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The very newest bios on the site (2008)
Names in parens are user names on the message boards
New Bio December 29
turtledove (turtledove) is from Hamilton, Ohio. She is not yet diagnosed with Cushing's but she has many symptoms.
New Bio December 28
April (April) is from Jacksonville, Florida. She is not yet diagnosed with Cushing's but has a PCOS diagnosis.
New Bio December 23
imbolcgirl (imbolcgirl) is from Ohio. She his not yet diagnosed with Cushing's but has many symptoms.
New Bio December 22
Margaret (Margaret) is from SW, Virginia. She has recently been diagnosed with Cushing's Disease. She is scheduling an IPSS.
New Bio December 14
Lisann (lisann) is from St. Louis, Missouri. She is not yet diagnosed with Cushing's but she is testing. She has an adenoma, is a long-time hydrocortisone user and has Graves Disease.
New Bio December 14
Leann is from Bulger, Pennsylvania. Her son was recently diagnosed with Congenital Adrenal Hyperplasia (CAH). She suspects possible adrenal problems with her oldest daughter (age 19) and herself.
New Bio December 12
Natalie (Natalie) is from Denton, Texas. She is not yet diagnosed with Cushing's but has a PCOS diagnosis. When she was younger her doctors were concerned that she had a pituitary tumor.
New Bio December 9
Bobbie (bobbiejane) is from Kansas City, Kansas. She had two pituitary tumors and a final removal of the pituitary with the last surgery. She has had three adrenalectomies! She may have a recurrence.
New Bio December 8
MariaLaura (Maria Laura) is from Italy. She is not diagnosed with Cushing's. She does have PCOS and insulin resistance.
Updated Bio December 6
Kandis (Kandis) is from Frederick, Maryland. She had a transphenoidal that was unsuccessful followed by a BLA (bilateral adrenalectomy).
New Bio December 5
Renee (rmaxwell) is from the Los Angeles area of California. She is not yet diagnosed but has many symptoms.
New Bio December 4
Vida is from Budapest, Hungary. She is a medical doctor.
New Bio December 3
Barbara (2maro) is from Houston, Texas. She ended up at at MD Anderson with Dr. McCutcheon who removed the pituitary tumor transphenoidally. Miraculously, over the next 9 months, she lost 100 pounds. She is no longer diabetic and did not have high blood pressure until 2008.
New Bio December 3
Paula (PaulaWI1980) is from Oshkosh, Wisconsin. She is a 27 year old female just diagnosed with Cushing's after 12 years of first noticing the onset of her symptoms.
New Bio December 2
Fatima is from Bowie, Maryland. She doesn't have Cushing's syndrome, but she does have high cortisol, and she thinks some kind of adrenal disorder, even though many doctors have told her this is not the case.
New Bio December 2
Darla (Darla) is from Las Vegas, Nevada. After several pregnancy problems and many symptoms, she had pituitary surgery May 2, 2008. She still has many symptoms and other diagnoses.
New Bio December 2
Karissa (K) is from Jacksonville, Florida. She is not yet diagnosed with Cushing's but has many symptoms. Her doctor suggested testing.
New Bio December 1
Che is from Perth, Australia. She hasn't been diagnosed with Cushing's but has many symptoms. A CT scan shows an irregularity of the pituitary gland.
New Bio December 1
Valerie is from Toms River, New Jersey. She has been on steroids for 6 years and as a result, she now has Cushing's, Addison's and type 2 diabetes.
New Bio November 26
Tori is from King George, Virginia. Her six your old daughter has Cushing's symptoms and is testing.
New Bio November 21
Elisabeth (bethnaz) is from Mesa, Arizona. She had pituitary surgery on November 26, 2008.
New Bio November 20
Kathleen (ForegoneLegacy) is from Chambersburg, PA. She had two pituitary tumors removed 8/22/08 and she's still not feeling any better.
Over the last 10 years she has been Cushing's, Lyme, lupus, endometriosis, sinus tachycardia, fibromyalgia, arthritis and asthma.
New Bio November 19
Viv is from San Diego, California. She has been diagnosed with a pituitary 7mm tumor, and cyclical Cushing's but she has not yet had surgery.
New Bio November 19
Michelle (ingledoo) is from Richmond BC. She is not yet diagnosed but has an endo and is testing.
New Bio November 18
aspcabonnie (badem) is from Pittsburgh, Pennsylvania. She has had many illnesses throughout her life. She is approaching the one year anniversary of her pituitary surgery and also has adrenal tumors.
New Bio November 17
Ryley (Sunshine) is from Joliet, Illinois. Her endo thinks Ryley has an adrenal problem.
New Bio November 17
Carole is from Catonsville, Maryland. She doesn't think she has Cushing's although she is not done with testing. She has been diagnosed with an adrenal tumor/hyperaldosteronism. and possibly Conn's.
New Bio November 15
Belinda (Belinda) is from Russellville, Kentucky. She had an adrenalectomy in April of 2008 and is feeling much better.
New Bio November 15
Clarke (mutley) is from Norwich, England. He has had 4 24 hour urine cortisol tests (all indicative of Cushing's) and dexamethasone suppression test (inconclusive). He has been referred for an inpatient stay the hospital for further tests and an official diagnosis.
New Bio November 12
Melissa (Melissa) is from Ankeny, Iowa. Her 6 year old daughter has been showing symptoms of Cushing's and is testing.
New Bio November 11
Daniel (Danny Boy) is from Stuart, Florida. He has an even more rare form of Cushing's with the tumor in his lung.
New Bio November 11
Sarah (Sass) is from Melbourne, Australia. She will have pituitary surgery on November 28, 2008.
New Bio November 10
Tia (Tia) is from Bandera, Texas and she was diagnosed with Cushing's three years ago. She checked off both pituitary and adrenal.
New Bio November 7
Lindsay (mamaleeisme) is from Pine Bluff, Arkansas. Her daughter may have Cushing's. Her husband's cousin had a pituitary tumor that caused Cushing's.
New Bio November 7
Liberty (libertybell) is from Melbourne, Australia. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio November 6
Jewell (Jewell) is from Madisonville, Louisiana. Jewell had gastric bypass surgery one year ago. A new primary care Doctor discovered she had an adrenal gland tumor causing Cushing's.
New Bio November 6
Susanna is from Falling Waters, West Virginia. She had pituitary surgery on July 8, 2008 at the University of VA with Dr. Edward Oldfield.
New Bio November 6
Megan (meggers317) is from Eagan, Minnesota. She is not yet diagnosed but has PCOS. She read about Cushing's in Readers' Digest.
New Bio November 6
Bob (RDP) is from Portsmouth, Ohio. His diagnosis of "suspected" Cushing's was by a dermatologist.
Updated Bio October 31
Cindy (superc) is from Chanute, Kansas. She has recently received a preliminary diagnosis of Cushing's. She had a hemithyroidectomy in December 2007. Cindy updated her bio in October, 2008.
New Bio October 28
Donna (donnacarroll) is from Baim, Florida. She was diagnosed with Cushing's on October 28, 2008. She has a tumor on her pituitary gland and one on her adrenal gland.
Updated Bio October 30
Penny is from Mcminnville, Tennessee.
She is not yet diagnosed with Cushing's but has many symptoms.
New Bio October 28
Laura (lauralu) is from Canada.
She is not yet diagnosed with Cushing's but has many symptoms.
New Bio October 26
DaniLyn (DaniLyn) is from Massachusetts. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio October 26
Elaine (Elaine) is from Miami, Florida. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio October 26
Alicia (Leish) is from Cheshire, Connecticut. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio October 26
Mae (Mae) is from Orlando, Florida. She is not yet diagnosed with Cushing's but has many symptoms.
