And It's About Time There Was Some Support For Cushing's!
Hello. I'm not sure if I belong here. I'm an adrenal cancer survivor (twice).
Initial diagnoses in 1998 involved removal of my left adrenal gland and left kidney. A recurrence of my cancer this year was found in my liver. My surgeries have been successful in that I am currently tumor free. I have never had chemo. I have ct scans every three months.
My concern is that there is no protocol for adrenal cancer. It's so rare that there aren't effective adjuvant therapies. I hope to meet others who may be going through a similar journey.
