And It's About Time There Was Some Support For Cushing's!
Newest Bios:
There are currently over 1,100 bios on the website.
Names in parens are user names on the message boards
In Memory April 21
Natalie Fay We will miss you always...
Updated Bio May 15
Nicole (Cocabana) is from Minnesota. Nicole updated her bio in May 2008 a week before her surgery. She suspects steroid-induced Cushing's due to meds she has taken throughout her short life. Nicole may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. Nicole has two areas on MySpace.com.
New Bio May 14
Dawn is from Hernando, Florida. She is not yet been diagnosed with Cushing's but has many symptoms of Cushings and adrenal fatigue. She has had diagnoses of RA, Sjogren's, pre-diabetes, depression, psychological issues, overeating and lack of exercise.
New Bio May 6
Laura is from Virginia Beach, Virginia. She is a breast cancer survivor approaching her 5 year anniversary of being cancer free. She has many Cushing's symptoms and an adrenal tumor. She had an MRI of the pituitary gland which showed no tumor, but her ATCH levels indicated quiet differently.
New Bio May 4
Sweetybandit (Sweetybandit) is from Leeds, United Kingdom. She is not yet diagnosed with Cushing's but she is testing for PCOS and Cushing's.
New Bio May 3
Cindy (ckelly37) is from Bensalem, Pennsylvania. She is not yet diagnosed with Cushing's but she is testing. She already has hypothyroidism.
New Bio May 2
Jackie (samsmom) is from Snohomish, Washington. She first started dealing with Cushing's in her family when her youngest child was born in 1999. Jackie and Sam were featured on a Discovery Health episode called Mystery Diagnosis. Later, the gene responsible for Sam's illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie's oldest daughter, has recently had her adrenals removed. Jackie and Jordan were be the subjects of a Live Interview in the Cushing's Help Voice Chat / Podcast series May 15, 7:30 The topic was Cushing's in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Archives are available.
New Bio April 30
Kathy B (kathybair) is from Kauneonga Lake, New York. She is not yet diagnosed with Cushing's but has many symptoms. Doctors have told her she has possible fibromyalgia, chronic fatigue, depression, stress, and has been called a hypochondriac like many of us.
New Bio April 30
Kathleen (irishlass) is from Wisconsin. She had a transphenoidal pituitary resection December 5, 2007. A recent MRI revealed a good portion of the tumor remains.
New Bio April 28
Bridgette is from Tucson, Arizona. She is not yet diagnosed with Cushing's but thinks that she may have it. She is looking for doctors to do testing in her area.
New Bio April 27
Tiffany (engagedsenior) is from Ellwood City, Pennsylvania. She is not yet diagnosed with Cushing's but she has a prolactinoma and takes Bromocriptine. She also has five different blood disorders.
New Bio April 27
Lily (lilyalex) is from Montreal, Canada, Quebec. She has had Cushing's symptoms since 2002 but has not been diagnosed with Cushing's.
New Bio April 27
Kathi (Kathim) is from Palm Desert, California. She was diagnosed with Iatrogenic Cushing's in 1997.
New Bio April 27
Jennifer S (Jenni) is from Tallahassee, Florida. She is tentatively diagnosed with Cushing's. She will be going to Houston soon for petrosal sinus sampling and surgery, if indicated.
New Bio April 21
Leslie is from Newark, Ohio. She had a pituitary tumor removed at the University Of Michigan. She has had a recurrence and has had Gamma Knife Radiation April 3, 2008. She may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series.
New Bio April 21
Pat H (PatHidy) is from Plattsburg, Missouri. She has had many years of misdiagnoses and mistreatments and she feels she has had her "problem" for most of her 67 years. She has finally been diagnosed with idiopathic adrenal hyperplasia.
Updated Bio April 21
Nancy H is from Cleveland, OH. She had a transphenoidal adenomectomy in June 2003. She updated her bio five years post op when she learned that her little pug was with a pituitary tumor and Cushing's.