Updated Bio October 22
Natasha (Natasha) is from Muskegon, Michigan. She is not yet diagnosed with Cushing's but testing is indicating that she may have it. Natasha updated her bio after her adrenal surgery.
New Bio October 20
SusanKate (susankate) is from Chesterfield, Missouri. She was recently diagnosed with Cushing's due to a left adrenal tumor.
Updated Bio October 19
Vickie (Vickie) is from Davie, Florida. She has taken medication for her pituitary tumor for 4 years and she is considering surgery. Vickie updated her bio after her endo said she didn't have Cushing's but Cleveland Clinic is running some tests.
New Bio October 16
James (JamesC) is from Roanoke, Virginia. He is not yet diagnosed with Cushing's but has many symptoms.
New Bio October 16
Jana (JanaL) is from Brandon, Canada. She had pituitary surgery May 22, 2008 and she's feeling much better now.
In Memory: Martha
Martha passed away on Monday October 13, 2008. Her partner writes: "Dr. F had wanted to give Martha an IPSS, but she had a problem with an EKG two weeks ago so the doctor would not release her for surgery. She went for a cardio strees test last week and was to get her results tomorrow. She was feeling "ok" but when I arrived home this evening, I found her in the bathroom. I tried to give her CPR but I really knew it was too late....Although Martha never used this forum, she told me she was grateful that all of you were here to answer our questions and accepted us with open arms."
New Bio October 9
Kim (Kim) is from California. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio October 9
Marcia (Marcia K) is from North Palm Beach, Florida. She has a PCOS diagnosis and has Cushing's symptoms.
New Bio October 7
Sheara (sbailey) is from Grantham, New Hampshire. Sheara had a Transsphenoidal surgery to remove her pituitary tumor. The pathology report results were that it was an ACTH (aka Cortisol) and Prolactin Tumor.
New Bio October 7
Mac (Mac) is from Manassas, Virginia. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio October 6
Nikki (Nikki) is from Castle Rock, Colorado. She was diagnosed with Cushing's 10 years ago in August. She underwent 2 surgeries to remove her pituitary tumor.
New Bio October 3
Tanya (Tinaxx) is from Stoke on Trent, England. Her Mum has a mass on her pituitary and also on her adrenal gland (the dr thinks that is because of overuse) but the plan is to remove both adrenal glands for the best chance of cure.
New Bio October 3
Rebecca (NixieNox) is from Maryland. She is not yet diagnosed with Cushing's but she is testing.
New Bio October 3
Kim (ajc3boys) is from Riverdale, Utah. She is not yet diagnosed with Cushing's but her endo is running tests.
New Bio October 4
Gina (Gina) is from Washington, DC. She has had surgery for an adrenal tumor that was thought to be a pheochromocytoma.
New Bio October 4
Monica (Lollypop) is from Laguna Niguel, California. She is not yet diagnosed with Cushing's but she has many symptoms including diabetes.
New Bio October 3
Rebecca is from Perth, Australia.
She has many Cushing's symptoms but is not yet diagnosed.
New Bio October 3
Meghan is from Minnesota. She checked off pituitary but she doesn't say if she has a pituitary tumor or not.
Updated Bio October 3
Teresa is from Mount Vernon, Washington. She is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with Sjögren's syndrome and has an appointment to see Dr. Ludlam. Teresa updated her bio in September, 2008 after finding a pituitary cyst.
New Bio October 3
Margie (angeleyes) is from Dundalk, Maryland. She is having a tough time after adrenal surgery
New Bio October 3
Angel (Angel) is from Largo, FL.
She is not yet diagnosed with Cushing's.
New Bio September 28
Candace (cmmarmet) is from Winston-Salem, North Carolina. She has been diagnosed with PCOS and is taking Metformin. She is testing for Cushing's.
New Bio September 28
Karen (KarenL) is from Rice Lake, Wisconsin. She is not yet diagnosed with Cushing's but has PCOS and has an adrenal tumor.
New Bio September 28
Peggy (Peggy) is from Estherville, Iowa. Her daughter has ectopic Cushing's. She has extremely high levels of cortisol and ACTH levels are nearly undetectable. They are considering a BLA.
Updated Bio September 26
Marianne (Marianne) is from Newcastle, New South Wales, Australia. She was diagnosed with Ehlers-Danlos Syndrome (EDS) about 3 years ago. She updated her bio in September 2008 after a BIPSS found a pituitary tumor and is waiting for a surgery date.
New Bio September 26
Laila (geminight) is from Berkeley, California. She was recently diagnosed with subclinical Cushing's. She wants to try to prevent this from becoming full blown Cushing's.
New Bio September 25
Harry (harry1) is from Nicktown, Pennsylvania. He is not yet diagnosed with Cushing's but he has been diagnosed with diabetes and is doing Cushing's testing.
New Bio September 25
Elizabeth has been diagnosed with both an adrenal tumor and a pituitary tumor but she has not yet been diagnosed with Cushing's
New Bio September 25
Cristle (cris) is from St. Louis, Missouri. She has not yet been diagnosed with Cushing's but has many symptoms.
New Bio September 25
Tracy (tracy55) is from Newark, New York. She has a left side adrenal mass and recently discussed this with her surgeon.
New Bio September 25
Vickie (Vickie) is from Davie, Florida. She has taken medication for her pituitary tumor for 4 years and she is considering surgery.
New Bio September 25
Jules (Jules) is from Broussard, Louisiana. She had a duodenal ulcer at age 10 and has been diagnosed with hypothyroidism. An MRI has recently revealed a pituitary tumor.
New Bio September 20
Laura (lauramary) is from Medford, Massachusetts. She is not yet diagnosed with Cushing's but a nurse practitioner suggested it to her. She has an appointment with Massachusetts General Hospital in November.
New Bio September 19
Kate (Katie O) is from Port Jervis, New York. She was diagnosed with Cushing's when she was 18 and had pituitary surgery with Dr. Anne Klibanski in Boston. Kate will be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
Updated Bio September 19
Jennifer (jqatar07) is currently from Ripley, West Virginia. She was previously from Doha, Qatar. Jennifer updated her bio after seeing an endocrinologist in Dubai UAE. Two pituitary tumors were found and the endo referred her to see Dr. Bill Ludlam. She updated her bio September 19, 2008 after her Inferior Petrosal Sinus Sampling at the University of Virginia in Charlottesville. She is scheduled for surgery the first week of October with Dr. John Jane Jr.
New Bio September 19
Stephanie H (Stephanie) is from Riverton, Utah. She is not yet diagnosed with Cushing's but has many symptoms and is wondering if MEN 1 syndrome is involved since she seems to have abnormalities in the thyroid, parathyroid, cortisol, and pancreas.
New Bio September 14
Mary Beth (mbjos) is from Hazleton, Pennsylvania. She had pituitary surgery June 9, 2008. She is on high doses of prednisone.
New Bio September 14
Julie is from Hialeah, Florida. She is not yet been diagnosed with Cushing's but has had symptoms since she was about 15. She has had thyroid cancer and PCOS.
New Bio September 14
Mary is from Edinburgh, Scotland, United Kingdom. She had an adrenal adenectomy in September 2007 after being diagnosed by a Dermatologist.
New Bio September 12
Lu (Weezay) is from Yonkers, New York. She has many symptoms from the steroids she has taken for Ulcerative Colitis.
New Bio September 12
Debbie (DebbieC) is from Hull, Georgia. She is not yet diagnosed with Cushing's but she has high cortisol levels.
New Bio September 12
Elaine is from Goffstown, New Hampshire. She has hypothyroidism and an adrenal adenoma.
New Bio September 11
Gina (gmcook3) is from Atlanta, Georgia. She was diagnosed with cyclic Cushing's Disease in August 2008 and has a 3-4 mm abnormality on her pituitary gland and a possible adrenal problem. Gina will be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
New Bio August 27
Beth (Beth) is from King of Prussia, Pennsylvania. She is not yet diagnosed with Cushing's but she has many symptoms and is testing. She has been diagnosed with Hashimoto's hypothyroid.
