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The very newest bios on the site (2011)
Newest Bios:
There are currently over
1,600 bios on the Cushing's website.
Names in parens are user names on the message boards
New Bio December 27, 2011
Cynthia (Daisy) is from Vacaville,
California. She had a pituitary macroadenoma (and an adrenal macroadenoma), but the pituitary tumor was the cause of her Cushing's and was successfully removed in April 2011.
New Bio December 13, 2011
Cathy937 (Cathy937) is from Bay Minette, Alabama. Cathy's daughter is in the hospital. Because they have not determined the length of each cycle there is no treatment right now. CT scans have not revealed a tumor on her pituitary, lungs or adrenal glands.
New Bio December 13, 2011
Jane (JaneyB) is from Northampton, UK. She has not yet been diagnosed with Cushing's but she has many symptoms.
Updated Bio December 12, 2011
Susan W (SuzyQButterball) is from Darien, Illinois. After 2.5 years of testing, Susan was diagnosed with Cushing's (which was un-diagnosed for over 20 years). Her Pituitary Tumor was removed on 10/20/11 by Dr. Edward Oldfield.
New Bio December 11, 2011
Cindi (cindi) is from Minnesota. After 3 years of testing and misdiagnosis, Cindi had her left adrenal tumor removed about 4 months ago.
New Bio December 11, 2011
Shelley (shelleymarie) is from Vestal, New York. She has not yet been diagnosed with Cushing's but she has many symptoms.
New Bio December 11, 2011
Susan W is from Darien, Illinois. After 2.5 years of testing, Susan was diagnosed with Cushing's (which was un-diagnosed for over 20 years). Her Pituitary Tumor was removed on 10/20/11.
New Bio December 5, 2011
Trent (Trent) is from Gardendale, Alabama. He has not yet been diagnosed with Cushing's but he has many symptoms.
New Bio November 28, 2011
MAPRT (Tracy Lynn) is from Shrewsbury, Massachusetts. She has not yet been diagnosed with Cushing's but she has many symptoms and is testing now.
New Bio November 27, 2011
Christina B (Stinabee) is from Salt Lake City, Utah. She had an adrenal tumor and is waiting for surgery.
New Bio November 24, 2011
Stephanie (StephanieMM) is from Bradenton, Florida. After four very long years, Stephanie may be near a final answer. Cushing's has been established and she is in the "what's causing it" phase.
New Bio November 20, 2011
Myra (Myra) is from Illinois. She has not yet been diagnosed with Cushing's but she has many symptoms and wants to know how to get the doctor to listen and run the correct tests.
New Bio November 20, 2011
Kelly (Kelly). She had a right adrenal tumor and surgery Nov. 23. 2011. Her baby was stillborn and she believes Cushing's is at fault.
New Bio November 13, 2011
Mimi (MimiLaRosa) is from Lima, Peru. She took large dozes of prednisone for almost a year and was diagnosed 10 years ago with Cushing's disease.
New Bio November 12, 2011
Britt (Britt) has not yet been diagnosed with Cushing's but she has many symptoms and is testing now.
New Bio November 12, 2011
Nele (Mio) is from Houston, Texas. She was diagnosed with Cushing's and had pituitary surgery 1986 after a terrible automobile accident.
New Bio November 11, 2011
Vanessa B is from Petersburg, South Carolina. She has been dealing with Cushing's for 4-5 years now.
New Bio November 11, 2011
Sandra (SandyNY) is from Ossining, New York. It took 2 1/2 years to find a doctor who was familiar with Cushing's disease. Sandra tentatively plans to have surgery in February or March 2012 to remove the tumor.
New Bio November 10, 2011
Erica is from Massachusetts. She was diagnosed with pituitary Cushing's after only three months of testing.
New Bio November 9, 2011
Deborah R (Deborah R) is from Poulsbo, Washington. Her mom was diagnosed with Cushing's in 1977 and was one of the first have experimental surgery at UCSF. She was cured only for a few years and then the disease came back.