New Bio April 20
Bonnie (Bonnie) is from Boca Raton, Florida. She had Cushing's in the '90s and had her left adrenal gland out. Now she's having symptoms again 13 years later and she has a mass on her right adrenal gland.
New Bio April 20
Joey (Joeykins) is from Northampton, UK. She is not yet diagnosed with Cushing's but has many symptoms and she has been diagnosed with Polycystic Ovary Syndrome (PCOS) and Hypertension so far.
New Bio April 20
Kathy (Kathy51) is from Lennox Head, Australia. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio April 20
Theresa is from Huntington, West Virginia. Her 7 year old son has been diagnosed with Cushing Syndrome. he will have surgery on June 1, 2008 to remove his pituitary tumor.
New Bio April 20
Sharon is from Massachusetts. Her sister saw Sharmyn's Discovery Channel show on Cushing's. Sharon had an adrenal tumor removed but is still not feeling well.
New Bio April 18
Amy (missingdiane) is from Carlsbad, California. Her very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue.
New Bio April 18
Lee (Lee) is from Canberra, Australia. Her daughter had pituitary surgery in mid 2007. She is losing weight but still has other symptoms.
New Bio April 18
Melynette (Melynette) is from San Juan, Puerto Rico, US Territory. She has a pituitary adenoma. She found her current endo while waiting for her baby's eye doctor appointment. The endo did a CT scan just to be sure she didn't have an adrenal tumor as well.
New Bio April 18
Amy (missingdiane) is from Carlsbad, California. Her very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue.
New Bio April 18
Lee (Lee) is from Canberra, Australia. Her daughter had pituitary surgery in mid 2007. She is losing weight but still has other
New Bio April 18
Nancy (chance) is from Olympia, Washington. She has Iatrogenic (steroid-induced) Cushing's due to being on steroids for 30 years. She also has Adrenal Insufficiency and a doctor told her to say she has Addison's.
New Bio April 18
Lori (larrysdaughter) is from Coeburn, Virginia. Her father has many diagnoses including Hypertensive Urgency, electrolyte imbalance, TIAs and a small CVA, Diastolic Dysfunction, Bradycardia, with trace Tricuspid regurgitation, mild Mitral regurgitation, a small patent foramen ovale in the Interatrial septum, Glaucoma, a hydrocoele, and periodontal disease. He has an 18 x 13 mm left adrenal lesion and high cortisol but is not yet diagnosed with Cushing's.
New Bio April 17
Lindsay (Lindsay) is from Ipswich, United Kingdom. She is not yet diagnosed with Cushing's but has many symptoms. Her diabetic clinic sent her for a dexamethasone test.
New Bio April 17
Maria (Izzabel78) is from El Centro, California She is not yet diagnosed with Cushing's but she has suffered with Rheumatoid Arthritis since she was a child. Following a terrible car accident, she has had a lot of pain and has been on a lot of meds. A new doctor in Mexico is concerned about all the prednisone she has taken for her RA.
New Bio April 17
Elizabeth (Lizabug) is from West Virginia. She has cyclic pituitary Cushing's and sees Dr. Ted Friedman. She is still testing and hasn't yet had surgery.
New Bio April 17
Tania (taniag) is from Gold Coast, Australia. She had an adrenal gland and benign tumor removed in late January 2008.
New Bio April 17
Kenny (ken2501) is from St. Louis, Missouri. He was diagnosed with Cushing's at the end of his freshman year of high school. He has had two pituitary surgeries and Gamma Knife radiation.
New Bio April 16
Mattie is from Cambridge, Ohio. Her husband has Cushing's. He was diagnosed June 2007, after collapsing and suffering a tramatic brain injury. He now goes to the Cleveland Clinic but they are unable to find his tumor after repeated petrossal sinus samplings.