New Bio August 26
Kristina is from Milford, Delaware. She has steroid induced Cushing's and she's sure it was caused by the Flovent she has taken for asthma for the past 10 years.
New Bio August 26
Michelle (SleepyTimeTea) is from Michigan. She is not yet diagnosed with Cushing's but has many symptoms. She has had surgery for PCOS.
New Bio August 25
Helz (Helz) is from London, England. She was diagnosed when she was 21 and had pituitary surgery in November 2006.
Updated Bio August 21
Jeannette (Jinetto) is from Michigan. Her symptoms point to Cushing's and she's been diagnosed with PCOS so far. She updated her bio after seeing an endo in August, 2008.
New Bio August 21
Teresa is from Mount Vernon, Washington. She is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with Sjögren's syndrome and has an appointment to see Dr. Ludlam.
New Bio August 21
Lesley (thomgirl) is from Kentucky. She was diagnosed with a non-functioning 3-4 mm pituitary microadenoma in March, 2008. She thinks she might have secondary Addison's disease and/or hypothryoidism.
New Bio August 20
Cindy (CindyL) is from Chanute, Kansas. She has recently received a preliminary diagnosis of Cushing's. She had a hemithyroidectomy in December 2007.
New Bio August 19
Lynn (Lynn94) is from Red Deer, Alberta. She was diagnosed with Cushings Disease in 1993 and had transphenoidal surgery to remove the tumor from my pituitary gland in Dec. 1993 and Jan. 1994 at the NIH.
New Bio August 18
Cathy (cathyb) is from Larenceville, Georgia. She has diabetes and said that she was recently diagnosed but didn't say which type of Cushing's.
New Bio August 4
Maria Laura (MariaLaura) is from Cerro al Volturno, Italy. She is not yet diagnosed with Cushing's but is testing. When her gynecologist told her he thought she had Cushing's, she was reminded of the House episode on Cushing's.
Updated Bio August 4
Kimberly (Kimberly) is from Sydney, Australia. She is not yet officially diagnosed with Cushing's but her test results indicate a pituitary source for her symptoms. Kimberly updated her bio August 1, 2008 after she was diagnosed with PCOS, Syndrome X (metabolic syndrome), mild arthritis, early stage heart disease, and mild Mesial Temporal Sclerosis (brain damage).
New Bio August 2
Marianne (Marianne) is from Newcastle, New South Wales, Australia. She is not yet diagnosed with Cushing's but has many symptoms and is testing. She was diagnosed with Ehlers-Danlos Syndrome (EDS) about 3 years ago.
Updated Bio August 1
Amanda (amanda w) is from Ohio. She was diagnosed with Pituitary Cushing's about 2 years ago. Her doctors aren't treating her symptoms but she is going through a lot of testing. She updated her bio in June, 2008 after having participating in the SOM230 study and updated her bio again after being diagnosed with hyperaldosteronism.
Updated Bio August 1
Kimberly (Kimberly) is from Sydney, Australia. She is not yet officially diagnosed with Cushing's but her test results indicate a pituitary source for her symptoms. Kimberly updated her bio August 1, 2008 after she was diagnosed with PCOS, Syndrome X (metabolic syndrome), mild arthritis, early stage heart disease, and mild Mesial Temporal Sclerosis (brain damage).
Updated Bio July 31
StaceyJenn (StaceyJenn) is from New Jersey. She has steroid-induced (Iatrogenic) Cushing's. She has taken steroids for allergies. She has also been diagnosed with adrenal insufficiency, hypothyroidism, candidiasis, intestinal permeability and 22 latent food allergies. She updated her bio July 31, 2008.
Updated Bio July 31
Amber (TandA) had a 5mmx8mm pituitary tumor removed at University of Virginia Dec. 05. She is now in remission. Bio updated and rewritten July, 2008.
New Bio July 26
Michelle (Michelle) is from Scottsdale, Arizona. She has many symptoms of Cushing's and an enlarged thyroid and calcium deposits on her thyroid.
New Bio July 26
Lynn (Lynn) is from Connecticut. She is only 14 and has had surgery for her pituitary Cushing's. She's still on replacement steroids.
New Bio July 19
Raymond (rkwan77) is from Rego Park, New York. He is recovering from pituitary surgery in 2005 and is still dependent on meds. He has osteopenia.
New Bio July 19
Mandy (Mandy) is from Southend on Sea, England. She has several diagnoses and has seen a vast array of medical personnel. She is diagnosed with PCOS but not yet with Cushing's.
New Bio July 19
Ashleigh (Marinewife05) is from New Bern, North Carolina. She has been diagnosed with PCOS and is testing for Cushing's.
New Bio July 16
Lacudia (lacudia) is from Long Beach. California. She is not yet diagnosed with Cushing's but has HEP C from a transfusion when she was 14. Her grandson is testing for Cushing's and her brother has Addison's.
Updated July 18
Amy (AmyElizabeth) is from Arkansas. She has a 25 year history with a prolactinoma. Her current symptoms look like Cushing's symptoms and her new endo will run tests for Cushing's.
New Bio July 17
Jackie is from Northampton, England. She has had a pituitary tumor removed but she has a recurrence and tumor is in the cavernous sinus.
New Bio July 12
Lisa (allergygirl) is from Atlanta, Georgia. She is not yet diagnosed with Cushing's but has many symptoms. After taking prednisone, she developed a rash. She is now allergic to onion, garlic, wheat, soy, shrimp, salmon, peppers, canned foods (because she's allergic to the nickel), strawberries, apples, and tomatoes.
New Bio July 12
Julie (JulieS) is from Cumming, Georgia. She has Cushing's from steroid use, just like her Mom has. Her mom recognized Julie's symptoms before her doctor did.
New Bio July 12
Kristina is from Milford, Delaware. She is not yet diagnosed with Cushing's but has a lot of symptoms. She has Hashimoto's.
Updated Bio July 11
Jennifer (jqatar07) is currently from Ripley, West Virginia. She was previously from Doha, Qatar. She is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with hypothyroidism and she takes Toprol XL for heart palpitations. She saw a Cushing's Expert in Dubai UAE in November 2007. Jennifer updated her bio after seeing an endocrinologist in Dubai UAE. Two pituitary tumors were found and the endo referred her to see Dr. Bill Ludlam. She updated her bio July 11, 2008 after her diagnosis. She is heading to the University of Virginia July 23rd, 2008.
New Bio July 11
Andrea (Andrea) is from Bellevue, Ohio. She is not yet diagnosed with Cushing's but has had symptoms for a year and a half. She has been seeing a neurologist and has been doing some testing.
New Bio July 11
Jeff (jeff m) is from Abernant, Alabama. He was diagnosed with a pituitary tumor in Oct of 2005. His endo recently diagnosed him with diabetes, hypogonadism, and now suspects that he may have Cushing's. Jeff may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
New Bio July 2
Rene' (mrskittycat) is from Gainesville, Georgia. She had several years of unexplainable problems, which included a heart attack, before she was able to get treatment. She had pituitary surgery at OHSU four years ago.
New Bio July 2
Elizabeth (Elizabeth) is from Jacksonville, Florida. She was diagnosed with a pituitary tumor two years ago and recently diagnosed with Cushing's disease. She hasn't seen her doctor since her diagnosis. Elizabeth may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
New Bio June 29
Suzypar (Mike) is from Langhorne, Pennsylvania. Her husband Mike developed osteoporosis, diabetes, high blood pressure and other problems seemingly over night. He had transphenoidal pituitary surgery June 23, 2008.
