And It's About Time There Was Some Support For Cushing's!
Newest Bios:
There are currently over 1,600 bios on the website.
Names in parens are user names on the message boards
New Bio March 12, 2010
Dwight (Rocky) is from Rocky Mountain House, Alberta, Canada. He had a BLA in May of 2008 because of ectopic Cushing's disease. His recovery was good with most symptoms decreasing or continuing to improve but he still has no energy, extreme fatigue and depression.
New Bio March 10, 2010
Martha is from San Francisco, California. She was diagnosed two years ago with Cushing's Disease. She has had two unsuccessful pit surgeries and has taken part in a drug study that was also unsuccessful. Right now she's deciding whether to get a third pit surgery or have a BLA.
New Bio March 5, 2010
Melissa R (melissar) is from Chelsea, Oklahoma. She was diagnosed with pituitary dependent Cushing's disease in May of 1996 when she was 17. Since then she has had 2 pituitary surgeries, thirty radiation treatments, three attempts at a bilateral adrealectomy with only one adrenal being removed.
New Bio March 4, 2010
Rita (sparkie) is from Lafayette, Indiana. Her neuro diagnosed Cushing's Syndrome right away but she's not sure her endo will be so easily convinced.
New Bio March 2, 2010
Linda (grimsh) is from Tampa Bay, Florida. She is not yet diagnosed with Cushing's but has several symptoms and is testing. A recent MRI showed a small pituitary tumor.
New Bio February 25, 2010
Debbie is from North Haven, Connecticut. She is not yet diagnosed with Cushing's but has several symptoms and is testing. She was diagnosed with Graves 15 years ago and has two VERY small nodules one of her adrenal glands. Debbie will be interviewed in the Cushing's Help Podcast Series March 11th. More info here
Updated Bio February 24, 2010
Monic' (monic13) is from Grandview, Washington. Her Cushing's journey started when she left for college in 2006 at age 19. She went to OHSU to see Dr. Cook, was diagnosed with Cushing's and 3 months later she had pituitary surgery. She was interviewed in the Cushings Help Voice Chat / Podcast series February 4, 2010. Listen to Monic's interview on iTunes or on the podcast page.
New Bio February 20, 2010
Regina (Jeanie) is from Michigan. She is not yet diagnosed with Cushing's but has several symptoms and is testing.
New Bio February 16, 2010
Bonnie (Bonaroo) is from Pennsylvania. She was diagnosed with Addison's disease in January 2009.
Updated Bio February 15, 2010
Wen (greydragon) is from Pennsylvania. She is not yet diagnosed with Cushing's but has several symptoms.
New Bio February 8, 2010
Sandra (Sandra) is from Hilton Head, South Carolina. She was diagnosed with pituitary Cushing's Disease after over 9 years of symptoms. She is now awaiting surgery at UVA.
New Bio February 8, 2010
Shellie (shellie) is from Haines City, Florida. She is not yet diagnosed with Cushing's but has been living with symptoms for 5 years. She is testing now.
New Bio February 5, 2010
Nanometer (sarah logic) is from Arhus, Denmark. She is not yet diagnosed with Cushing's but has many symptoms and is testing now.
New Bio February 3, 2010
Danielle R (Smilez133) is from Plymouth, Massachusetts. She started having noticeable Cushing's symptoms when she was 17 (2003). Her first pituitary surgery was on December 16th, 2009 and she had half of her pituitary gland removed on February 11th, 2010. Danielle was interviewed in the Cushings Help Voice Chat / Podcast series March 4, 2010. Listen to Danielle's interview on iTunes or on the podcast page.
New Bio February 2, 2010
Faye R (texastwin827) is from Austin, Texas. She is not yet diagnosed with Cushing's but she has diabetes, is hypothyroid and is testing.
New Bio January 28, 2010
Nazli is from Cairo, Egypt. She had Cushing's and a left adrenalectomy 1974. She is testing again for a recurrance.
New Bio January 25, 2010
Robert is from Maine. He was recently diagnosed with adrenal Cushing's and has had chronic renal issues for over 20 years.
Updated Bio January 23, 2010
Amy (Amelita) is from Newark, Ohio. She has not yet been diagnosed with Cushing's but she is testing now. Amy has added info on her testing and has added her email address.
New Bio January 20, 2010
Robyn (Robyn) is from Franklin, Virginia. She was diagnosed with adrenal Cushing's in December 2009. Both of her adrenal glands are now 4 times as large as they should and overactive. Robyn is facing a BLA.
New Bio January 18, 2010
Bruce L is from Windsor Locks, Connecticut. He hopes that robotic surgery will remove his adrenal tumor leaving most of his adrenal gland so there will be no steroid treatment required.
New Bio January 14, 2010
Amy (Amelita) is from Newark, Ohio. She has not yet been diagnosed with Cushing's but she is testing now.
New Bio January 14, 2010
Susannah (spiritualgrl26/susannah) is from Sarasota, Florida. She had an ovarian cyst rupture when she was 18 and she has been diagnosed with PCOS as well as having an adrenal tumor. She doesn't currently have a doctor.
Updated Bio, January 14, 2010
Estela (Estrela) is from Oxnard, California. She has been diagnosed with adrenal hyperplasia, PCOS, alopecia so far. An endo suggested Cushing's and she is planning to see Dr. Ted Friedman. Estela updated her bio after seeing Dr. Friedman who thinks she may have cyclical Cushing's.
New Bio January 12, 2010
Tim B (tbovs) is from Sault Ste Marie, Canada. He has been struggling with rapid weight gain and fatigue and headaches for the past 8 years or so. A pituitary MRI recently showed a macroadenoma and he will continue testing.
New Bio January 12, 2010
Collette (ColletteJ) is from Dundee, Scotland. She has had 3 abnormal cortisol urine tests and one normal. She has a microadenoma on the left side of her pituitary. Despite this she is still not diagnosed.
New Bio January 5, 2010
Brandon (jediknight36) is from Lewisville, Texas. He is not yet diagnosed with Cushing's but has many symptoms and is testing now. He was interviewed in the Cushings Help Voice Chat / Podcast series. Listen to Brandon's interview on iTunes or on the podcast page. Brandon has also uploaded videos which are included in his bio.
New Bio January 1, 2010
Deb G (Deb Gal) is from Sachse, Texas. She is testing now for Cushing's and has had many symptoms since the 1970s.