New Bio April 16
Jenn (Jenn) is from London, Canada. She has had two pituitary surgeries, one with a CSF leak, and is considering a BLA.
New Bio April 16
Eric (Eric O) is from Artesia, California. He is not yet diagnosed with Cushing's but has had CSR for almost 13 years.
New Bio April 3
Mike (mtlmike) is from Montreal, Canada. He is not yet diagnosed with Cushing's but has many symptoms. He is scared and anxious and looking for a solution.
New Bio April 3
Jennifer (jennifer0619) is from Miamisburg, Ohio. She is not yet diagnosed with Cushing's but testing shows elevated cortisol levels. She has many questions.
Updated Bio April 3
Paige has had pituitary surgery and she's chronicled it and her recovery in detail. She rewrote her bio in April 2008. Paige's next surgery is scheduled for June 17, 2008.
New Bio April 3
Bobby (bobbyb) is from New Orleans, Louisiana. He is not yet diagnosed with Cushing's but has many symptoms. When he was 15 he was diagnosed with Chron's Disease.
New Bio March 29
Anne (annabel) is from Sydney, Australia. She was diagnosed with Cushing's 15 years ago and has had every test imaginable but no tumor has been found yet. She is on Ketoconazole and Cytraden.
New Bio March 28
Anita (Anita) is from Rocky Mount, Virginia. She has had symptoms of Cushing's for over 20 years but has not yet been diagnosed.
New Bio March 27
Alison (aearly) is from Portland, Oregon. She is not yet diagnosed with Cushing's but has many symptoms. Her testing has come back normal so far so her endo wants to try metformin. She has submitted a request to speak with the OHSU pituitary clinic.
New Bio March 27
Mary F is from Brawley, California. She had steroid induced Cushing's brought on by arthritis meds she bought in Mexico. After six weeks in the hospital for a blackened leg, her leg was saved and her diabetes gone. After six months, her Cushing's was gone.
New Bio March 27
Sue (sue3708) is from Danbury, Connecticut. She is not yet diagnosed with Cushing's but an MRI showed a prominence of the pituitary with a convex superior border but no tumor. She is testing and waiting for answers.
New Bio March 25
Rachelle (shel) is from Calgary, Canada. She had pituitary surgery in February 2003. Following that, she learned that the tumor had hemorrhaged so she had radiation in 2004 followed by a BLA in 2006. She now has Nelson's Syndrome.
New Bio March 24
Pamela (P Counts) is from Havre de Grace, Maryland. She had a pituitary adenoma removed on March 6, 2008.
New Bio March 22
Lisa is from Oklahoma City, Oklahoma. She had her right adrenal gland removed May 23, 2007. She developed colitis post-op. Lisa updated her bio March, 2008 after a checkup with her endo.
New Bio March 22
Kelli is from Auburn, Washington. She originally read an article in a Weight Watchers Magazine and that started the diagnostic process. She met Karen (rooon55) at Dr Ludlam's office.
New Bio March 20
StaceyJenn (StaceyJenn) is from New Jersey. She has steroid-induced (Iatrogenic) Cushing's. She has taken steroids for allergies. She has also been diagnosed with adrenal insufficiency, hypothyroidism, candidiasis, intestinal permeability and 22 latent food allergies.
New Bio March 18
Katie (kvb927) is from Philadelphia, Pennsylvania. She is not diagnosed with Cushing's yet but has a number of diagnoses - panic disorder, major depression, bipolar disorder, hypothalamic amenorrhea, female hypogonadism, and pituitary adenoma. Her abnormal hormones are low FSH, LH, estradiol, insulin, and free T4. Imaging found a 2 mm. adenoma on her right pituitary and an 11 mm. pineal cyst.
New Bio March 18
Linda (lsfranz2001) is from Arlington, Texas. She has steroid-induced Cushing's from epidural injections.
New Bio March 18
Jamie (synthia) is from Buckfield, Maine. She has many Cushing's symptoms and has been diagnosed with PCOS because of high androgen levels.
