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Rhonda's Story...

I have recently had a 24 hour urine for cortisol. My # was 185. I know that is quite high according to my discharge summary.

I have also had 3 episodes of pancreatitis this last year. Has anyone else with Cushing's had pancreatitis? I haven't had a definitive diagnosis yet because my backwards doctor here still doesn't think that my weight problem has anything to do with a medical illness.

I have went to doctors after doctors and eventhough i had a high test I have not yet been diagnosed. Mainly because my dexamethosone sp? test was normal approx 1 month after my high cortisol test. The only thing the doctors are taking me serious for is my pancreatitis.

However, my doctor did refer me to a dr in Missoula, Montana an endo so hopefully I will get my diagnosis.

My story started out 4 years ago with kidney stones. The doctors found a 4 cm adrenal tumor but did not feel it needed to be removed. Eventhouhg at that time I had done research of my own and knew that I had cushings and asked them to remove my tumor. Since then I have had alot of pain since a lithotripsy for my kidney stones I am unsure of what the source of my pain is but it is debilitating.

Another sad cushings story shall not be held liable for any claim or right to recover damages, including, but not limited to, loss of profit, business, other incidental consequential damages, or other similar claims, even if has been specifically advised of the possibility of such damages.

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