Updated Bio November 6, 2011
Fabiana (fabbi) is from Philadelphia, Pennsylvania. She had a recurrence after seven years of being Cushing's free. A second pituitary surgery on 10/26/2011 was unsuccessful.
New Bio November 2, 2011
Kery H (Kery1979) is from Calhoun, Kentucky. She has not yet been diagnosed with Cushing's but is testing now.
New Bio October 29, 2011
bBb (cushings) is from Hobart, Australia (Tasmania). She has not yet been diagnosed with Cushing's but she has been diagnosed with: Lupus, Fibromyalgia, Serve depression, OCD, sinus infections, Diverticulitis, Ulcerated Bowel, Various veins, Obesity, Zinc poisoning, menopause, Cluster migraines, Fatty liver and Cysts on her Liver and kidneys.
New Bio October 29, 2011
Julie R (jules990205) is from Malvern, Ohio. She was just diagnosed with Cushings. She is also an LPN who studied this disorder in school a year ago.
New Bio October 26, 2011
Tracey H (Rhealsmom) is from Saint John, Canada. She has not yet been diagnosed with Cushing's but has had symptoms for 30 years.
New Bio October 25, 2011
Sandra (ansan) is from Kent, England. She was diagnosed with pituitary Cushing's in November 2009 and had surgery 6 months later.
New Bio October 22, 2011
Deborah (Deborah59) is from Monroeville, New Jersey. She has been on pain meds for over 2 years for Perifomis Syndrome. A CT-scan shows a small adrenal adenoma and her research led her to Cushing's.
New Bio October 21, 2011
Sylvia (sylviat) is from Leighton, Alabama. Her journey started with a possible kidney infection. A specialist is now trying to rule out Cushing's with a battery of tests.
New Bio October 16, 2011
Sandra (bskfaith13) is from Carpentersville, Illinois. In 2005 she had a 9mm pituitary adenoma removed and she has a recurrence now. She is looking for a good neurosurgeon in the Chicago area.
New Bio October 13, 2011
Linda D (lulu4jerry) is from New Caney, Texas. She has been dealing with diabetes for many years as well as other symptoms of Cushing's. She is testing now.
New Bio October 12, 2011
Nicole (Nicole) is from Walworth, Wisconsin. Her journey started with infertility and Clomid. She had unsuccessful pituitary surgery followed by a BLA.
New Bio October 12, 2011
Caryn (Caryn) is from San Ramon, California. Her hormonal problems started in 2007 when she began using Depo Provera as birth control.
New Bio October 12, 2011
Mallissa F (Malli) is from Hunter Valley, Australia. She has not yet been diagnosed with Cushing's but she is testing now.
New Bio October 11, 2011
Kim (kimvanstigt) is from Cape Town, South Africa. She had transsphenoidal surgery on 31 May to remove a small adenoma from her pituitary. Her cortisol levels have not decreased and her last 24 UFC reading was 3000. She is considering a BLA.
New Bio October 10, 2011
Crystal (Aidsmommy). Her son is 3 1/2 and had a sudden 10 pound weight gain between February-May 2011. He has been tested for Prader-Willi. Crystal thinks he might have Cushing's.
New Bio October 10, 2011
Lou is from Edmonton, Canada. She has not yet been diagnosed with Cushing's but she has diabetes.
New Bio October 10, 2011
Carmen (carmenin2010) is from Olympia, Washington. She has not yet been diagnosed but she is living with Rheumatoid Arthritis and secondary autoimmune diseases. Among many other drugs, Carmen has been on low dose prednisone (20-30mgs per day) for 18 years. She has also had many cortisone injections.
New Bio October 3, 2011
Maureen (MoFoley) is from Atlanta, Georgia. She was diagnosed with Cushings (adrenal) Aug of 2010 and had and adrenalectomy in Oct 2010. Her mother had Cushings (Pituitary) about 15 years ago.
