Over 10 Years of Support For Cushing's Patients!
Newest Bios:
There are currently over 1,600 bios on the website.
Names in parens are user names on the message boards
New Bio July 23, 2010
Shannon (Shannon3) is from Dallas, Texas. She is not yet diagnosed with Cushing's but has many symptoms and is testing now. A new neurologist said it was very likely she has Cushing's and/or PCOS.
New Bio July 20, 2010
Elaine (elainewwjd) is from Gibraltar (British overseas territory). She is not yet diagnosed with Cushing's but has many symptoms and is testing now. She has been diagnosed with autoimmune thyroiditis and PCOS.
New Bio July 19, 2010
Johanna (Johanna) is from Carlbad, California. She is not yet diagnosed with Cushing's but has many symptoms and is testing now.
New Bio July 18, 2010
Erin (ErinGoBraugh) is from Michigan. She stumbled across Cushing's Help by accident actually after doing a search on rapid weight gain. When she entered her symptoms in any search, she came up with Cushing's.
New Bio July 14, 2010
Robyn N (Robyn) is from Rock Hill, South Carolina. She has had fibroid tumors removed and a total hip replacement as well as breast cancer. Her left adrenal gland taken out on June 29th, 2010.
New Bio July 10, 2010
Kate D is from The Dalles, Oregon. In the process of trying to pass a couple of large kidney stones the CT also located a tumor on her left adrenal gland. She had adrenal surgery on May 24th, 2010. Kate also has a prolactinoma and thyroid nodes.
New Bio July 8, 2010
Lindsay (LindsayReed) is from New Cumberland, Pennsylvania. She is not yet diagnosed with Cushing's but has many symptoms and is testing now.
New Bio July 8, 2010
Elana (ebeebe) is from Ellington, Connecticut. A benign tumor was found on her right adrenal gland and it was removed May 3rd, 2010.
New Bio July 6, 2010
Lesley C (lescor3) is from New Cumberland, Pennsylvania. She is not yet diagnosed with Cushing's but has many symptoms and is testing now.
Updated Bio July 2, 2009
Angela (AngelaK) is from Howell, Michigan. She had gastric bypass surgery in December 2006. As more symptoms showed up her PCP treated them individually. A recent MRI shows a pituitary tumor and she is consultation with a neurosurgeon at the University of Michigan who only does pituitary operations (2000+). Angela updated her bio after her pituitary tumor was removed in July 2009.
Updated Bio June 24, 2010
Lor is from Minnesota. She has updated her bio after been diagnosed twice then UNdiagnosed. She has been re-diagnosed with pituitary Cushing's after first being diagnosed in May of 2009.
New Bio June 23, 2010
Wendy (wendyandjoel) is from Denver, Colorado. She is not yet diagnosed with Cushing's but has many symptoms and is testing now. She started having symptoms some of the Cushing's symptoms back after her daughter was born in 1995.
New Bio June 19, 2010
Kimberly (Usagrl) is from Palm Bay, Florida. She is not yet diagnosed with Cushing's but has many symptoms and is testing now. She started to get sick and gain a lot of weight when she was 7.
New Bio June 10, 2010
kripal is from New Delhi, India. An a ultrasonography shows a 2cm tumor was found on her right adrenal.
New Bio June 3, 2010
Keith (Dad in distress) is from Richmond, Virginia. His daughter is not yet diagnosed with Cushing's but has had many symptoms for the last three years and is testing.
New Bio May 28, 2010
Erica (Mzthang08) has a prolactinoma (pituitary tumor). Doctors are figuring out what to do since it is now a macroadenoma.
New Bio May 27, 2010
JoJo is from Georgia. She is not yet diagnosed with Cushing's but has had symptoms for many years.
New Bio May 27, 2010
Holly (holly720) is from Baton Rouge, Louisiana. She has had symptoms for at least 5 years. Holly met someone from the message boards who introduced her to Dr Ludlam and she is testing now.
New Bio May 21, 2010
Allison (Als) is from Highland Heights, Kentucky. She first went to the endocrinologist in 2009 and had her pituitary tumor removed by Dr. Ian McCutcheon in early May 2010.
Updated Bio May 20, 2010
Tonya (LadyVenom) Tonya (LadyVenom) is from Merrillville, Indiana, She has had a pituitary tumor removed and has had GammaKnife radiation. She has also had an aneurysm. She thinks she is having another recurrence. Tonya updated her bio in May, 2010.
New Bio May 20, 2010
Sherri (slfrese) is from Mesa, Arizona. She is not yet diagnosed with Cushing's but has several symptoms and is testing. Sherri will be a featured speaker in an upcoming CUshing's Guest Interview.
Updated Bio May 17, 2010
Aly (Aly H) is from Poughquag, New York. She had transphenoidal pituitary surgery in July of 2009 and then again in August of 2009. Aly was the featured speaker in a Cushing's Guest Interview May 6, 2010.
