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The very newest bios on the site (2014)

Newest Bios:
There are currently over 1,850 bios on the Cushing's website. Please note that new and updated bios submitted after November have not yet been formatted for the site. They are being done in turn and will show up here in the next few days.

Add or Update your bio here

Names in parens are user names on the message boards

Bios are being moved to a new website:

New Bio December 20, 2014
Sandi J
recently had a kidney stone and went to the ER where they did a CT scan. The scan showed an adrenal adenoma...

New Bio December 2, 2014
is currently being tested for Cushing's and is scared. She has hypothyroidism/ Hashimoto's auto immune disease.

New Bio November 10, 2014
Tiffiny D (Tiffiny 3)
is from Thatcher, Utah. Tiffiny was diagnosed with pituitary Cushing's this fall and will have surgery on December 9, 2014.

New Bio November 8, 2014
Helena (hummerbird)
is not yet diagnosed with Cushing's but she is weaning off Prednisone. She has Fibromyalgia and SLE (Systemic lupus erythematosus).

New Bio October 10, 2014
Andrea (AndreaM)
is from Charlotte, North Carolina. Andrea suffered from Cushing's when she was 9 years old. She had pituitary surgery, bilateral adrenalectomy (back in 1988 when it was not laparoscopic), then 2 more pituitary surgeries as her tumor grew and regrew too close to the optic nerve. Her last pituitary surgery was followed by Gamma Knife Radiation when she was 19.

New Bio October 3, 2014
Don S (Don S)
is from Pittsburgh, Pennsylvania. He is not yet diagnosed but knows about cortisol and its effect on the body because his mother passed away from Cushings at 46 after years of taking steroids for respiratory problems.

New Bio September 30, 2014
Kelly (Kelly Jo)
is from Irving, Texas. She had probably already had Cushings for 10 years but her past doctor never once really heard her complaints and just told her she was fat and how easy it is to lose weight. She has had two pituitary surgeries and Gamma Knife Radiation.

New Bio September 14, 2014
Dennis O (denniso)
is from Australia. His doctors have decided that they could not operate due to his poor health and the fact that they could not find the tumour. As a temporary measure he is taking ketoconozole to control his cortisol levels.

New Bio September 11, 2014
Lil (luckylil)
is from San Bernardino, California. Lil's niece has had Cushing's for 8 years prior to diagnosis. She had her one tumor ridden adrenal gland removed 3 months ago. The remaining adrenal gland had shrunk and is non-functioning.

New Bio September 11, 2014
Elizabeth (ToxicNudibranch)
is from Utah. "...I'm off Prednisone again. I know something is very wrong. I go to another Endo, Dr. Knecht, who actually listens. He reviews my medical history, looks at my clear physical symptoms, and orders a crapload of labs. The results are pretty clear. It's Cushings. He thinks there's a good chance it's cyclical...

New Bio August 21, 2014
Mary H (Marietta)
is from Chicago, Illinois. She was diagnosed with Cushing's Disease in 1976. After her pituitary surgery was ineffective, she had bilateral adrenalectomy.

New Bio August 20, 2014
Molly (Iloveparrots)
is from Buffalo, New York. She is undiagnosed but is testing for Cushing's now.

New Bio July 16, 2014
Britt (Britt)
is from Bay Area, California. She is undiagnosed but has had Cushing's symptoms for 4 years now. She is doing a survey on Cushing's and blood type.

New Bio July 3, 2014
Raveh I
is from Israel. She had symptoms of Cushing's for at least 5 years before being diagnosed with a had a 5 cm tumor on her left adrenal which was removed.

New Bio July 1, 2014
Dawn M (Lind8588)
is from Elgin, Illinois. She suffered from severe asthma and environmental allergies since she was a young child. They used steroids as a way to help me breathe and stop hives.

In Memory June 23, 2014: Kate Myers 1968-2014
Kate had Cushing's symptoms since 1991. She had two pituitary surgeries and another recurrence followed by a BLA and radiation. She has appeared on National Geographic TV in the Science of Obesity.

New Bio June 22, 2014
Tina H (TinaHardenMississippi)
is from Fulton, Mississippi. Tina was diagnosed with Cushing's in September 2013, had an IPSS in April 2014 and surgery to removed her pituitary tumor June 13, 2014.

New Bio June 21, 2014
Cathy L (CathyL)
is from Gloucester, Virginia. Cathy had symptoms for many years. She had her tumor out with Dr. Ed Oldfield at UVA and has not had any recurrence since 2009.

In Memory June 19, 2014: Samantha Cohn 1980-2014
Her mother told investigators she had been diagnosed with Cushing's syndrome, police sources said.

In Memory June 18, 2014: Diana Crosley 1955-2014
Diana passed away peacefully on Wednesday, June 18, 2014. She was a long-time Cushie who'd had a BLA at the NIH in 2002.

