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Susan B's Story...

I started three years ago with anxiety and chest pains with a full feeling in my petrosal sinus I had the 24 hour urine test after 6 months and it came back positive I got rushed into hospital and put on a cocktail of horrible drugs 6 weeks later after numerous blood tests and scan showed nothing after 6 weeks had an mri/migb scan still nothing ...basically told there was nothing wrong I had anxiety.......

Two years later I don't have anxiety but intermittent spells of swollen petrosal sinus feeling sick weak, headache and exhaustion and diarrhea.... have seen ENT consultants, private doctor, and consultant wont repeat the tests...

I feel ill 50% of the time and my life is awful I don't know what to do next....please help?

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