New Bio March 16
Barbara is from California. She is going to have her left adrenal gland removed soon but is afraid of the surgery.
New Bio March 16
Carmie (Carmmaui) is from Murphys, California. She has not yet been diagnosed with Cushing's but has many symptoms and was considering bariatric surgery.
New Bio March 16
mm (Feb2008) is from mid-state, North Carolina. She had a 5mm tumor removed at Univ of Va in February 2008. The tumor was resting against the carotid artery.
New Bio March 16
Dawn (chazah) is from Kempton Park, South Africa. She has not been diagnosed with Cushing's but has a great many symptoms. She has been diagnosed with diabetes, Spondylitis, Hypothyroidism, Hashimoto's Thyroiditis and possible lupus.
New Bio March 16
Gail (Gail) is from Swansea, South Wales, Great Britain. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio March 16
Colette (micheline) is from Winnipeg, Canada. She is not diagnosed with Cushing's but has had symptoms of MSL or Madelung's Disease for over 25 years.
New Bio March 15
Lisa is from Oklahoma City, Oklahoma. She had her right adrenal gland removed May 23, 2007. She developed colitis post-op.
New Bio March 13
Chris (Chris) is from Clairton, Pennsylvania. She is not yet diagnosed but she is testing for Cushing's.
New Bio March 10
Lisa is from Fredericksburg, Virginia. She has a right adrenal tumor and was about to have surgery when her endo canceled her surgery. Her surgery is now scheduled for April 4, 2008.
New Bio March 10
Lindsay (LynziMarie) is from Salt Lake City, Utah. She is not yet diagnosed with Cushing's but her test results were "high, but within normal range".
New Bio March 10
Michelle (micgonza) is from West Covina, California. She was diagnosed with Cushing's in November of 2007 with a tumor on her right adrenal gland. She had surgery in January 2008.
New Bio March 10
Jevlin (Jevlin) is from Richlands, North Carolina. She has been dealing with Cushing's symptoms for about 9 years. Her pituitary tumor has grown from 4mm to 8.2mmX5mm so she hopes that someone will finally listen.
New Bio March 6
Diana is from Escondido, California. She was diagnosed in September 2006 with a pituitary adenoma. Her surgery was March 21, 2007.
New Bio March 6
Debra is from Weatherford, Texas. She's waiting for test results. Both her PCP and endo think she has Cushing's.
New Bio March 6
Kelly (KellyDeen) is from Burleson, Texas. She was diagnosed with an adrenal adenoma in November, 2007.
Updated Bio February 29
Dawn (Dawn) is from Bethlehem, Pennsylvania. While she is not diagnosed with Cushing's yet, she has been diagnosed with high blood pressure, depression, anxiety, panic attacks, migraines, diabetes mellitus, chronic fatigue syndrome, sjogrens symdrome, fibromyalgia, nueropathy, hiatal hernia, fatty liver and had several surgeries. Dawn updated her bio February 29, 2008.
Updated Bio February 29
Monica (monicaroni) is currently living in Texas but grew up in Milwaukee. She has Cyclical Cushing's and is taking Ketoconazole. Monica updated her bio September 3, 2007 after pituitary surgery and a BLA and again February 29, 2008 1 year post-op.
New Bio February 26
Brandy (FLBrandy22) is from North Port, Florida. She was diagnosed with pituitary Cushing's and had two transphenoidal surgeries. The first surgery showed that she had hyperplasia, so she had her whole pituitary removed.
New Bio February 25
Cathy W (cathyw) is from Illinois. She is not yet diagnosed with Cushing's but has been sick for 15 years.
New Bio February 25
Kelsey (Kelsey) is from Highlands Ranch, Colorado. She has had two pituitary surgeries so far and both were unsuccessful. They are contemplating a BLA as the next step. Kelsey has tried meds (ketoconazole and metyropone) with limited results. Kelsey's mom has also posted her own bio.