New Bio June 29
Kateelston (kateelston) is from Warner Robins, Georgia. She has been diagnosed with insulin resistant, PCOS, underactive thyroid, and diabetes. She has taken synthroid, Glucophage and Yaz but she isn't feeling any better.
New Bio June 29
Joselle (Jo) is from Fredonia, New York. Although she didn't present as a typical Cushie, a doctor gave her a cortisol suppression test and she was diagnosed with a pituitary tumor. Joselle may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
New Bio June 29
Heather (HeatherTN) is from Union City, Tennessee. She is testing for Cushing's and has been treated with PCOS for 7 years.
New Bio June 29
Stacey (svogrinec) is from Sammamish, Washington. She is not yet diagnosed with Cushing's but has a long list of symptoms.
New Bio June 29
Sandy (sandysims) is from Cape Coral, Florida. She is not yet diagnosed but she had a steroid overdose a few years ago.
New Bio June 29
Jeanann (jaw) is from Milwaukee, Wisconsin. She was recently referred to an endocrinologist for suspected Cushing's and she is testing now.
Updated Bio June 29
Diane (worriedmom) is from Highlands Ranch, Colorado. Her daughter Kelsey has had two pituitary surgeries so far and both were unsuccessful. They are contemplating a BLA as the next step. Kelsey has tried meds (ketoconazole and metyropone) with limited results. Diane updated the bio three months after Kelsey's third pituitary surgery. Diane's daughter has also posted her own bio.
New Bio June 29
Heather (HeatherTN) is from Union City, Tennessee. She is testing for Cushing's and has been treated with PCOS for 7 years.
New Bio June 24
Juletta is from North Carolina. Her 20-year-old son might have Cushing's. He is testing.
Updated Bio June 24
Amanda (amanda w) is from Ohio. She was diagnosed with Pituitary Cushing's about 2 years ago. Her doctors aren't treating her symptoms but she is going through a lot of testing. She updated her bio in June, 2008 after having participating in the SOM230 study.
New Bio June 23
EJ (Rogers) is from Channelview, Texas. She has Addison's and lymphoma. She has also had an hysterectomy and a pacemaker installed.
New Bio June 23
Laura (Lucies12) is from Cape Coral, Florida. She has been diagnosed with PCOS so far. A pituitary scan was suggestive of empty sella syndrome and a smaller than normal pituitary gland. She has many Cushing's symptoms.
New Bio June 23
Connie is from Mooresville, Indiana. She was diagnosed with Cushing's in 2001. She had pituitary surgery and radiation. Since she isn't cured, she's thinking of having her pituitary removed. Although not mentioned in her bios, she checked of prolactinoma on the form as well as pituitary.
New Bio June 23
Kerri (kerrim) is from Raleigh, North Carolina. She is not yet diagnosed with Cushing's but is testing. She has gone 3 years with no diagnosis.
New Bio June 23
Dawn is from Massillon, Ohio. Her adrenal tumor was found about 6 years ago and she had it removed December 2006. Her friend also has Cushing's and will have a second surgery soon.
New Bio June 19
Vickie (Lynny) is from Charlotte, North Carolina. She was diagnosed with sub-clinical Cushing's in 2005. She has had a BLA.
New Bio June 19
Danica (momof12yearold) is from Mesquite, Texas. Her 12-year old daughter is being tested for Cushing's, PCOS, Slowed Growth and Diabetes.
New Bio June 17
Chris (slpatient) is from Houston, Texas. He had adrenal surgery about three months ago.
New Bio June 17
Martha (mgsmom) is from Westfield, New Jersey. Her 13 year old daughter was hospitalized at birth for low blood sugar and diagnosed at age 2 for Ketotic Hypoglycemia. She thinks the doctors are missing something.
Updated Bio June 12
Lori (cmondwn) is from New York, New York. She has had three pituitary surgeries. The last was at NIH with Dr. Ed Oldfield. Since her third surgery she lost 80 lbs, won a car on The Price is Right, was featured in Shape Magazine for her weight loss success story (6/05) and got married. She now fears a recurrence. Lori updated her bio June 12, 2008 after giving birth. Lori may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
Updated Bio June 12
Chrissy (Chrissy) is from Norristown, Pennsylvania. She has been diagnosed with Insulin Resistance and PCOS. The Glucophage isn't helping so she thinks she needs a second opinion. She submitted a bio in June 2008.
New Bio June 12
Rhoda (Rhoda) is from Dublin, Ireland. She was diagnosed with Cushing's when she was 13. She has had the tumor on her pituitary removed, a BLA and now has Nelson's. She would like to get pregnant. Rhoda may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
New Bio June 9
B C Lewis is from Asheville, North Carolina. After her son died suddenly, she developed Cushing's symptoms. She has had congestive heart failure. After 3 months of testing, she had pituitary surgery. The tumor was wrapped around her carotid artery. She is having a tough time post-op.
New Bio June 9
Deborah (MomofFour) is from Spring Hill, Florida. Her 13-year-old daughter has been struggling with extreme weight gain for about two years now. Deborah and her husband saw a show on the History Channel that mentioned Cushing's Disease and she is going to have her daughter tested.
New Bio June 9
Natasha (Natasha) is from Muskegon, Michigan. She is not yet diagnosed with Cushing's but testing is indicating that she may have it. Natasha may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
Updated Bio May 29
Mac (MacD) is from Manassas, Virginia. She is not yet diagnosed with Cushing's but has many symptoms and has been diagnosed with diabetes, hypothyroidism, MS, seizures, migraines, chronic fatigue, malabsorption syndrome and recently had her gallbladder out because it was riddled with stones.
New Bio May 29
Elizabeth (Lizzie) is from Northridge, California. She is waiting for an ok from her insurance to go to UCLA for final diagnosis and surgery She may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
New Bio May 29
Liz is from Detroit, Michigan. She is not yet diagnosed with Cushing's but she has an adrenal tumor the size of a quarter.
Updated Bio May 29
Mac (MacD) is from Manassas, Virginia. She is not yet diagnosed with Cushing's but has many symptoms and has been diagnosed with diabetes, hypothyroidism, MS, seizures, migraines, chronic fatigue, malabsorption syndrome and recently had her gallbladder out because it was riddled with stones.
New Bio May 28
Katie (shotbyastar) is from Beloit, Wisconsin. She has been diagnosed with PCOS but wondering about Cushing's. Her endo was going to test but she lost her insurance.
Updated Bio May 27
Jennifer (jqatar07) is from Doha, Qatar. Jennifer updated her bio after seeing an endocrinologist in Dubai UAE. Two pituitary tumors were found and the endo referred her to see Dr. Bill Ludlam. She updated her bio May 28, 2008. Jennifer may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
New Bio May 28
Beth (bethmc) is from Houston, Texas. She is not yet diagnosed with Cushing's but has many symptoms. Her grandmother had Cushing's.
New Bio May 27
Tonya (LadyVenom) is from Merrillville, Indiana, She has had a pituitary tumor removed and has had GannaKnife radiation. She has also had an aneurysm. She thinks she is having another recurrence. Tonya may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. More information as it becomes available. Archives will be available after the chat.
Updated Bio May 22
Alison (aearly) is from Portland, Oregon. She is not yet diagnosed with Cushing's but has many symptoms. Her testing has come back normal so far so her endo wants to try metformin. Alison updated her bio after seeing an endo at OHSU. He said she either has a nonsecreting pituitary tumor, Cushing's, or cyclical Cushing's.
New Bio May 22
Julia (julesw) is from East Sussex, England. She is not yet diagnosed with Cushing's but has many symptoms and has insisted on testing.
New Bio May 22
Jen (Sugarbakerqueen) is from Tenino, Washington. She is not yet diagnosed with Cushing's but she has had a lot of muscle spasms and she has had monthly injections of Kenalog.