New Bio May 11, 2010
GwenS (GwenLosAngeles) is from California. She is not yet diagnosed with Cushing's but has several symptoms and is testing. She has had symptoms since 2005 and was pregnant in 2007.
New Bio May 9, 2010
Marla (marlarae) is from Salem, Oregon. She had pituitary surgery at age 39, then developed Addison's Disease because her adrenal glands had atrophied. She also developed hypothyroidism, acromegaly and hyperparathyroidism.
New Bio May 6, 2010
Tanja is from the UK. She is not yet diagnosed with Cushing's but has several symptoms and is testing.
New Bio April 23, 2010
Suzie G (suzie1) is from London, England. She had a transphenoidal hypophysectomy on March 31, 2010. The tumour was not found and so the surgeon took 1/2 the pituitary but cortisol levels remained high. She had a second surgery April 19, 2010 and is waiting for the results.
New Bio April 23, 2010
K (kds1) was diagnosed with Cushing's in April 2010 due to bilateral adenomas on her adrenal glands. She had the highest cortisol levels her doctor had ever seen.
Updated Bio April 22, 2010
Anne (Anka) is from Australia. She was diagnosed with a left adrenal tumor in January 2007. She had laparoscopic surgery in June 2007 to remove her adrenal gland.
New Bio April 17, 2010
Caryl is from Portland, Oregon. Caryl's constant headaches caused her Internist to request an MRI of the brain in September, 2008, resulting in diagnosis of pituitary tumor, size 8cm. Her sister has similar symptoms and is starting testing for Cushing's as well. Their mother had acromegaly.
New Bio April 16, 2010
Torri is from Beacon, New York. She had her adrenal gland removed last spring and this weekend she will be down to 1mg of the steroid. It has been a very rough two or so years, diagnosing to dealing with all of the terrible side effects - moon face, hump back, swollen mid-section, acne, depression, extreme exhaustion.
New Bio April 15, 2010
De is from Ireland. She is not yet diagnosed with Cushing's but has several symptoms and is testing. She first learned about Cushing's from an episode of House MD.
New Bio April 2, 2010
Brandi (femnn1) is from St. Louis, Missouri. She is not yet diagnosed with Cushing's but has several symptoms and is testing.
New Bio April 1, 2010
Rosie (Rosie H.) is from Orland Park, Illinois. She is not yet diagnosed with Cushing's but has several symptoms and is testing.
New Bio March 30, 2010
AnnaG is from Crestview, Florida. She was diagnosed with Cushing's several years ago and had a pituitary tumor removed in March, 2003. Repeat tests along with a couple others show her Cushing's is back.
New Bio March 29, 2010
Emily (McHan) is from Sale City, Georgia. She is not yet diagnosed with Cushing's but has several symptoms and is testing.
New Bio March 29, 2010
saria433 (saria433) is from Trois-Rivieres, Quebec, Canada. She is not yet diagnosed with Cushing's but has several symptoms and is testing.
New Bio March 28, 2010
Derek (MrDerek) is from Essex Junction, Vermont. He is suffering from secondary hypogonadism and will be having a pituitary MRI soon.
New Bio March 25, 2010
Cynthia is from Nampa, Idaho. She had adrenal surgery in 2007.
New Bio March 25, 2010
Samantha (Sammyegail) is from Chattanooga, Tennessee. She is not yet diagnosed with Cushing's but has several symptoms and is testing. She has an adrenal gland disorder, severely underactive, underactive thyroid and severe migraines.
New Bio March 22, 2010
Stephanie (Steph1323) is from Cape Coral, Florida. She is not yet diagnosed with Cushing's but has several symptoms and is testing. She had thyroid tests done as well and those show perfect results, too.
New Bio March 12, 2010
Dwight (Rocky) is from Rocky Mountain House, Alberta, Canada. He had a BLA in May of 2008 because of ectopic Cushing's disease. His recovery was good with most symptoms decreasing or continuing to improve but he still has no energy, extreme fatigue and depression.
New Bio March 10, 2010
Martha is from San Francisco, California. She was diagnosed two years ago with Cushing's Disease. She has had two unsuccessful pit surgeries and has taken part in a drug study that was also unsuccessful. Right now she's deciding whether to get a third pit surgery or have a BLA.
New Bio March 5, 2010
Melissa R (melissar) is from Chelsea, Oklahoma. She was diagnosed with pituitary dependent Cushing's disease in May of 1996 when she was 17. Since then she has had 2 pituitary surgeries, thirty radiation treatments, three attempts at a bilateral adrenalectomy with only one adrenal being removed.
New Bio March 4, 2010
Rita (sparkie) is from Lafayette, Indiana. Her neuro diagnosed Cushing's Syndrome right away but she's not sure her endo will be so easily convinced.
New Bio March 2, 2010
Linda (grimsh) is from Tampa Bay, Florida. She is not yet diagnosed with Cushing's but has several symptoms and is testing. A recent MRI showed a small pituitary tumor.