New Bio June 17, 2014
Drew (DrewP)
is from Omaha, Nebraska. He is a 24 year old male who has been feeling out of whack for 4 years now. His problems started with the indication of low thyroid, then noticed low testosterone.

New Bio June 16, 2014
Denise (Jeff's Mom)
is from Sayreville, New Jersey. Her son is almost 16 years old and so sick he hardly gets out of bed anymore. Doctors do not not give her any other ideas of what is wrong with him only that he needs to lose weight and exercise more.

New Bio June 13, 2014
Catherine B
is from Alaska. She was diagnosed with cyclical Cushing's Disease by Dr. Friedman and has had pituitary surgery. She is considering a BLA.

New Bio May 31, 2014
is from Umea, Sweden. She was diagnosed with Cushing's Syndrome (adrenal) in August 2012 and had surgery in September 2012.

New Bio May 16, 2014
John (JCinVT)
is from Graniteville, Vermont. He was diagnosed with Primary Aldosteronism (Conn's) and Subclinical Cushing's Syndrome (SCS) by NIH (Protocol 00-CH-0160) 2 years ago.

In Memory May 9, 2014: Melinda Smith 1988-2014
Melinda was a member of the Cushing's Help message boards since Jun 24, 2007. She was only 25 and leaves behind a young son and many loving family members.

New Bio May 9, 2014
Andrew E (hurryupandwait)
is from Long Beach, California. He just discovered he has Madelungs disease and is trying to find any resources.

New Bio May 9, 2014
MacKenna (skymac12)
is from Cibolo, Texas. She is a six year old who weighs about 95 pounds. At four, she was normal to underweight. Her mom is looking for answers.

New Bio April 28, 2014
Sarah Y
is from Gibsonia, Pennsylvania. Her 14 year old son is not yet diagnosed with Cushing's but has increasingly more and more symptoms.

New Bio April 24, 2014
is from Colombia. She posted her bio in response to Kelly Jo, Pituitary Bio. I included a translation from Spanish under her comments.

New Bio April 12, 2014
Rebecca D (Rebecca D)
is from Toronto, Ontario, Canada. Her mom saw an episode of Mystery Diagnosis and recognized that Rebecca had Cushing's Disease. Rebecca had pituitary surgery after 2 years of testing. Rebecca was interviewed May 14, 2014 at 6:00 pm eastern in BlogTalkRadio

New Bio April 11, 2014
is from Fairfield, California. She was hospitalized for almost a year before her endo diagnosed with Cushing's. She had her whole pituitary gland removed.

New Bio April 7, 2014
Diana B (Diana Brown)
is from North Kingstown, Rhode Island. She has many symptoms but is not yet diagnosed even though she has an adrenal adenoma. She is going to go see Dr. Theodore Friedman.

New Bio April 6, 2014
Kathy C
is from Mt. Shasta, California. In 1995, she was diagnosed with a pituitary tumor. At the time the only symptom she was aware of was a severe headache. She had a transsphenoidal resection followed by radiation therapy for 23 days. At the time they said they could not remove all of the tumor. Kathy was interviewed May 7, 2014 at 6:00 pm eastern in BlogTalkRadio

New Bio March 7, 2014
Michelle (Michelle)
is from Mt. Laurel, New Jersey. Her youngest son has been steadily gaining weight, has a large round face with red checks and large torso. They have been to 3 endocrinologists so far and have not been given a diagnosis of Cushing's. Michelle's sister has cyclical Cushing's.

New Bio February 26, 2014
is from Germany. Her adrenal incidentaloma was discovered after an abdominal CT in 2011.

New Bio February 14, 2014
Brenda B (BeBop)
is from Hudson, Wisconsin. In the early 1990s she was diagnosed with PCOS but she has a lot of Cushing's symptoms now.

New Bio February 10, 2014
Kelly Jo (Kelly Jo)
is from Irving, Texas. She was first diagnosed with Cushings Disease in the fall of 2007 after breaking her hip. She has had two recurrences.

New Bio February 9, 2014
Claire (helaana55555)
is from Victoria, Australia. She recently had her left adrenal gland removed.

New Bio January 27, 2014
Hadie (Lane)
is from San Jose, California. She is not yet diagnosed with Cushing's but has a buffalo hump and striae.

New Bio January 14, 2014
Mary Lou (MarLo)
is from Granbury, Texas. She is the mother of a 19 girl who is currently being evaluated for Cushing's Syndrome/Disease.

New Bio January 9, 2014
Violet (hamot)
is from Erie, Pennsylvania. She was diagnosed with Cushing's in 2004 after being misdiagnosed for over 12 years. She had a left adrenalectomy.

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