New Bio October 2, 2011
Jessy (Jessy) is from Chicago, Illinois. She has not yet been diagnosed but she has many Cushing's symptoms and is testing now.
New Bio October 1, 2011
Robin (Robin) is from Washington, Michigan. She is not yet diagnosed with Cushing's but she is testing now and has an adrenal tumor.
New Bio September 30, 2011
Erica J (EricaJohnson26) is from Cleveland, Ohio. She was diagnosed with hypothyroidism for almost two years now.
New Bio September 30, 2011
Heather (Sandsurfgirl) has not yet been diagnosed but she has many Cushing's symptoms and is testing now. Dr. Ted Friedman thinks she has Cushing's.
New Bio September 20, 2011
Andrea L (Drea0731) is from New York, New York.
She has had successful pituitary surgery after years of Cushing's symptoms. Her entire pituitary gland was removed.
New Bio September 19, 2011
Elllaina (Elllaina) is from
Mayo, Ireland. Her 19-year-old daughter has been diagnosed with ovarian failure and hodgkins lymphoma. Elllaina wonders if she could have Cushing's also.
New Bio September 18, 2011
Cher (CherD) has not yet been diagnosed but she has many Cushing's symptoms and is testing now. She has been dealing with various issues for going on 10+ years.
New Bio September 17, 2011
Dianna S (Dianna) is from Middleburg, Florida.
She is a 65 year old retired school teacher who has been on steroids for 26 years for Polymyositis. She has had Cushing's for most of that time.
New Bio September 15, 2011
JLM (JLM) is from Rhode Island.
She believes her adrenal tumor started around 2002. She is looking forward to surgery and recovery.
New Bio September 15, 2011
Cheryl (CherD) is from New York. She has not yet been diagnosed but she has many Cushing's
symptoms and is testing now.
New Bio September 12, 2011
Sandra (SandyMidd) is from the Mt
Helen, Australia. She was diagnosed with Primary Addisons in 2003 after about 10 years of
symptoms (and approximately 3 crisis').
New Bio September 9, 2011
Sharon (SuzieQ23) is from Michigan.
She has had surgery to remove a pituitary tumor, and since have had some improvements, but
it's been slow.
New Bio September 9, 2011
Nancy (zebramom) is from Plant
City, Florida. Nancy's daughter has not yet been diagnosed but she has many Cushing's
symptoms and is testing now.
New Bio September 8, 2011
Nina (Nina1) is from the United
Kingdom. She had successful pituitary surgery November 8th 2010.
New Bio September 7, 2011
Adrian (Adrian) is from
Bournemouth, United Kingdom. Adrian's mum has recently been diagnosed with Cushing's
disease. Doctors are unaware of the location and have counted out the adrenal form. She is
scheduled for an IPSS soon.
New Bio September 5, 2011
Ashleigh (Ashleigh) is from
Sacramento, California. She has not yet been diagnosed but she has many Cushing's
symptoms.
New Bio September 5, 2011
Jessica (jessDe) is from Pittsburgh,
Pennsylvania. She was recently diagnosed with Cushing's Disease but the source is not yet
known.
New Bio September 3, 2011
Olga is from Sonora, California. She
was officially diagnosed with Cushing's in November 2010, but she thinks she has had it
for over eight years. Olga had adrenal surgery May 4, 2011.
New Bio September 3, 2011
Leslie (Leslie) is from Minnesota.
She is not yet diagnosed but has a number of questions.
New Bio September 3, 2011
Varenya (Arya) is from India. She
has not yet been diagnosed.
New Bio September 1, 2011
Tami (Tami) is from Oceana, West
Virginia. She was just diagnosed August 29, 2011 with Cushing's Disease and will be
having pituitary surgery soon.