New Bio February 24
Karen (Karen F.) is from Vancouver, Canada. She was diagnosed with Pituitary Cushing's in December 2007 and had transphenoidal surgery on February 15, 2008.
New Bio February 23
Kim (eureka) is from Eureka, Missouri. She has full blown Cushing's symptoms from steroid use. She has asthma and dealt with pneumonia. She now has APBA (Allergic bronchopulmonary aspergillosis) which is a lung condition treated by more steroids.
New Bio February 23
ReneeMarie is from Florida. She had pituitary Cushing's. She is having complications after her surgery.
New Bio February 23
Diane (worriedmom) is from Highlands Ranch, Colorado. Her daughter Kelsey has had two pituitary surgeries so far and both were unsuccessful. They are contemplating a BLA as the next step. Kelsey has tried meds (ketoconazole and metyropone) with limited results.
New Bio February 22
Donna (DonnaMR) is from Philadelphia, Pennsylvania. Her daughter is not yet diagnosed with Cushing's but has PCOS and insulin resistance. Donna's sister had a pituitary tumor.
Updated Bio February 20
Jacqueline (Jacqueline) is from Toronto, Canada. Her internist thought she had Cushing's right away but changed his mind with a negative dex. test. An endo put her on Meridia for appetite and didn't listen to her other symptoms. Jacqueline updated her bio in February 2008 to let us know that she is going to see Dr. Ted Friedman March 11, 2008.
New Bio February 20
Carolina (Carolina) is from Puerto Varas, Chile. She was treated for bipolar disorder and in a mental institution before her pituitary Cushing's was discovered. She had surgery at UVa February, 2007.
New Bio February 20
Rebecca (Re[Becca]) is from Petaluma, California. She is not yet diagnosed with Cushing's but has many symptoms. She feels pressure in her nasal cavity and is afraid that might be a tumor.
New Bio February 20
Dawn (Dawn) is from Bethlehem, Pennsylvania. While she is not diagnosed with Cushing's yet, she has been diagnosed with high blood pressure, depression, anxiety, panic attacks, migraines, diabetes mellitus, chronic fatigue syndrome, sjogrens symdrome, fibromyalgia, nueropathy, hiatal hernia, fatty liver and had several surgeries.
New Bio February 20
Heather (Heather) is from Wagga Wagga, Australia. She is not yet diagnosed with Cushing's but has many symptoms. She recently took prednisone and things got worse. She is having a CT scan and 24-hour urine.
New Bio February 20
Amy (mindylindy) is from Harrisburg, Pennsylvania. She is not yet diagnosed with Cushing's. Routine bloodwork for her PCOS came back with really high testosterone numbers. She is being scanned for an ovarian or adrenal tumor.
New Bio February 20
MicheleP (MicheleP) is from Wolcott, Indiana. She is not yet diagnosed with Cushing's but she has been sick for about a year. MicheleP may be the subject of a future Live Interview in the Cushings Help Voice Chat / Podcast series. More information as it becomes available.
New Bio February 16
Bev is from Manchester, United Kingdom. She was diagnosed with adrenal Cushing's in May 2007 and had surgery October 3, 2007. She feels like she is just existing, not living.
New Bio February 16
Lauren (Lauren) is from Galloway, Ohio. She is not yet diagnosed with Cushing's but has an endo appointment next week. She was diagnosed with bipolar disorder when she was 17.
New Bio February 15
Mary (KatieSamsMom) is from Columbus, Ohio. She is not yet diagnosed with Cushing's but she has PCOS and adrenal nodule.
Updated Bio February 15
Renai (Nai) is from Gunnedah, Australia. She has had Cushing's symptoms for many years and she has high prolactin levels. She has been told she has fibromyalgia.
New Bio February 11
Carol (carryule) is from Canton, Ohio. She is not yet diagnosed with Cushing's but her doctor has found an adrenal mass. She has had a 24-hour urine test so far.