New Bio May 22
Diane (2tired4words) is from Saline, Michigan. She is not yet diagnosed with Cushing's but she has Primary and Secondary Hyperparathyroidism and has had surgery for breast cancer.
In the Media
Erella Gannon Toronto Star, May 20, 2008. Erella is an illustrator/radio broadcaster/artist/poet/writer/lecturer/art show curator and is also a brain tumour survivor, scheduled for her fourth round of surgery next week.
New Bio May 20
Teresa (teresa) is from Saucier, Mississippi. Her sister has a pituitary tumor recurrence.
New Bio May 20
Cindy (SassyBrat) is from Cambridge, Canada. She is not yet diagnosed with Cushing's but has many symptoms for most of her life.
New Bio May 18
Aimee (Elfathina) is from Hopewell Junction, New York. She is not yet diagnosed with Cushing's but she has found an endo and is testing. She was diagnosed with Hashimoto's about 14 years ago.
Updated Bio May 15
Nicole (Cocabana) is from Minnesota. Nicole updated her bio in May 2008 a week before her surgery. She suspects steroid-induced Cushing's due to meds she has taken throughout her short life. Nicole may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series. Nicole has two areas on MySpace.com.
New Bio May 14
Dawn is from Hernando, Florida. She is not yet been diagnosed with Cushing's but has many symptoms of Cushings and adrenal fatigue. She has had diagnoses of RA, Sjogren's, pre-diabetes, depression, psychological issues, overeating and lack of exercise.
New Bio May 6
Laura is from Virginia Beach, Virginia. She is a breast cancer survivor approaching her 5 year anniversary of being cancer free. She has many Cushing's symptoms and an adrenal tumor. She had an MRI of the pituitary gland which showed no tumor, but her ATCH levels indicated quiet differently.
New Bio May 4
Sweetybandit (Sweetybandit) is from Leeds, United Kingdom. She is not yet diagnosed with Cushing's but she is testing for PCOS and Cushing's.
New Bio May 3
Cindy (ckelly37) is from Bensalem, Pennsylvania. She is not yet diagnosed with Cushing's but she is testing. She already has hypothyroidism.
New Bio May 2
Jackie (samsmom) is from Snohomish, Washington. She first started dealing with Cushing's in her family when her youngest child was born in 1999. Jackie and Sam were featured on a Discovery Health episode called Mystery Diagnosis. Later, the gene responsible for Sam's illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie's oldest daughter, has recently had her adrenals removed. Jackie and Jordan were be the subjects of a Live Interview in the Cushing's Help Voice Chat / Podcast series May 15, 7:30 The topic was Cushing's in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Archives are available.
New Bio April 30
Kathy B (kathybair) is from Kauneonga Lake, New York. She is not yet diagnosed with Cushing's but has many symptoms. Doctors have told her she has possible fibromyalgia, chronic fatigue, depression, stress, and has been called a hypochondriac like many of us.
New Bio April 30
Kathleen (irishlass) is from Wisconsin. She had a transphenoidal pituitary resection December 5, 2007. A recent MRI revealed a good portion of the tumor remains.
New Bio April 28
Bridgette is from Tucson, Arizona. She is not yet diagnosed with Cushing's but thinks that she may have it. She is looking for doctors to do testing in her area.
New Bio April 27
Tiffany (engagedsenior) is from Ellwood City, Pennsylvania. She is not yet diagnosed with Cushing's but she has a prolactinoma and takes Bromocriptine. She also has five different blood disorders.
New Bio April 27
Lily (lilyalex) is from Montreal, Canada, Quebec. She has had Cushing's symptoms since 2002 but has not been diagnosed with Cushing's.
New Bio April 27
Kathi (Kathim) is from Palm Desert, California. She was diagnosed with Iatrogenic Cushing's in 1997.
New Bio April 27
Jennifer S (Jenni) is from Tallahassee, Florida. She is tentatively diagnosed with Cushing's. She will be going to Houston soon for petrosal sinus sampling and surgery, if indicated.
In Memory April 21
Natalie Fay We will miss you always...
New Bio April 21
Leslie is from Newark, Ohio. She had a pituitary tumor removed at the University Of Michigan. She has had a recurrence and has had Gamma Knife Radiation April 3, 2008. She may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series.
New Bio April 21
Pat H (PatHidy) is from Plattsburg, Missouri. She has had many years of misdiagnoses and mistreatments and she feels she has had her "problem" for most of her 67 years. She has finally been diagnosed with idiopathic adrenal hyperplasia.
Updated Bio April 21
Nancy H is from Cleveland, OH. She had a transphenoidal adenomectomy in June 2003. She updated her bio five years post op when she learned that her little pug was with a pituitary tumor and Cushing's.
New Bio April 20
Bonnie (Bonnie) is from Boca Raton, Florida. She had Cushing's in the '90s and had her left adrenal gland out. Now she's having symptoms again 13 years later and she has a mass on her right adrenal gland.
New Bio April 20
Joey (Joeykins) is from Northampton, UK. She is not yet diagnosed with Cushing's but has many symptoms and she has been diagnosed with Polycystic Ovary Syndrome (PCOS) and Hypertension so far.
New Bio April 20
Kathy (Kathy51) is from Lennox Head, Australia. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio April 20
Theresa is from Huntington, West Virginia. Her 7 year old son has been diagnosed with Cushing Syndrome. he will have surgery on June 1, 2008 to remove his pituitary tumor.
New Bio April 20
Sharon is from Massachusetts. Her sister saw Sharmyn's Discovery Channel show on Cushing's. Sharon had an adrenal tumor removed but is still not feeling well.
New Bio April 18
Amy (missingdiane) is from Carlsbad, California. Her very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue.
New Bio April 18
Lee (Lee) is from Canberra, Australia. Her daughter had pituitary surgery in mid 2007. She is losing weight but still has other symptoms.
New Bio April 18
Melynette (Melynette) is from San Juan, Puerto Rico, US Territory. She has a pituitary adenoma. She found her current endo while waiting for her baby's eye doctor appointment. The endo did a CT scan just to be sure she didn't have an adrenal tumor as well.
New Bio April 18
Amy (missingdiane) is from Carlsbad, California. Her very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue.
New Bio April 18
Lee (Lee) is from Canberra, Australia. Her daughter had pituitary surgery in mid 2007. She is losing weight but still has other
New Bio April 18
Nancy (chance) is from Olympia, Washington. She has Iatrogenic (steroid-induced) Cushing's due to being on steroids for 30 years. She also has Adrenal Insufficiency and a doctor told her to say she has Addison's.
New Bio April 18
Lori (larrysdaughter) is from Coeburn, Virginia. Her father has many diagnoses including Hypertensive Urgency, electrolyte imbalance, TIAs and a small CVA, Diastolic Dysfunction, Bradycardia, with trace Tricuspid regurgitation, mild Mitral regurgitation, a small patent foramen ovale in the Interatrial septum, Glaucoma, a hydrocoele, and periodontal disease. He has an 18 x 13 mm left adrenal lesion and high cortisol but is not yet diagnosed with Cushing's.
New Bio April 17
Lindsay (Lindsay) is from Ipswich, United Kingdom. She is not yet diagnosed with Cushing's but has many symptoms. Her diabetic clinic sent her for a dexamethasone test.
New Bio April 17
Maria (Izzabel78) is from El Centro, California She is not yet diagnosed with Cushing's but she has suffered with Rheumatoid Arthritis since she was a child. Following a terrible car accident, she has had a lot of pain and has been on a lot of meds. A new doctor in Mexico is concerned about all the prednisone she has taken for her RA.
New Bio April 17
Elizabeth (Lizabug) is from West Virginia. She has cyclic pituitary Cushing's and sees Dr. Ted Friedman. She is still testing and hasn't yet had surgery.