New Bio August 30, 2011
CJ (CJM) is from Florida. She has a 1.8 cm
left adrenal mass which her PCM believes is causing her Cushing's Syndrome.
New Bio August 30, 2011
Stephanie (LavenderBlue) is from
Canada. She has not yet been diagnosed but she has many Cushing's symptoms.
New Bio August 29, 2011
rettagumm (rettagumm) is from
Visalia, California. She has not yet been diagnosed but she has many Cushing's symptoms.
New Bio August 28, 2011
Heather R (Heather R) is from
Wiakoloa, Hawaii. She was diagnosed with a pituitary (micro) back in early 2000.
New Bio August 26, 2011
Hanna (Hanna) is from Huntington, New
York. She had pituitary surgery 8/10/2011 for removal of ACTH secreting microadenoma.
New Bio August 23, 2011
Katherine D is from Derby, England.
Her mother has been suffering with a pituitary tumor for over 12 years. She has had 4
strokes, 2 grand mal seizures, lost the visual fields in her left eye and contracted
epilepsy and hydroadenitis supritiva.
New Bio August 20, 2011
Shelli (Shelli) is from Portland,
Oregon. She was just diagnosed with Cushing's and is awaiting testing to determine if
it's pituitary or ectopic.
New Bio August 19, 2011
Pati (Pati) is from Binghamton, New
York. Her daughter is 13 and has been diagnosed with Cushings Disease.
New Bio August 17, 2011
Judy (cyouinhell) is from Tucson,
Arizona. She was diagnosed with pituitary Cushing's on April 8, 2011 - Cushing's
Awareness Day. She has had three surgeries within 6 months.
New Bio August 17, 2011
Cheryl B is from Kenner, Louisiana.
She had a left adrenal adenoma removed laparoscopy in 2008.
New Bio August 15, 2011
Cassie (Cassie) is
from Snellville, Georgia. She was diagnosed with a 2.5 pituitary tumor and Cushing's
Disease in late April, 2011. She had surgery in early May, 2011.
New Bio August 14, 2011
Vickie is from
Scranton, South Carolina. Her 7-year-old granddaughter is testing for Cushing's.
New Bio August 14, 2011
Darren (Charger) is from New York.
He is 42 year old male who was just diagnosed with pituitary Cushing's.
New Bio August 14, 2011
Mary Ellen P (Marelle) is from
London, Ontario, Canada. She has not yet been diagnosed with Cushing's but has many
symptoms and is testing now.
New Bio August 13, 2011
Jessica's daughter has not
yet been diagnosed but she has many symptoms.
New Bio August 10, 2011
Carole (kayo) is from Buffalo, New
York. Her problems started in 2005 after getting out of an abusive relationship. She has
been putting off going to the doctor and needs some encouragement.
New Bio August 5, 2011
Ashley. Ashley's Cushing's symptoms
started after she had her first child in 2010. She was first diagnosed with PCOS. She is
fighting for Cushing's testing now.
New Bio August 4, 2011
Cynthia (Cynthia) is from Pomona,
California. She was diagnosed with Cushing's in August 2010 purely by mistake. She was
looking online to find something to cure facial hair growth. One of the sites lead her to
Cushing's.
New Bio July 30, 2011
Marie B (Cookiemarie) is from
Logansport, Indiana. She acquired Cushing's from high dose Prednisone over an 8 year
period trying to survive the ravages of Lupus SLE. She has been hospitalized twice with
adrenal crisis.
New Bio July 29, 2011
Mary B (David's Mom)
is from Newark, California. Her son David had a pituitary surgery on March 18th that did
not bring him relief. This Tuesday, August 2, he will have a second surgery at a different
facility with a different surgeon.
New Bio July 28, 2011
Karla D (Kay) is from Berlin,
Maryland. After almost a year of illness and basically hell, she' was finally diagnosed
as having Steroid induced Cushings Syndrome.