New Bio February 11
Bobbie (Bobbie) is from Elk Grove, California. She is not yet diagnosed with Cushing's but a doctor at a PCOS seminar at UC Davis suggested that she check out Cushing's disease. She has many Cushing's symptoms.
New Bio February 9
Becca (Becca) is from Petaluma, California. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio February 8
Sydni (Sydni) is from the United States. She was just diagnosed with Cushing's Syndrome. She has Reiter's Disease (which is similar to Rheumatoid Arthritis) and has taken Prednisone for many years.
New Bio February 7
Aimee (Daggersmom) is the daughter of a Cushing's patient, Pat. Pat is due to have a BLA in February 2008. She has also had two back fusions, two knee replacements, pituitary surgery, gamma knife and chemical treatment.
New Bio February 7
Crystal is from Spruce Pine, North Carolina. She was originally diagnosed with pseudo Cushing's. After broken bones she got to NIH (the National Institutes of Health) but they couldn't find the tumor, although they believe it's behind a hernia. Surgery is too risky and Crystal is contemplating a BLA.
New Bio February 7
JoAnn (Flojo3) is from Thunder Bay, Canada. During a kidney ultrasound it was found that JoAnn has an abnormality in her adrenal glands.
New Bio February 7
Kathryn (Kathryn) is from West Yorkshire, England. She had a pituitary adenoma removed and is on replacement of cortisol, thyroxine and soon to be on growth hormone. She will be having a hip replacement soon.
New Bio February 5
Melissa (Melissa) is from Franklin, Kentucky. She had a pituitary tumor removed 10 years ago but had symptoms return two years ago.
New Bio February 5
Lynn (Lynn1201) is from Ohio. She is newly diagnosed with a second adrenal insufficiency and hypothyroidism.
New Bio February 5
RiAna (bizzysgirl) is from East Alton, Illinois. She thinks she has Cushing's or Pseudo Cushing's. She has diabetes and was told she is bipolar.
New Bio February 4
Gys is from Bloemfontein, South Africa. He was diagnosed with acromegaly in 2007 and had a tumor removed. His hGH and Somatomodine C are still extremely high so he has been hospitalized again for testing and to see if another surgery is needed.
New Bio February 1:
MamaBibbs is from Fort Wayne, Indiana. She had MRIs of her brain, pituitary, adrenal, kidney, pancreas and CT of lungs before a petrossal sinus sampling showed a probably pituitary tumors. She has not yet had surgery.
New Bio February 1:
Sarah (sisnlaw) is from Austria. Her sister in law was diagnosed with Cushing's January 2008. Although she was happy to get the diagnosis, she's scared today and extremely depressed. She returns to the hospital February 11, 2008.
Updated Bio January 30:
FerolV (FerolV) is from Charlotte, NC. She had pituitary surgery September 30, 2005. She saw the special on DISCOVERY Health. She has updated her bio at about 1 1/2 years post-op. She updated her bio again January 30, 2008, 2 1.5 years post op.
New Bio January 30:
Claudia (clauchelo) is originally from Colombia, now living in Germany. She had pituitary tumor surgery in April 2007 and her doctor has told her it's possible she may need another surgery.
New Bio January 30:
Suzanne (Suzanne) is from Lexington, South Carolina. She has an incredible medical history that includes over 50 surgeries since she was 12. She has been diagnosed with Slipped Capital Femoral Epythesis, JRA (Juvenile Rheumatoid Arthritis, Lupus, fibromyalgia and has had two amputations. Through all this she has taken massive doses of steroids. She saw Sharm's episode of Mystery Diagnosis and believes she has Cushing's. Suzanne is testing for Cushing's now.
New Bio January 30:
Bubbles (Bubbles) is from Wichita, Kansas. She has Metabolic syndrome (also known as syndrome x or insulin resistance). Scans have shown both pituitary and adrenal tumors. She is trying to decide if her symptoms are bothersome enough to warrant surgery and following through with a petrosal sinus sampling.
