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The very newest bios on the site (2016)

Newest Bios:
There are currently over 2,000 bios on the original Cushing's website and are slowly being converted to the newer CushingsBios.com format.

Add or Update your bio here

Names in parens are user names on the message boards

Bios are being moved to a new website: CushingsBios.com

New Bio December 30, 2016
Kayla
is from the United States. She is 21 years old and has had a pituitary tumor and addisons for almost 4 years. Her doctor took her off her meds and she is testing for Cushing's.

New Bio December 29, 2016
Sandy (KindredSpirit)
is from Calgary, Alberta, Canada. She had health issues for several years and a friend asked if she had been tested for Cushing's. She hadn't heard of it but after reading the symptoms online, she sought out testing.

New Bio December 18, 2016
Tammy
is from Frederick, MD. She was diagnosed with Cushing's in the past week and will have adrenal surgery soon.

New Bio December 9, 2016
Matthew C
is from Grain Valley, Missouri. He had a failed pituitary surgery August 9, 2016 after being fired by a couple endocrinologists.

New Bio November 25, 2016
Laura F
is from Dallas, West Virginia. She been gaining weight for about 3 1/2 years since having her thyroid removed due to a 25 year old nodule that was calcified. She now has many other Cushing's symptoms.

Golden Oldie Bio October 22, 2016
Melissa
is from Sheridan, Indiana. She had pituitary surgery July 18, 2007 but doesn't have a cure. Possible ectopic Cushing's has been suggested. The surgeon does not want to do radiation or removal due to her age..

Golden Oldie Bio October 17, 2016
Marcia (Marcia K)
is from North Palm Beach, Florida. She has a PCOS diagnosis and has Cushing's symptoms.

Golden Oldie Bio October 16, 2016
Kim H
is from Grays, UK. She had ectopic Cushing's but nearly 16 years later the ectopic source had never been found despite many more tests. It was still there because it still produced ACTH. Update: The ectopic source was in Kim's appendix. After testing, it was found to be a carcinoid tumour.

New Bio October 13, 2016
Emily
is from Grover Beach, CA Her tests are running high but her endo said it appears she has Cushing's on paper, but not by looking at her. Therefore his conclusion is she don't have it, and nothing can be done at this time.

New Bio September 15, 2016
Elara
is from Palmerston North, New Zealand. She recently had high numbers on a Dexamethasone test and is wondering if she has Pseudo-Cushing's.

New Bio September 8, 2016
Miranda (Miranda34)
is from France. She was recently diagnosed with Cushing's syndrome due to the medicine she takes for asthma. Last year she kept collapsing in the street and was suffering from low blood-pressure and hypoglycemia.

New Bio September 5, 2016
Ryan C (Awesomenatious)
is from Scotland. He has Pseudo Cushings and chronic fatigue diagnoses but is not getting any help. He STILL has high cortisol levels.

New Bio September 5, 2016
Raquel O (Raquel8a)
is from Ewa Beach, Hawaii. She believes she has had Cushing's for maybe 20 years. She has an adrenal tumor but is waiting for a neurosurgeon, so I'm not clear about the diagnosis.

In Memory September 4, 2016
Ryan Tyler Monds
. Ryan passed away peacefully and is free from illness and pain....Also mourning his loss are aunts, uncles, cousins, many life-long friends and friends through Cushing's Disease Awareness.

New Bio August 31, 2016
Julie
is from Lewisburg. She has two adrenal adenomas and many Cushing's symptoms but is not yet diagnosed..

New Bio August 30, 2016
Melissa (SweetMelisa)
is from Virginia. A CT with contrast showed bilateral adrenal adenomas. She is requesting a referral to Johns Hopkins or Duke to see what she'll do next.

New Bio August 28, 2016
Liz L
is from Los Osos, Califorina. She was diagnosed with Cushing's in April of 2002. She had transsphenoidal surgery in August and thought things were going ok until maybe a year ago.

New Bio August 23, 2016
Niamh (niamhiblog)
is from Ireland. In October 2015 she underwent a full left adrenalectomy to remove a tumor from her adrenal gland.