New Bio July 27, 2011
MzRobin is from Little Rock,
Arkansas. She has not yet been diagnosed with Cushing's but has many symptoms and is
testing now.
New Bio July 25, 2011
Judy (Judyelaine) is from Valrico,
Florida. Judy had successful pituitary surgery at Shands Hospital May 31, 1999
New Bio July 22, 2011
Diana is from Dallas, Texas. 90 days
after pituitary surgery, she underwent the second surgery and had all 4 parathyroids
removed.
New Bio July 22, 2011
Jennifer (JennKoberstein) is from
Reston, Virginia. She has had two pituitary surgeries and is facing a third. Her thyroid
has also stopped working.
New Bio July 22, 2011
Rossi (Wrongdiagnosis) is from
Houston, Texas. She has not yet been diagnosed with Cushing's but has many symptoms and
ten times the amount of testosterone. She has been diagnosed with PCOS.
New Bio July 17, 2011
Donna (Donna) is from Jefferson,
Georgia. She had her left adrenal gland and a 3 cm tumor removed in February 2011.
New Bio July 15, 2011
Kyle (kyleburkle) is from Williston,
North Dakota. He is in the middle of the diagnosis right with Dr. Theodore Friedman as of
7/15/2011. His pituitary tumor has been identified at 3 mm, high cortisol.
New Bio July 11, 2011
Sue (susi21) is from Palm Bay, Florida. Sue
had Cushing's for approximately fifteen years. She diagnosed herself with the help of a
nurse friend and a book. Sue will be interviewed in the Cushings Help Radio Show on July
27 at 5:00 PM eastern
New Bio July 9, 2011
Amy (spunkybluecat) is from
Louisville, Kentucky. Amy was diagnosed with Cushing's last November and had surgery to
remove the pituitary adenoma in March.
New Bio July 3, 2011
Ann (annmriss) is from Martinsburg,
West Virginia. Ann was recently diagnosed with Cushing's. She says she is fortunate for
being diagnosed very early in her disease.
New Bio June 24, 2011
Jessie (kadive) is from Harpers
Ferry, West Virginia. She is not yet diagnosed with Cushing's but she has had many
symptoms since 2000.
New Bio June 24, 2011
Beth is from California. She is
not yet diagnosed with Cushing's but she has had many symptoms for several years. She is
only 18.
New Bio June 21, 2011
Susan (Suze) is from Scarsdale, New
York. She is not yet diagnosed with Cushing's disease but she is sure she has it. Her
endo keeps telling her its too rare and she doesn't have it.
New Bio June 20, 2011
Frances O (frances) is from Melbourne,
Australia. While in hospital for a skin graft due to her thin skin the surgeon wondered
why her skin was so thin for someone her age. The doctors decided to run some tests and
adrenal Cushing's was found.
New Bio June 19, 2011
Liz G is from Joliette, Illinois. An
endocrinologist found a pituitary microdadenoma as a result of unusual thryroid function,
and told her it was not a problem. Eleven years later, she is searching for a Cushing's
diagnosis.
New Bio June 18, 2011
Hanna (Hanna) is from Huntington, New
York. She was diagnosed with Cushing's disease from blood work, urine tests and
suppression testing.
New Bio June 17, 2011
Dawne (dlmorrell) is from
Westbrook, Connecticut. Her daughter is 11 years old and has been struggling with weight
her whole life. Her doctor suggested Cushing's so they are testing now.
New Bio June 16, 2011
Nikki (Nikki) is from Denver,
Colorado. She looking for support for her daughter who was just diagnosed in August 2010
and has had pituitary surgery.
New Bio June 15, 2011
Robin. Her husband has been
diagnosed with hyperaldosteronism. He is on aldosterone blocker but has side affects.
New Bio June 15, 2011
Lindy (Lindy54) is from London,
England. When she had her gallbladder removed, they found that she has a 14mm left
adrenal lesion. She is doing further testing.