New Bio April 17
Tania (taniag) is from Gold Coast, Australia. She had an adrenal gland and benign tumor removed in late January 2008.
New Bio April 17
Kenny (ken2501) is from St. Louis, Missouri. He was diagnosed with Cushing's at the end of his freshman year of high school. He has had two pituitary surgeries and Gamma Knife radiation.
New Bio April 16
Mattie is from Cambridge, Ohio. Her husband has Cushing's. He was diagnosed June 2007, after collapsing and suffering a tramatic brain injury. He now goes to the Cleveland Clinic but they are unable to find his tumor after repeated petrossal sinus samplings.
New Bio April 16
Jenn (Jenn) is from London, Canada. She has had two pituitary surgeries, one with a CSF leak, and is considering a BLA.
New Bio April 16
Eric (Eric O) is from Artesia, California. He is not yet diagnosed with Cushing's but has had CSR for almost 13 years.
New Bio April 3
Mike (mtlmike) is from Montreal, Canada. He is not yet diagnosed with Cushing's but has many symptoms. He is scared and anxious and looking for a solution.
New Bio April 3
Jennifer (jennifer0619) is from Miamisburg, Ohio. She is not yet diagnosed with Cushing's but testing shows elevated cortisol levels. She has many questions.
New Bio April 3
Bobby (bobbyb) is from New Orleans, Louisiana. He is not yet diagnosed with Cushing's but has many symptoms. When he was 15 he was diagnosed with Chron's Disease.
New Bio March 29
Anne (annabel) is from Sydney, Australia. She was diagnosed with Cushing's 15 years ago and has had every test imaginable but no tumor has been found yet. She is on Ketoconazole and Cytraden.
New Bio March 28
Anita (Anita) is from Rocky Mount, Virginia. She has had symptoms of Cushing's for over 20 years but has not yet been diagnosed.
Lesa (Lesa) is from Elkland, Missouri. She had a golfball sized tumor on her right adrenal gland. The gland was removed in July, 2007.
New Bio March 27
Alison (aearly) is from Portland, Oregon. She is not yet diagnosed with Cushing's but has many symptoms. Her testing has come back normal so far so her endo wants to try metformin. She has submitted a request to speak with the OHSU pituitary clinic.
New Bio March 27
Mary F is from Brawley, California. She had steroid induced Cushing's brought on by arthritis meds she bought in Mexico. After six weeks in the hospital for a blackened leg, her leg was saved and her diabetes gone. After six months, her Cushing's was gone.
New Bio March 27
Sue (sue3708) is from Danbury, Connecticut. She is not yet diagnosed with Cushing's but an MRI showed a prominence of the pituitary with a convex superior border but no tumor. She is testing and waiting for answers.
New Bio March 25
Rachelle (shel) is from Calgary, Canada. She had pituitary surgery in February 2003. Following that, she learned that the tumor had hemorrhaged so she had radiation in 2004 followed by a BLA in 2006. She now has Nelson's Syndrome.
New Bio March 24
Pamela (P Counts) is from Havre de Grace, Maryland. She had a pituitary adenoma removed on March 6, 2008.
New Bio March 22
Lisa is from Oklahoma City, Oklahoma. She had her right adrenal gland removed May 23, 2007. She developed colitis post-op. Lisa updated her bio March, 2008 after a checkup with her endo.
New Bio March 22
Kelli is from Auburn, Washington. She originally read an article in a Weight Watchers Magazine and that started the diagnostic process. She met Karen (rooon55) at Dr Ludlam's office.
New Bio March 20
StaceyJenn (StaceyJenn) is from New Jersey. She has steroid-induced (Iatrogenic) Cushing's. She has taken steroids for allergies. She has also been diagnosed with adrenal insufficiency, hypothyroidism, candidiasis, intestinal permeability and 22 latent food allergies.
New Bio March 18
Katie (kvb927) is from Philadelphia, Pennsylvania. She is not diagnosed with Cushing's yet but has a number of diagnoses - panic disorder, major depression, bipolar disorder, hypothalamic amenorrhea, female hypogonadism, and pituitary adenoma. Her abnormal hormones are low FSH, LH, estradiol, insulin, and free T4. Imaging found a 2 mm. adenoma on her right pituitary and an 11 mm. pineal cyst.
New Bio March 18
Linda (lsfranz2001) is from Arlington, Texas. She has steroid-induced Cushing's from epidural injections.
New Bio March 18
Jamie (synthia) is from Buckfield, Maine. She has many Cushing's symptoms and has been diagnosed with PCOS because of high androgen levels.
New Bio March 16
Barbara is from California. She is going to have her left adrenal gland removed soon but is afraid of the surgery.
New Bio March 16
mm (Feb2008) is from mid-state, North Carolina. She had a 5mm tumor removed at Univ of Va in February 2008. The tumor was resting against the carotid artery.
New Bio March 16
Dawn (chazah) is from Kempton Park, South Africa. She has not been diagnosed with Cushing's but has a great many symptoms. She has been diagnosed with diabetes, Spondylitis, Hypothyroidism, Hashimoto's Thyroiditis and possible lupus.
New Bio March 16
Gail (Gail) is from Swansea, South Wales, Great Britain. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio March 16
Colette (micheline) is from Winnipeg, Canada. She is not diagnosed with Cushing's but has had symptoms of MSL or Madelung's Disease for over 25 years.
New Bio March 15
Lisa is from Oklahoma City, Oklahoma. She had her right adrenal gland removed May 23, 2007. She developed colitis post-op.
New Bio March 13
Chris (Chris) is from Clairton, Pennsylvania. She is not yet diagnosed but she is testing for Cushing's.
New Bio March 10
Lisa is from Fredericksburg, Virginia. She has a right adrenal tumor and was about to have surgery when her endo canceled her surgery. Her surgery is now scheduled for April 4, 2008.
New Bio March 10
Lindsay (LynziMarie) is from Salt Lake City, Utah. She is not yet diagnosed with Cushing's but her test results were "high, but within normal range".
New Bio March 10
Michelle (micgonza) is from West Covina, California. She was diagnosed with Cushing's in November of 2007 with a tumor on her right adrenal gland. She had surgery in January 2008.
New Bio March 10
Jevlin (Jevlin) is from Richlands, North Carolina. She has been dealing with Cushing's symptoms for about 9 years. Her pituitary tumor has grown from 4mm to 8.2mmX5mm so she hopes that someone will finally listen.
New Bio March 6
Diana is from Escondido, California. She was diagnosed in September 2006 with a pituitary adenoma. Her surgery was March 21, 2007.
New Bio March 6
Debra is from Weatherford, Texas. She's waiting for test results. Both her PCP and endo think she has Cushing's.
New Bio March 6
Kelly (KellyDeen) is from Burleson, Texas. She was diagnosed with an adrenal adenoma in November, 2007.
Updated Bio February 29
Dawn (Dawn) is from Bethlehem, Pennsylvania. While she is not diagnosed with Cushing's yet, she has been diagnosed with high blood pressure, depression, anxiety, panic attacks, migraines, diabetes mellitus, chronic fatigue syndrome, sjogrens symdrome, fibromyalgia, nueropathy, hiatal hernia, fatty liver and had several surgeries. Dawn updated her bio February 29, 2008.
Updated Bio February 29
Monica (monicaroni) is currently living in Texas but grew up in Milwaukee. She has Cyclical Cushing's and is taking Ketoconazole. Monica updated her bio September 3, 2007 after pituitary surgery and a BLA and again February 29, 2008 1 year post-op.
New Bio February 26
Brandy (FLBrandy22) is from North Port, Florida. She was diagnosed with pituitary Cushing's and had two transphenoidal surgeries. The first surgery showed that she had hyperplasia, so she had her whole pituitary removed.
New Bio February 25
Cathy W (cathyw) is from Illinois. She is not yet diagnosed with Cushing's but has been sick for 15 years.