New Bio August 23, 2016
Lydia M
is from High Prairie, AB, Canada. She was diagnosed initially by her family doctor. She has many Cushing's symptoms.

Golden Oldie Bio August 11, 2016
Kim H
is from Grays, UK. She has ectopic Cushing's but nearly 16 years later the ectopic source has never been found despite many more tests. It is still there because it still produces ACTH. Update May 2007: The ectopic source was in Kim's appendix. After testing, it was found to be a carcinoid tumour.

New Bio July 31, 2016
Jennifer M
is from Erie, PA. Her 9-year-old daughter is not yet diagnosed with Cushing's but she is testing now.

Golden Oldie Bio July 18, 2016
Rebecca
is from Perth, Australia. She has many Cushing's symptoms but is not yet diagnosed. Originally from Friday, October 3, 2008.

Golden Oldie Bio July 14, 2016
Ryley (Sunshine)
is from Joliet, Illinois. Her endo thinks Ryley has an adrenal problem. Originally from Monday, November 17, 2008

New Bio July 11, 2016
Crystal T
is from West Blocton, Alabama. She is not yet diagnosed with Cushing's but 4 doctors from her primary to specialist believe she has some form of Cushing's.

New Bio July 7, 2016
Kali
is from Canada. She's 20 years old and has been on this journey for a year and a half now. She has many Cushing's symptoms but she's not getting a positive diagnosis from testing.

New Bio July 4, 2016
Heather P
is from Colorado. Her husband is not yet diagnosed with Cushing's but he has been having a lot of symptoms since late 2015.

New Bio July 2, 2016
Wand G
is from Oklahoma. She is not yet diagnosed but has been having symptoms since she was 25. She is 44 now.

New Bio July 2, 2016
Julie
is from Lewisburg. She is not yet diagnosed but has more tests in six weeks and is looking for advice.

Golden Oldie Bio July 1, 2016
Valerie
is from Toms River, New Jersey. She has been on steroids for 6 years and as a result, she now has Cushing's, Addison's and type 2 diabetes. Originally posted Monday, December 1, 2008

Golden Oldie Bio June 30, 2016
Sheara (sbailey)
is from Grantham, New Hampshire. Sheara had a Transsphenoidal surgery to remove her pituitary tumor. The pathology report results were that it was an ACTH (aka Cortisol) and Prolactin Tumor. A Golden Oldie originally from Tuesday, October 7, 2008

Golden Oldie Bio June 29, 2016
Elisabeth (bethnaz)
is from Mesa, Arizona. She had pituitary surgery on November 26, 2008.

New Bio June 28, 2016
Megan (Gaff228)
is from San Antonio, Texas. She had a unilateral adrenalectomy on Wednesday, June 22, 2016. She's just under a week post-op and feeling pretty good.

New Bio June 21, 2016
Candy (Candybar11)
is from North Myrtle Beach, South Carolina. She was diagnosed with Cushing's in 1997 and had pituitary surgery at NIH.

Golden Oldie Bio June 14, 2016
Harley (HBW)
is from Sturgis, South Dakota. He has Addison's Disease and a pituitary tumor. He has steroid induced Cushing's. A Golden Oldie originally from Monday, January 19, 2009.

Golden Oldie Bio June 14, 2016
Fiona
is from Lydford, UK. She was first diagnosed in 1990 after a year of tests and years of symptoms. About 3 or 4 years ago her symptoms started returning. It appears that she has a recurrence after 18 years. A Golden Oldie originally from Wednesday, June 3, 2009

Golden Oldie Bio June 12, 2016
Gail (RAMBOETTE)
is from Saluda, North Carolina. She was diagnosed with adrenal Cushing's in February 1009 and had a BLA April 10, 2009.A Golden Oldie originally from Sunday, June 14, 2009.