New Bio June 14, 2011
Barbara B is from West Islip,
New York. Barbara has 2 Pituitary adenomas, 2 adrenal adenomas, hemi thyroidectomy. She
is still testing for Cushing's.
New Bio June 9, 2011
Stephanie H (Steph H) is from New
Orleans, Louisiana. She is a physician, and thinks she definately should have figured
this out a long time ago. She is scheduled for adrenal surgery June 20, 2011 and is
scared and vulnerable.
New Bio June 8, 2011
Kathleen (Kathleen) is from
Sandusky, Ohio. She has not yet been diagnosed with Cushing's but she has many symptoms
and is testing.
New Bio June 8, 2011
Judy (judyb) is from Alturas,
California. She got Cushing's from steroids she took to control her Giant cell
arthritis.
New Bio June 8, 2011
Robyn Y (2ndtimecushie) is from
Lakewood, Colorado. She was diagnosed with Cushing's Disease in 2004 and had 2/3 of her
pituitary removed. This was after 8 years of going from doctor to doctor and thinking she
was going to go crazy. She is testing again. Robyn will be our guest in BlogTalk Radio on
June 15, 2011.
New Bio June 8, 2011
Syndi (Sinki6) is from Oxford, Alabama. Dr.
Ludlam is 99.999% certain she has Cushing's Disease, probably Cyclic. She has a tumor on
her pituitary but he's concerned there may be another tumor elsewhere and needs to make
certain.
New Bio June 7, 2011
Emma is from Canada. She is a grade 7 who was
diagnosed with Cushing's just this year. Cushing's started affecting her body at the end
of grade 5.
New Bio June 7, 2011
Beverley (Scottishblonde) is from
Edinburgh, Scotland. She is not yet diagnosed but her doctor suspects Cushing's. She is
testing now.
New Bio June 5, 2011
Lisa (Belkie) is from South Carolina.
She is 1 year post-adrenalectomy for a large benign mass (10.5 cm). She is struggling
with intermittent fatigue.
New Bio June 5, 2011
ConcernedRose
(ConcernedRose) is from Australia. She is the daughter of a Cushing's
sufferer.
New Bio June 4, 2011
slipslap (slipslap) is from
Johannesburg, South Africa. In 2009 the specialists found a pituitary adenoma that
surrounded her whole pituitary gland. It was removed in an operation. The immediate side
effect was 22 brain abscesses that took her to the brink of death.
New Bio May 31, 2011
Jessicca (Jessalee) is from Lakewood,
Washington. She was finally diagnosed with cyclical Cushing's in late June of 2009 and had
pituitary surgery July 14th. She is still having issues.
New Bio May 29, 2011
Glenda (Charley66) is from Lowell,
Indiana. She had her first Cushing's symptoms 17 years ago but she is not yet diagnosed.
New Bio May 28, 2011
Frank (Franski) is from Elmira, New
York. He was diagnosed with Cushing's 4 years ago but when the Insurance company figured
out how much all the testing and treatment was going to cost all of a sudden his doctor at
the time said "don't worry all is fine it's not Cushing's after all. you have diabetes and
very high blood pressure."
New Bio May 26, 2011
Jan (Jan) is from Desoto, Texas. She
has had many diagnoses including Lyme disease, Cushing's and adrenal hyperplasia.
New Bio May 26, 2011
Marie (Mtraeger) is from Silverton,
Oregon. She is trying to help a friend who has had her Pituitary Gland and both Adrenal
Glands removed.
New Bio May 25, 2011
Cynthia (Daisy123) is from Vacaville,
California. She recently had successful surgery to remove a pituitary tumor that was the
cause of her Cushing's disease.
New Bio May 23, 2011
Rebecah is from Havre, Minnesota.
She found out about two months ago that she has Cushing's Syndrome. She is heading to
Portland, OR to have a Petrosal Sinus Sampling.
