And It's About Time There Was Some Support For Cushing's!
Stacey's Story
I am 30 yrs old and I have 3 children ages 4, 6 and 7. I have been having alot of issues for about 12 yrs that are continuing to get worse every year and seemed to have been placed in overdrive since I got pregnant with my first son. I am currently working with Dr. Ludlam at Swedish in Seattle and I am hoping for some insight soon.
Here is a list of my symptoms:
Itchy legs and abdomen
Burning painful legs from knees to feet
Fatigue
Touch sensations last for extended period of time after letting go
Dry eyes
Dry skin-doesn’t matter what season
Chronic muscle tension in neck
Muscle soreness and stiffness
Traveling bumpy rash that looks and feels like hives on back and neck that comes and goes
Fingers get hives periodically
Finger nails brittle, peeling and very thin
Swelling in abdomen, feet, legs and hands
Always cold
Chronic constipation
Dizziness
Weight gain
Chronic neck and back pain
Muscle weakness- the worst in shoulders and arms
Sharp shooting pain from back of head to upper forehead
Heightened sense of smell
Light sensitivity
Bruise easily and bruise lasts for 4-6 weeks on average
Forgetfulness
Headaches
Chronic insomnia
Skin turned dark around hairline
Acne
Oily face
Crazy menstral cycles
Anxiety
Getting depressed from feeling so rotten and unable to do things that were easy a year ago
Hirsutism
No sex drive at all
Stretch marks on abdomen and breasts and upper thighs, not purple anymore, turned white
Irritable-easily aggitated
Vision changes cuts out in spots and has fuzzies around the cut out
Bladder incontinence
Sugar cravings
Ribs hurting on right and left sides
Vaginal dryness
Melasma
Loss of balance, run into things
Arms go numb and hands usually the last 3 fingers
Twitching in upper bicep and on face (upper lip and cheeks and eyes)
Occasional speech difficulties-I know what I am talking about but it comes out all mixed up
Hypertension
Tinnitus
Acid Reflux with Hiatal Hernia
and so far this is what I have been diagnosed with:
HPV in 1998 due to chronic yeast infections with no reason GYN did a colposcopy and biopsy of cervical tissue once off birth control no more yeast infections occurred no problems since all Pap smears normal.
Anxiety and Panic attacks since 1998
Put on Chlomid in 1998/1999 did not ovulate regularly while trying to conceive, periods ranged from 80-180 days. Very painful periods since puberty at the age of 12.
Plantar Fasciitis and tibial spur on right foot in 2002/2003
Incomplete right bundle branch block diagnosed during 3rd pregnancy, after a bunch of testing (EEG, Sonogram and stress test) determined not to be an issue. Initial testing of EEG performed in Oct/Nov 2003 and follow-up with stress test and sonogram performed April 2005.
Eczema in Feb/March 2007 given Triamcinolone cream still exists I have had it since first pregnancy in 2000.
Rosacea in Feb/March 2007 given Metrogel
Schatzki’s Ring in October 2007
Dysphalgia in October 2007
Hiatal Hernia in October 2007
Acid Reflux in October 2007
Obstructive Sleep Apnea in November 2007; currently on CPAP
Restless Leg Syndrome in November 2007
Swedish E.R. visit with blood in urine no bacteria present no previous symptoms anything was wrong except for the blood given Macrobid Jan. 27, 2008 and it was called a UTI
Raynaud’s Phenomenon in February 2008
Possible Fibromyalgia in February 2008
Possible Polycystic Ovarian Syndrome in February 2008
Sicca in February 2008
Peripheral Pitting Edema February 2008
Melasma April 2008
Papilledema May 2008
Sinus Polyps May 2008
Intracranial Hypertension May 2008
Its been a long journey of "I don't knows, but something is wrong with you" and getting passed back and forth from doctor to doctor.