Golden Oldie Bio June 10, 2016
LaDawn (NanaX3)
is from Huntsville, TN. She has been terribly ill for 17 months with adrenal insufficiency and a prolactinoma. Over the years she has also been diagnosed with been diagnosed for years, Fibromyalgia, IBS, Sleep Apnea, Insomnia, hypertension, hypotension, digestive disorders, and early pancreatitis.

Golden Oldie Bio June 8, 2016
Mae (Mae)
is from Orlando, Florida. She is not yet diagnosed with Cushing's but has many symptoms. A Golden Oldie originally from Sunday, October 26, 2008

New Bio June 8, 2016
Wendy
is from Glenside, PA. She was diagnosed in April 2016 with Cushing Disease caused by a pituitary adenoma and will have surgery 8/10/2016.

Golden Oldie Bio June 6, 2016
Joslyn (Joslyn)
is from Harrisburg, Pennsylvania. She was diagnosed with adrenal Cushing's Syndrome and was scheduled to have surgery July 6, 2009. She was interviewed in the Cushings Help Voice Chat / Podcast series after her surgery. Originally from Monday, June 8, 2009

Golden Oldie Bio May 26, 2016
Heather (HeatherKY)
is from Kentucky. In 2002, she developed a case of Bell's Palsy and was put on prednisone. In December 2008, after many years of feeling hopeless and alone, she was diagnosed with cyclical Cushing's Disease caused by a pituitary tumor. Transsphenoidal pituitary surgery was scheduled for February 2009. Originally posted Monday, February 2, 2009.

New Bio May 30, 2016
Cristina (Cristina)
is from Australia. She was recently diagnosed with adrenal Cushing's and will have surgery soon.

New Bio May 24, 2016
Judy (Joybound1)
is from Sherwood, Oregon. She had a DUTCH test last year showing high cortisol levels and is wondering why the doctor didn't do anything further.

Golden Oldie Bio May 23, 2016
Xchicagoan (xchicagoan
) is from Huntersville, North Carolina. She is not yet diagnosed with Cushing's but has many symptoms including Adrenal Hyperplasia and thyroid issues. Originally posted Thursday, March 12, 2009.

New Bio May 20, 2016
Kat S (kats)
is from the USA. She has recently been diagnosed with Madelung's Disease.

Golden Oldie Bio May 19, 2016
Stephanie (steph)
is from Wimberley, Texas. About 2 and a half to 3 years ago, she was being treated for a condition called Reflex Sympathetic dystrophy. She was injected with steroids and was found to have Cushing's. She still has some of the symptoms of Cushing's even though she has been cured. Originally posted Friday, March 6, 2009

Golden Oldie Bio May 15, 2016
turtledove (turtledove)
is from Hamilton, Ohio. She is not yet diagnosed with Cushing's but she has many symptoms. Originally posted Monday, December 29, 2008

Golden Oldie Bio May 12, 2016
Margie (angeleyes)
is from Dundalk, Maryland. She is having a tough time after adrenal surgery

Golden Oldie Bio May 11, 2016
Barbara (2maro)
is from Houston, Texas. She ended up at at MD Anderson with Dr. McCutcheon who removed the pituitary tumor transphenoidally. Miraculously, over the next 9 months, she lost 100 pounds. She is no longer diabetic and did not have high blood pressure until 2008.

New Bio May 10, 2016
lyebye0
is from Louisiana. She has a pituitary tumor that the doctor wants to watch.

Golden Oldie Bio May 9, 2016
Dee (DeeO)
is from Australia. Her daughter has a prolactinoma and Dee is wondering if she could have Cushing's.

In Memory May 7, 2016
In Memory: Gregory J. Bart Jr.

New Bio May 4, 2016
Susanna N (Susanna Nolt)
is from Reading, PA. She had pituitary surgery on Nov 13, 2015 at Johns Hopkins.

New Bio May 3, 2016
Abigail B (helpmepleez)
is from Spring Valley, New York. She has been sick for the 13 years since May 2003, and for the first 12 years she did not have the correct diagnosis. Her symptoms first started out with like sinus infections.