New Bio May 20, 2011
Dana (Dana) is from Cincinnati,
Ohio. While completing her Ph.D. research in a pituitary-related field, she realized she
has many of the symptoms of Cushing�s syndrome, and have finally started to get tested.
New Bio May 19, 2011
LeAnna (mommyofcushie) is from the
Escondido, California. LeAnna's 7 year old son has Cushing's. He has had unsuccessful
pituitary surgery and his next options are removal of the pituitary gland, radiation, or
removal of the adrenal glands.
New Bio May 18, 2011
Michelle (scorpiogirl) is from
Springfield, Ohio. She lost her mother to Cushing's 18 years ago after she was
misdiagnosed for 5 years. Other family members are now dealing with Cushing's as well.
New Bio May 17, 2011
Chedder007 (Chedder007) is from
Crouse, North Carolina. She is not yet diagnosed but her doctor thinks she might have
Cushing's and PCOS.
New Bio May 15, 2011
Elvera (elvera) is from
the UK. She has been on prednisolone 7.5 mgs for 25 years and now has adrenal damage.
New Bio May 12, 2011
Amanda (MandiC) is from Placentia,
California. She is not yet diagnosed but her doctor thinks she might have Cushing's.
New Bio May 11, 2011
Melanie (MelanieUK) is from Newcastle
Upon Tyne, England. She had her left adrenal gland removed November 2007 then her right
removed February 2008.
New Bio May 7, 2011
Dawn (HelpingSis) is from Tulsa,
Oklahoma. She is helping her younger sister with her Cushing's diagnosis. Her sister has
had adrenal and thyroid glands removed in the last year.
New Bio May 7, 2011
Kat (kat weirwidnes) is from Widnes,
UK. She recently had pituitary surgery.
New Bio May 7, 2011
Sheryl B (lynnb) is from Houston,
Texas. She has not yet been diagnosed with Cushing's but she has many symptoms. Her
doctor thinks she has Cushing's.
New Bio May 6, 2011
MARYLU (MLU40) is from Milwaukie,
Oregon. She had transsphenoidal surgery on April 21,2011. Her tumor was discovered by
"accident"when she had a small stroke (TIA) and in doing a CT to trace the stroke they
saw the pituitary tumor.
New Bio May 5, 2011
Nancyann (Nancyann) is
from Toronto, Canada. She thinks a childhood friend of hers in the U.S. may have
Cushing's and would like to get her tested.
New Bio May 5, 2011
Diane is from Edinburgh, Scotland.
She had undiagnosed Cushing's Disease (pituitary tumor) in her twenties and has a
recurrence at age 44.
New Bio May 5, 2011
Sonny (Sonny) is from Melbourne,
Florida. He had adrenal surgery over 4 years ago and is still struggling. He will go to
the Cleveland Clinic in May 2011.
New Bio May 2, 2011
Kathy H (kathyjean) is from Erie,
Pennsylvania. She had surgery for removal of a pituitary tumor in September of 2010, and
Gamma knife surgery to finish the job in March of 2011.
New Bio May 1, 2011
Stephanie (stephy) is from Orlando,
Florida. She has not yet been diagnosed with Cushing's but she has many symptoms. She is
looking for a good endo in the Orlando area.
New Bio April 30, 2011
Penny M (Penny) is from Baton Rouge,
Louisiana. It was thought that Penny had Parkinson's but she had pituitary Cushing's.
Her surgery was May 6, 2010.
New Bio April 26, 2011
Jen is from Muncy, Pennsylvania. She has two
adrenal adenomas and is scheduled to have them removed. She is also 25 weeks pregnant with
her 3rd child.
New Bio April 25, 2011
Liz (lizZie) is from Hoschton, Georgia. She
has not yet been diagnosed with Cushing's but she has many symptoms. Her sister who is a
nurse mentioned that Liz might have Cushing's.