New Bio February 25
Kelsey (Kelsey) is from Highlands Ranch, Colorado. She has had two pituitary surgeries so far and both were unsuccessful. They are contemplating a BLA as the next step. Kelsey has tried meds (ketoconazole and metyropone) with limited results. Kelsey's mom has also posted her own bio.
New Bio February 23
Kim (eureka) is from Eureka, Missouri. She has full blown Cushing's symptoms from steroid use. She has asthma and dealt with pneumonia. She now has APBA (Allergic bronchopulmonary aspergillosis) which is a lung condition treated by more steroids.
New Bio February 23
ReneeMarie is from Florida. She had pituitary Cushing's. She is having complications after her surgery.
New Bio February 23
Diane (worriedmom) is from Highlands Ranch, Colorado. Her daughter Kelsey has had two pituitary surgeries so far and both were unsuccessful. They are contemplating a BLA as the next step. Kelsey has tried meds (ketoconazole and metyropone) with limited results.
New Bio February 22
Donna (DonnaMR) is from Philadelphia, Pennsylvania. Her daughter is not yet diagnosed with Cushing's but has PCOS and insulin resistance. Donna's sister had a pituitary tumor.
Updated Bio February 20
Jacqueline (Jacqueline) is from Toronto, Canada. Her internist thought she had Cushing's right away but changed his mind with a negative dex. test. An endo put her on Meridia for appetite and didn't listen to her other symptoms. Jacqueline updated her bio in February 2008 to let us know that she is going to see Dr. Ted Friedman March 11, 2008.
New Bio February 20
Carolina (Carolina) is from Puerto Varas, Chile. She was treated for bipolar disorder and in a mental institution before her pituitary Cushing's was discovered. She had surgery at UVa February, 2007.
New Bio February 20
Rebecca (Re[Becca]) is from Petaluma, California. She is not yet diagnosed with Cushing's but has many symptoms. She feels pressure in her nasal cavity and is afraid that might be a tumor.
New Bio February 20
Dawn (Dawn) is from Bethlehem, Pennsylvania. While she is not diagnosed with Cushing's yet, she has been diagnosed with high blood pressure, depression, anxiety, panic attacks, migraines, diabetes mellitus, chronic fatigue syndrome, sjogrens symdrome, fibromyalgia, nueropathy, hiatal hernia, fatty liver and had several surgeries.
New Bio February 20
Heather (Heather) is from Wagga Wagga, Australia. She is not yet diagnosed with Cushing's but has many symptoms. She recently took prednisone and things got worse. She is having a CT scan and 24-hour urine.
New Bio February 20
Amy (mindylindy) is from Harrisburg, Pennsylvania. She is not yet diagnosed with Cushing's. Routine bloodwork for her PCOS came back with really high testosterone numbers. She is being scanned for an ovarian or adrenal tumor.
New Bio February 20
MicheleP (MicheleP) is from Wolcott, Indiana. She is not yet diagnosed with Cushing's but she has been sick for about a year. MicheleP may be the subject of a future Live Interview in the Cushings Help Voice Chat / Podcast series. More information as it becomes available.
New Bio February 16
Bev is from Manchester, United Kingdom. She was diagnosed with adrenal Cushing's in May 2007 and had surgery October 3, 2007. She feels like she is just existing, not living.
New Bio February 16
Lauren (Lauren) is from Galloway, Ohio. She is not yet diagnosed with Cushing's but has an endo appointment next week. She was diagnosed with bipolar disorder when she was 17.
New Bio February 15
Mary (KatieSamsMom) is from Columbus, Ohio. She is not yet diagnosed with Cushing's but she has PCOS and adrenal nodule.
Updated Bio February 15
Renai (Nai) is from Gunnedah, Australia. She has had Cushing's symptoms for many years and she has high prolactin levels. She has been told she has fibromyalgia.
New Bio February 11
Carol (carryule) is from Canton, Ohio. She is not yet diagnosed with Cushing's but her doctor has found an adrenal mass. She has had a 24-hour urine test so far.
New Bio February 11
Bobbie (Bobbie) is from Elk Grove, California. She is not yet diagnosed with Cushing's but a doctor at a PCOS seminar at UC Davis suggested that she check out Cushing's disease. She has many Cushing's symptoms.
New Bio February 9
Becca (Becca) is from Petaluma, California. She is not yet diagnosed with Cushing's but has many symptoms.
New Bio February 8
Sydni (Sydni) is from the United States. She was just diagnosed with Cushing's Syndrome. She has Reiter's Disease (which is similar to Rheumatoid Arthritis) and has taken Prednisone for many years.
New Bio February 7
Aimee (Daggersmom) is the daughter of a Cushing's patient, Pat. Pat is due to have a BLA in February 2008. She has also had two back fusions, two knee replacements, pituitary surgery, gamma knife and chemical treatment.
New Bio February 7
Crystal is from Spruce Pine, North Carolina. She was originally diagnosed with pseudo Cushing's. After broken bones she got to NIH (the National Institutes of Health) but they couldn't find the tumor, although they believe it's behind a hernia. Surgery is too risky and Crystal is contemplating a BLA.
New Bio February 7
JoAnn (Flojo3) is from Thunder Bay, Canada. During a kidney ultrasound it was found that JoAnn has an abnormality in her adrenal glands.
New Bio February 7
Kathryn (Kathryn) is from West Yorkshire, England. She had a pituitary adenoma removed and is on replacement of cortisol, thyroxine and soon to be on growth hormone. She will be having a hip replacement soon.
New Bio February 5
Melissa (Melissa) is from Franklin, Kentucky. She had a pituitary tumor removed but had symptoms return after 10 years.
New Bio February 5
Lynn (Lynn1201) is from Ohio. She is newly diagnosed with a second adrenal insufficiency and hypothyroidism.
New Bio February 5
RiAna (bizzysgirl) is from East Alton, Illinois. She thinks she has Cushing's or Pseudo Cushing's. She has diabetes and was told she is bipolar.
New Bio February 4
Gys is from Bloemfontein, South Africa. He was diagnosed with acromegaly in 2007 and had a tumor removed. His hGH and Somatomodine C are still extremely high so he has been hospitalized again for testing and to see if another surgery is needed.
New Bio February 1:
MamaBibbs is from Fort Wayne, Indiana. She had MRIs of her brain, pituitary, adrenal, kidney, pancreas and CT of lungs before a petrossal sinus sampling showed a probably pituitary tumors. She has not yet had surgery.
New Bio February 1:
Sarah (sisnlaw) is from Austria. Her sister in law was diagnosed with Cushing's January 2008. Although she was happy to get the diagnosis, she's scared today and extremely depressed. She returns to the hospital February 11, 2008.
Updated Bio January 30:
FerolV (FerolV) is from Charlotte, NC. She had pituitary surgery September 30, 2005. She saw the special on DISCOVERY Health. She has updated her bio at about 1 1/2 years post-op. She updated her bio again January 30, 2008, 2 1.5 years post op.
New Bio January 30:
Claudia (clauchelo) is originally from Colombia, now living in Germany. She had pituitary tumor surgery in April 2007 and her doctor has told her it's possible she may need another surgery.
New Bio January 30:
Suzanne (Suzanne) is from Lexington, South Carolina. She has an incredible medical history that includes over 50 surgeries since she was 12. She has been diagnosed with Slipped Capital Femoral Epythesis, JRA (Juvenile Rheumatoid Arthritis, Lupus, fibromyalgia and has had two amputations. Through all this she has taken massive doses of steroids. She saw Sharm's episode of Mystery Diagnosis and believes she has Cushing's. Suzanne is testing for Cushing's now.