New Bio January 28:
Tracey (Tracey) is from Bethlehem, Pennsylvania. She was diagnosed with pituitary Cushing's in October 2007 and will have surgery at Johns Hopkins in February 2008.
New Bio January 28:
Gail is from Warrington, UK. She is not diagnosed with Cushing's but is a diabetic and has trouble keeping her sugar levels down even with insulin.
New Bio January 28:
Stephanie is from Prince George, Canada. She was diagnosed with adrenal Cushing's in July of 2007 and had her left adrenal gland removed in November, 2007. She is still on prednisone and has pain on her side.
New Bio January 28:
Mary (marym) is from Grand Blanc, Michigan. She has not had a positive diagnosis for Cushing's as of yet. She has been diagnosed with PCOS and subclinical hypothyroid.
New Bio January 28:
Alicia (medcats10) is from Tucson, Arizona. She is not yet diagnosed with Cushing's but has many symptoms. Alicia will be the subject of a Live Interview in the Cushings Help Voice Chat / Podcast series February 7, 2008, 7:30 PM. Archives will be available after the chat.
New Bio January 28:
Renai (rossi) is from Australia. She is not yet diagnosed with Cushing's but has many symptoms.
Updated Bio January 28:
Hallie (hrgendron) is from Boynton Beach, Florida. She is not diagnosed with Cushing's but has Grave's Disease and has had her thyroid destroyed. Hallie has many Cushing's symptoms and has updated her bio with more information.
New Bio January 24:
Ellyse (ellyse) is from Cumming, Georgia. She had her left adrenal gland removed in January, 2008 and wants to lose weight for a wedding in May.
New Bio January 24:
Bexx (Bexx) is from New York, New York. She has struggled with her health since she was a small child around the age of 7 or 8.
New Bio January 24:
Dick (Dick) is from Harrison City, Pennsylvania. He has had extensive MRI's CAT scans and PSST to locate a tumor in his body. As a result of these tests he has had two surgeries in the past two and a half years. One to his thymus that was successful and one to his pituitary. He still produces a large amount of cortisol.
New Bio January 24:
Christine is from East Rutherford, New Jersey. She had transphenoidal removal of a pituitary macroadenoma on July 11, 2006. She had remaining tumor growing around her carotid artery that was inoperable. She also had Gamma Knife surgery on December 12, 2007.
New Bio January 24:
Karen (Karen) is from Austin, Texas. She had her right adrenal gland removed January 7, 2008. She has some questions about her cortisol replacement. Karen has also indicated that she is interested in being interviewed during a CushingsHelp Voice Chat. More information on that will be provided after the date and time are set.
New Bio January 22:
Dodie (Dodie) is from Maria Stein, Ohio. She sees Dr Friedman. An MRI showed a posterior pituitary tumor.
New Bio January 18:
Karen Nolan (rooon55) Karen's disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing's, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries.
New Bio January 18:
Shawna (bbwinbama) is from Cullman, Alabama. She was diagnosed with Cushing's Disease January 14, 2008 after having symptoms for many years.
New Bio January 18:
Jodi is from Kenton, Ohio. She is not yet diagnosed with Cushing's but has many symptoms. Her dex suppression test came back normal but her doctor doesn't believe the results.
New Bio January 16:
Jenny (Jenny1107) is from Champlin, Minnesota. She is not yet diagnosed with Cushing's but has an appointment with an endo January 24, 2008.
New Bio January 16:
Trena (Trena001) is from Pilot Mountain, North Carolina. She thinks that her daughter may have Cushing's. Trena's son was diagnosed with Hodgkin's Lymphoma and their doctor thinks it would probably be near impossible for two children in the same family to have unrelated rare diseases.
