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Lee's Story

I am writing because my daughter was diagnosed with Cushings Disease late 2006 - she was operated on in mid 2007.

However while her her symptoms as far as the disease were concerned went away almost immediately - she is having ongoing problems like aches and pains particularly in her feet and hand regions, as well as chronic tiredness - although she is still working fulltime at this point , day by day we see an amazing loss of weight - somewhere around 20 kg since she had the operation - it puts her at about 44.5kg now.

My concern I guess is - if this is Cushings related - why are we not told about this - what are the side affects - I have not/cannot find anything about this.

Any help most appreciated.

(MaryO Note: lee didn't give authorization to inclue her email address. Please contact her through the message boards.)

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