way for us to share info with each other. MaryO may want to put links to all this on here...I don't know. But it's the "new" thang, and predicted to be how things are going.
Sharmyn McGraw - What's
Wrong with Me? -I'd never heard of Cushing's
diseaseVictoria: The
Largest of All
Victoria's weight gain journey
Barbados!
Information about visiting Barbados, designed and maintained by O'Connor O'Riginals Web Design
O'Connor Music
Studio
MaryO's Piano Studio website for music students and others interested in music.
O'Connor O'Riginals Web Design
Power Surge is a multi-award-winning online virtual community for women at midlife, who happen to be in menopause.
Power Surge has been written up in numerous newspaper and magazine articles, and is recommended in many books on women's health issues, menopause and Internet resources.
Many thanks to Alice Stamm (Dearest) for creating this terrific resource!
Snavely King,
consultants.
This site for Snavely King Majoros O'Connor and Lee, Inc. was designed, and is maintained, by O'Connor O'Riginals Web Design