New Bio May 2, 2016
Sharon M (Sharon)
is from Fort Smith, Arkansas. She was diagnosed with Cushings in 2005. She had surgery in 2006 which required her lower right lung to be removed. It was rare because her symptoms cycled.

New Bio April 28, 2016
Amee (amee)
is from Channel Islands, UK. She is post Cushing's Syndrome with a unilateral Adrenalectomy, Hypothyroid and now has a Pituitary micro-adenoma.

New Bio April 28, 2016
Caroline (carogyrl)
is from Kentucky. She has been treated numerous times with steroids for migraines and chronic sinusitis. She has the "classic look" of someone with Cushing's.

New Bio April 20, 2016
Kate N (Kate NC)
is from Charlotte, North Carolina. 6 years ago she went through a series of steroid injections to try to relieve her back pain. She ended up with steroid induced Cushing's Syndrome.

In Memory April 15, 2016
Stacy Ollenberger
had two pituitary surgeries, radiation and an adrenalectomy. She died of an adrenal crisis on November 4, 2015.

New Bio April 15, 2016
Laurie (Boo)
is very worried about her young daughter who has been having issues since she was a toddler.

New Bio April 14, 2016
Julie (Jules)
is from Mount Arlington, New Jersey. She had been severely ill for over a decade before being diagnosed with pituitary Cushing's.

New Bio April 2, 2016
Joanne (Mojo1973)
is from Fort Collins, Colorado. She has been diagnosed with several disease since she was 17. She has steroid-induced Cushing's now.

New Bio March 28, 2016
Terri (Terri)
is from Florida. An adrenal cyst found accidentally in the ER led her to testing for Cushing's.

New Bio March 19, 2016
Lisa (Lisa75)
is from Grand Junction, Colorado. She was lucky to have a kidney stone prompting an xray and scan. That was when her adrenal tumor was discovered.

New Bio February 16, 2016
Deborah S
is from Richmond, Virginia. She has many symptoms but is not yet diagnosed. Deborah will be our guest in an interview on March 30 at 6:00 pm eastern. Listen to the archived interview here.

New Bio February 9, 2016
Alice
is from Colorado. She is concerned that her teenage daughter might have Cushing's.

New Bio February 5, 2016
Erin T
is from Morristown, TN. She had pituitary surgery November 25, 2011 but still has fatigue and has been hospitalized twice.

Updated Bio January 25, 2016
Pat G
had a pituitary tumor (Cushing's Disease), Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), Fibromyalgia, and Environmental Illness/Multiple Chemical Sensitivities. Pat updated her bio after successful surgery. She is found that there is life after Cushing's! She updated it again January 25, 2016.

In Memory January 25, 2016
In Memory: Jenni Moore

Updated Bio January 23, 2016
Sherry C
updated her bio January 23, 2016. She is just now starting to feel good after her BLA.

Updated Bio January 22, 2016
Vicki (Pugmom)
is from San Diego, CA. She added more information to her bio.

New Bio January 22, 2016
Chelsea
is from Seattle, WA. She has many symptoms and will see an endo soon. Her test results show moderately elevated Prolactin level and a "through the roof" DHEA level.

New Bio January 22, 2016
Donelle T
is from Staten Island, NY. He was rapidly gaining weight, more than 100 pounds in one year. His upper torso was getting bigger, but not his legs. And he felt overwhelmingly tired...His bio includes a video.

New Bio January 10, 2016
Toni (Toni)
is from Middletown, New Jersey. A a CT scan revealed a 3.5cm mass on her right adrenal gland and she had surgery the next week.

Updated Bio January 9, 2016
Kristin T
is from Florida. She had a doctor, some 13 years ago start the workup for Cushing's (had 24 hour urine, dexamethasone suppression test and a brain MRI) but this was pre-nursing school and she did not realize the seriousness of what he was suspecting, so she never followed up. She is still searching for a doctor.

New Bio January 6, 2016
Melissa B
is from Littleton, CO. Her daughter was 5 years old when she began to display Cushing's symptoms and now her 8 year old sister is starting to show symptoms.

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