New Bio January 30:
Bubbles (Bubbles) is from Wichita, Kansas. She has Metabolic syndrome (also known as syndrome x or insulin resistance). Scans have shown both pituitary and adrenal tumors. She is trying to decide if her symptoms are bothersome enough to warrant surgery and following through with a petrosal sinus sampling.
New Bio January 28:
Tracey (Tracey) is from Bethlehem, Pennsylvania. She was diagnosed with pituitary Cushing's in October 2007 and will have surgery at Johns Hopkins in February 2008.
New Bio January 28:
Gail is from Warrington, UK. She is not diagnosed with Cushing's but is a diabetic and has trouble keeping her sugar levels down even with insulin.
New Bio January 28:
Stephanie is from Prince George, Canada. She was diagnosed with adrenal Cushing's in July of 2007 and had her left adrenal gland removed in November, 2007. She is still on prednisone and has pain on her side.
New Bio January 28:
Mary (marym) is from Grand Blanc, Michigan. She has not had a positive diagnosis for Cushing's as of yet. She has been diagnosed with PCOS and subclinical hypothyroid.
New Bio January 28:
Alicia (medcats10) is from Tucson, Arizona. She is not yet diagnosed with Cushing's but has many symptoms. Alicia will be the subject of a Live Interview in the Cushings Help Voice Chat / Podcast series February 7, 2008, 7:30 PM. Archives will be available after the chat.
New Bio January 28:
Renai (rossi) is from Australia. She is not yet diagnosed with Cushing's but has many symptoms.
Updated Bio January 28:
Hallie (hrgendron) is from Boynton Beach, Florida. She is not diagnosed with Cushing's but has Grave's Disease and has had her thyroid destroyed. Hallie has many Cushing's symptoms and has updated her bio with more information.
New Bio January 24:
Ellyse (ellyse) is from Cumming, Georgia. She had her left adrenal gland removed in January, 2008 and wants to lose weight for a wedding in May.
New Bio January 24:
Bexx (Bexx) is from New York, New York. She has struggled with her health since she was a small child around the age of 7 or 8.
New Bio January 24:
Dick (Dick) is from Harrison City, Pennsylvania. He has had extensive MRI's CAT scans and PSST to locate a tumor in his body. As a result of these tests he has had two surgeries in the past two and a half years. One to his thymus that was successful and one to his pituitary. He still produces a large amount of cortisol.
New Bio January 24:
Christine is from East Rutherford, New Jersey. She had transphenoidal removal of a pituitary macroadenoma on July 11, 2006. She had remaining tumor growing around her carotid artery that was inoperable. She also had Gamma Knife surgery on December 12, 2007.
New Bio January 24:
Karen (Karen) is from Austin, Texas. She had her right adrenal gland removed January 7, 2008. She has some questions about her cortisol replacement. Karen has also indicated that she is interested in being interviewed during a CushingsHelp Voice Chat. More information on that will be provided after the date and time are set.
New Bio January 22:
Dodie (Dodie) is from Maria Stein, Ohio. She sees Dr Friedman. An MRI showed a posterior pituitary tumor.
New Bio January 18:
Karen Nolan (rooon55) Karen's disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing's, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries.
New Bio January 18:
Shawna (bbwinbama) is from Cullman, Alabama. She was diagnosed with Cushing's Disease January 14, 2008 after having symptoms for many years.
New Bio January 18:
Jodi is from Kenton, Ohio. She is not yet diagnosed with Cushing's but has many symptoms. Her dex suppression test came back normal but her doctor doesn't believe the results.
New Bio January 16:
Jenny (Jenny1107) is from Champlin, Minnesota. She is not yet diagnosed with Cushing's but has an appointment with an endo January 24, 2008.
New Bio January 16:
Trena (Trena001) is from Pilot Mountain, North Carolina. She thinks that her daughter may have Cushing's. Trena's son was diagnosed with Hodgkin's Lymphoma and their doctor thinks it would probably be near impossible for two children in the same family to have unrelated rare diseases.
New Bio January 16:
Barbara (Barbara522) is from Andover, Kansas. She was diagnosed with Cushing's last year and will need to have a Petrosal Sinus Sampling soon.
New Bio January 15:
Michelle (emilysmommie) is from Corona, California. She is not diagnosed with Cushing's but has many symptoms. She has had a 24-hour UFC which came back in the normal range. Her endo suggested Meridia.
New Bio January 14:
Mark (Mark) is from Louisville, Kentucky. He has Addison's Disease and would like to meet others who have this disease..
New Bio January 13:
Babette is from Las Vegas, Nevada. She had laproscopic surgery for PCOS and took Clomid. She was successful in finally having a miracle baby.
New Bio January 11:
Hayley (silverstarprincess) is from South London, England. She doesn't have a full diagnosis yet but hopes to find out in a few weeks.
New Bio January 11:
Leigh (crazyduck) is from French Settlement, Louisiana. She is not yet diagnosed with Cushing's but has many symptoms. She has just had several tests and an MRI or her pituitary gland. All that the bloodwork shows so far is that her thyroid is out of whack.
New Bio January 11:
Kristin (KWDesigns) is from Portland, Oregon. She has ACTH Independent Cushing's Syndrome and will have adrenal surgery January 29, 2008.
New Bio January 11:
Rach is from Provo, Utah. She is now 21 and has been diagnosed with Cushing's 3 different time and she has had 3 transphenoidals and stereotactic radiation.
New Bio January 10:
Michelle (MCheri) is from Penrose, Colorado. She has a pituitary gland tumor and will have surgery in February 2008. It isn't prolactin producing but she isn't sure if it's Cushing's yet or not.
In Memory: Lori
Lori Holt passed away on Sunday, January 6, 2008. She was hopeful that the surgery would help her, and loved and appreciated her many friends and others who supported her. Thank you to everyone here who knew her and offered encouragement and hope.
New Bio January 9:
JoAnn (flojo3) is from Thunder Bay, Canada. She is not yet diagnosed with Cushing's but a recent ultrasound of her kidneys showed an abnormality in her adrenal glands.
New Bio January 8:
Nate's wife (nderolph) is from Newark, Ohio. His wife was diagnosed with Cushing's about 2.5 years ago. She has had two pituitary surgeries and has just had a second recurrence.
New Bio January 7:
Judy H (Judy H) is from California. She first saw an endo in September 2006 and was diagnosed on October 26th, 2006. Judy had ectopic Cushing's due to a tumor on her lung which was removed in November 2006.
New Bio January 6:
Travis is from Morgan City, Louisiana. He had ectopic Cushing's caused by a carcinoind tumor. He also had a pituitary tumor removed.
Updated Bio January 6:
Jody (jodiann) is from Tacoma, Washington. She was diagnosed with Cushing's syndrome about 3 years ago. She also was diagnosed with bliateral multinodular adrenal hyperplasia. Her mom died from complications from a bilateral adrenalectomy (BLA) in 1978. She had Cushing's syndrome with pheochromocytomas. Jody updated her bio in December 2007 and January 2008.
New Bio January 4:
Liv (Liv) is from Rochester, Washington. Her mother has Cushing's and Liv is unhappy with the testing that her mother is having locally.
New Bio January 4:
Lisa (ldyaquarius) is from Columbus, Indiana. She is not yet diagnosed with Cushing's but she takes prednisone for asthma and Bells Palsy. She wonders how she will get better if she can't get off the steroids.
New Bio January 1:
Gerald (Jerry) is from Warren, Michigan. His wife had Cushings about 10 years ago, about 7 years before they met.
New Bio January 1:
Catrina (Catrina) is from Manchester, England. She is not yet diagnosed but is waiting for her first Endo appointment for Cushing's testing on January 9, 2008. She has been having symptoms since she was around 18.
New Bio January 1:
Tracey (trayseejaw) is from Franklin, New Jersey. Her 10 year old son may have Cushing's.
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