Monday, May 11, 2009

Sue (Sue), undiagnosed bio

Hi.. I'm so glad I've found this sight! It helps to know that you are not alone.

I've was diagnosed with PCOS a few years ago and have been dealing with those symptoms since. However, in the last couple of years, things started to go downhill! ..

Experienceing the typical Cushing's smyptoms. I remember I gianed 30lbs, in what almost felt like a week! Thinning of the skin, bruise easily, neck hump, etc.All of the classic symptoms. I started doing research and found out about Cushings...never having heard of it b4.

These past few months I've had numerous tests, confirming my cortisol levels are very high. So then the search began to find the source. Adrenal problems were dismissed due to the test results. I've had an Mri which found nothing on the pituitary, as well as a Cat Scan of the chest/lungs.. and nothing.

And so this is where I'm at.. very frustrated and confused. Doc is requesting I get yet another MRI..of the pituitary and then possibly a Petrosal Sinus test, which I think is very invasive and I rather not do!

He is a specialist in ednocronology and works with specialist in Cushings.. could the cronic high level of cortisol be caused by something else other than a tumor?

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