New Bio January 16:
Barbara (Barbara522) is from Andover, Kansas. She was diagnosed with Cushing's last year and will need to have a Petrosal Sinus Sampling soon.
New Bio January 15:
Michelle (emilysmommie) is from Corona, California. She is not diagnosed with Cushing's but has many symptoms. She has had a 24-hour UFC which came back in the normal range. Her endo suggested Meridia.
New Bio January 14:
Mark (Mark) is from Louisville, Kentucky. He has Addison's Disease and would like to meet others who have this disease..
New Bio January 13:
Babette is from Las Vegas, Nevada. She had laproscopic surgery for PCOS and took Clomid. She was successful in finally having a miracle baby.
New Bio January 11:
Hayley (silverstarprincess) is from South London, England. She doesn't have a full diagnosis yet but hopes to find out in a few weeks.
New Bio January 11:
Leigh (crazyduck) is from French Settlement, Louisiana. She is not yet diagnosed with Cushing's but has many symptoms. She has just had several tests and an MRI or her pituitary gland. All that the bloodwork shows so far is that her thyroid is out of whack.
New Bio January 11:
Kristin (KWDesigns) is from Portland, Oregon. She has ACTH Independent Cushing’s Syndrome and will have adrenal surgery January 29, 2008.
New Bio January 11:
Rach is from Provo, Utah. She is now 21 and has been diagnosed with Cushing's 3 different time and she has had 3 transphenoidals and stereotactic radiation.
New Bio January 10:
Michelle (MCheri) is from Penrose, Colorado. She has a pituitary gland tumor and will have surgery in February 2008. It isn't prolactin producing but she isn't sure if it's Cushing's yet or not.
In Memory: Lori
Lori Holt passed away on Sunday, January 6, 2008. She was hopeful that the surgery would help her, and loved and appreciated her many friends and others who supported her. Thank you to everyone here who knew her and offered encouragement and hope.
New Bio January 9:
JoAnn (flojo3) is from Thunder Bay, Canada. She is not yet diagnosed with Cushing's but a recent ultrasound of her kidneys showed an abnormality in her adrenal glands.
New Bio January 8:
Nate's wife (nderolph) is from Newark, Ohio. His wife was diagnosed with Cushing's about 2.5 years ago. She has had two pituitary surgeries and has just had a second recurrence.
New Bio January 7:
Judy H (Judy H) is from California. She first saw an endo in September 2006 and was diagnosed on October 26th, 2006. Judy had ectopic Cushing's due to a tumor on her lung which was removed in November 2006.
New Bio January 6:
Travis is from Morgan City, Louisiana. He had ectopic Cushing's caused by a carcinoind tumor. He also had a pituitary tumor removed.
Updated Bio January 6:
Jody (jodiann) is from Tacoma, Washington. She was diagnosed with Cushing's syndrome about 3 years ago. She also was diagnosed with bliateral multinodular adrenal hyperplasia. Her mom died from complications from a bilateral adrenalectomy (BLA) in 1978. She had Cushing's syndrome with pheochromocytomas. Jody updated her bio in December 2007 and January 2008.
New Bio January 4:
Liv (Liv) is from Rochester, Washington. Her mother has Cushing's and Liv is unhappy with the testing that her mother is having locally.
New Bio January 4:
Lisa (ldyaquarius) is from Columbus, Indiana. She is not yet diagnosed with Cushing's but she takes prednisone for asthma and Bells Palsy. She wonders how she will get better if she can't get off the steroids.
New Bio January 1:
Gerald (Jerry) is from Warren, Michigan. His wife had Cushings about 10 years ago, about 7 years before they met.
New Bio January 1:
Catrina (Catrina) is from Manchester, England. She is not yet diagnosed but is waiting for her first Endo appointment for Cushing's testing on January 9, 2008. She has been having symptoms since she was around 18.
New Bio January 1:
Tracey (trayseejaw) is from Franklin, New Jersey. Her 10 year old son may have Cushing's.