New Bio February 25, 2010
Debbie is from North Haven, Connecticut. She is not yet diagnosed with Cushing's but has several symptoms and is testing. She was diagnosed with Graves 15 years ago and has two VERY small nodules one of her adrenal glands. Debbie will be interviewed in the Cushing's Help Podcast Series March 11th. More info here
Updated Bio February 24, 2010
Monic' (monic13) is from Grandview, Washington. Her Cushing's journey started when she left for college in 2006 at age 19. She went to OHSU to see Dr. Cook, was diagnosed with Cushing's and 3 months later she had pituitary surgery. She was interviewed in the Cushings Help Voice Chat / Podcast series February 4, 2010. Listen to Monic's interview on iTunes or on the podcast page.
New Bio February 20, 2010
Regina (Jeanie) is from Michigan. She is not yet diagnosed with Cushing's but has several symptoms and is testing.
New Bio February 16, 2010
Bonnie (Bonaroo) is from Pennsylvania. She was diagnosed with Addison's disease in January 2009.
Updated Bio February 15, 2010
Wen (greydragon) is from Pennsylvania. She is not yet diagnosed with Cushing's but has several symptoms.
New Bio February 8, 2010
Sandra (Sandra) is from Hilton Head, South Carolina. She was diagnosed with pituitary Cushing's Disease after over 9 years of symptoms. She is now awaiting surgery at UVA.
New Bio February 8, 2010
Shellie (shellie) is from Haines City, Florida. She is not yet diagnosed with Cushing's but has been living with symptoms for 5 years. She is testing now.
New Bio February 5, 2010
Nanometer (sarah logic) is from Arhus, Denmark. She is not yet diagnosed with Cushing's but has many symptoms and is testing now.
New Bio February 3, 2010
Danielle R (Smilez133) is from Plymouth, Massachusetts. She started having noticeable Cushing's symptoms when she was 17 (2003). Her first pituitary surgery was on December 16th, 2009 and she had half of her pituitary gland removed on February 11th, 2010. Danielle was interviewed in the Cushings Help Voice Chat / Podcast series March 4, 2010. Listen to Danielle's interview on iTunes or on the podcast page.
New Bio February 2, 2010
Faye R (texastwin827) is from Austin, Texas. She is not yet diagnosed with Cushing's but she has diabetes, is hypothyroid and is testing.
New Bio January 28, 2010
Nazli is from Cairo, Egypt. She had Cushing's and a left adrenalectomy 1974. She is testing again for a recurrance.
New Bio January 25, 2010
Robert is from Maine. He was recently diagnosed with adrenal Cushing's and has had chronic renal issues for over 20 years.
Updated Bio January 23, 2010
Amy (Amelita) is from Newark, Ohio. She has not yet been diagnosed with Cushing's but she is testing now. Amy has added info on her testing and has added her email address.
New Bio January 20, 2010
Robyn (Robyn) is from Franklin, Virginia. She was diagnosed with adrenal Cushing's in December 2009. Both of her adrenal glands are now 4 times as large as they should and overactive. Robyn is facing a BLA.
New Bio January 18, 2010
Bruce L is from Windsor Locks, Connecticut. He hopes that robotic surgery will remove his adrenal tumor leaving most of his adrenal gland so there will be no steroid treatment required.
New Bio January 14, 2010
Amy (Amelita) is from Newark, Ohio. She has not yet been diagnosed with Cushing's but she is testing now.
New Bio January 14, 2010
Susannah (spiritualgrl26/susannah) is from Sarasota, Florida. She had an ovarian cyst rupture when she was 18 and she has been diagnosed with PCOS as well as having an adrenal tumor. She doesn't currently have a doctor.
Updated Bio, January 14, 2010
Estela (Estrela) is from Oxnard, California. She has been diagnosed with adrenal hyperplasia, PCOS, alopecia so far. An endo suggested Cushing's and she is planning to see Dr. Ted Friedman. Estela updated her bio after seeing Dr. Friedman who thinks she may have cyclical Cushing's.
New Bio January 12, 2010
Tim B (tbovs) is from Sault Ste Marie, Canada. He has been struggling with rapid weight gain and fatigue and headaches for the past 8 years or so. A pituitary MRI recently showed a macroadenoma and he will continue testing.
New Bio January 12, 2010
Collette (ColletteJ) is from Dundee, Scotland. She has had 3 abnormal cortisol urine tests and one normal. She has a microadenoma on the left side of her pituitary. Despite this she is still not diagnosed.
New Bio January 5, 2010
Brandon (jediknight36) is from Lewisville, Texas. He is not yet diagnosed with Cushing's but has many symptoms and is testing now. He was interviewed in the Cushings Help Voice Chat / Podcast series. Listen to Brandon's interview on iTunes or on the podcast page. Brandon has also uploaded videos which are included in his bio.
New Bio January 1, 2010
Deb G (Deb Gal) is from Sachse, Texas. She is testing now for Cushing's and has had many symptoms since the 1970s.
