And It's About Time There Was Some Support For Cushing's!
Newest Bios:
There are currently over 1,600 bios on the website.
Names in parens are user names on the message boards
New Bio February 3, 2010
Danielle R (Smilez133) is from Plymouth, Massachusetts. She started having noticeable Cushing's symptoms when she was 17 (2003. Her first pituitary surgery was on December 16th, 2009 and she is scheduled to have half of her pituitary gland removed on February 11th, 2010.
New Bio February 2, 2010
Faye R (texastwin827) is from Austin, Texas. She is not yet diagnosed with Cushing's but she has diabetes, is hypothyroid and is testing.
New Bio January 28, 2010
Nazli is from Cairo, Egypt. She had Cushing's and a left adrenalectomy 1974. She is testing again for a recurrance.
New Bio January 25, 2010
Robert is from Maine. He was recently diagnosed with adrenal Cushing's and has had chronic renal issues for over 20 years.
Updated Bio January 23, 2010
Amy (Amelita) is from Newark, Ohio. She has not yet been diagnosed with Cushing's but she is testing now. Amy has added info on her testing and has added her email address.
New Bio January 20, 2010
Robyn (Robyn) is from Franklin, Virginia. She was diagnosed with adrenal Cushing's in December 2009. Both of her adrenal glands are now 4 times as large as they should and overactive. Robyn is facing a BLA.
New Bio January 18, 2010
Bruce L is from Windsor Locks, Connecticut. He hopes that robotic surgery will remove his adrenal tumor leaving most of his adrenal gland so there will be no steroid treatment required.
New Bio January 14, 2010
Amy (Amelita) is from Newark, Ohio. She has not yet been diagnosed with Cushing's but she is testing now.
New Bio January 14, 2010
Susannah (spiritualgrl26/susannah) is from Sarasota, Florida. She had an ovarian cyst rupture when she was 18 and she has been diagnosed with PCOS as well as having an adrenal tumor. She doesn't currently have a doctor.
Updated Bio, January 14, 2010
Estela (Estrela) is from Oxnard, California. She has been diagnosed with adrenal hyperplasia, PCOS, alopecia so far. An endo suggested Cushing's and she is planning to see Dr. Ted Friedman. Estela updated her bio after seeing Dr. Friedman who thinks she may have cyclical Cushing's.
New Bio January 12, 2010
Tim B (tbovs) is from Sault Ste Marie, Canada. He has been struggling with rapid weight gain and fatigue and headaches for the past 8 years or so. A pituitary MRI recently showed a macroadenoma and he will continue testing.
New Bio January 12, 2010
Monic' is from Grandview, Washington. Her Cushing's journey started when she left for college in 2006 at age 19. She went to OHSU to see Dr. Cook, was diagnosed with Cushing's and 3 months later she had pituitary surgery. She will be interviewed in the Cushings Help Voice Chat / Podcast series February 4, 2010.
New Bio January 12, 2010
Collette (ColletteJ) is from Dundee, Scotland. She has had 3 abnormal cortisol urine tests and one normal. She has a microadenoma on the left side of her pituitary. Despite this she is still not diagnosed.
New Bio January 5, 2010
Brandon (jediknight36) is from Lewisville, Texas. He is not yet diagnosed with Cushing's but has many symptoms and is testing now. He was interviewed in the Cushings Help Voice Chat / Podcast series. Listen to the archived interview. Brandon has also uploaded videos which are included in his bio.
New Bio January 1, 2010
Deb G (Deb Gal) is from Sachse, Texas. She is testing now for Cushing's and has had many symptoms since the 1970s.