New Bio April 25, 2011
Deanna (Deanna) is from Shepherd,
Michigan. She was diagnosed with a pituitary tumor in 1997 that was causing her Cushing's
disease. She had the tumor removed and is panhypopituitary now.
New Bio April 23, 2011
Amy (pxlranger) is the US. She has a
multinodular hot goiter, Cushing's symptoms, flank pain and she is 150 lbs overweight.
New Bio April 19, 2011
sturgeonkate is from The Dalles,
Oregon. She has a visualized (and ignored) adrenal tumor for at least 10 years. She
started seeing an endocrinologist in fall of 2009 for a pituitary tumor. All tests
indicated that this was a prolactinoma so, again, the adrenal tumor was ignored.
New Bio April 18, 2011
Kim (toasteroven77) is from Las Vegas, Nevada.
She has not yet been diagnosed with Cushing's but she has a pituitary tumor and high
cortisol. She is planning to go to Cedars Sinai for more testing.
New Bio April 18, 2011
Stephanie (Steph2244) is from
Morganton, North Carolina. She has not yet been diagnosed with Cushing's but she has many
symptoms and has been told she may have a pituitary tumor.
New Bio April 13, 2011
Kandace (kandace) is from
Coushatta, Louisiana. She has not yet been diagnosed with Cushing's but she has many
symptoms. Her sister who is an LPN mentioned that Kandace might have Cushing's.
New Bio April 13, 2011
Donna (dafad123) is from East
Bridgewater, Massachusetts. Her 9-year-old daughter had a melanoma removed. Her doctor
said that people with Carney Complex have similar lesions. She will be testing soon.
New Bio April 12, 2011
Stacey G (StaceyG) is from Riverton,
Utah. On March 24, 2011, her doctor told her that if it "waddled and quacked like a duck,
it was a duck." A few days later, on the 29th, she had her pituitary tumor removed.
New Bio April 11, 2011
Donna is from Georgia. She noticed
what she thought looked like a hump on the base of her neck and was researching
online.
Updated Bio April 5, 2011
Kim S (Lil Dickens) is
from Greencastle, Pennsylvania. She has updated her bio after her acromegaly (pituitary)
diagnosis. She had her 1st pituitary Surgery Jan 28th, 2011. Her son is now testing for
Cushing's as well.
New Bio April 5, 2011
Mindy (londonmom) is from London,
England, UK. She was diagnosed with Cushings Disease in October of 2002 and had her
pituitary macroadenoma removed in January of 2003. She is having a recurrence.
New Bio April 4, 2011
Amanda (missynjak) is from Grantham,
UK. She has been diagnosed with Cushing's found out from MRI she has a pituitary
tumor.
New Bio March 31, 2011
Ross (Ross) is from Temple City, California. He
was diagnosed with a adrenal Cushing's in December 2010 and has had laparascopic
surgery.
New Bio March 29, 2011
Bette (Bette) is from Palm Coast,
Florida. She was diagnosed with a pituitary tumor and Cushing's and had surgery. Two years
later, same thing again, this time it was a adrenal tumor. Again, 2 years later, another
pituitary tumor.
New Bio March 29, 2011
Beatrice (Bea) is from Abbeville,
Louisiana. She has not yet been diagnosed with Cushing's but she has many symptoms and
will see an endo the 21st of April, 2011.
New Bio March 28, 2011
Michelle (Michelles) is from Winnipeg,
Manitoba, Canada. Her adventure started this past November (2010) after having this weird
abdominal pain for a few days. She is still waiting to have adrenal surgery.
New Bio March 28, 2011
Gabby (Gabby12) is from Galesburg,
Illinois. She has not yet been diagnosed with Cushing's but she has many symptoms and is
testing now. 10 tests have come back so far.
New Bio March 26, 2011
Theresa is from Jacksonville, Florida.
She was was diagnosed in 1997 with a pituitary tumor, high acth, after a few years of
being sick and contracting crypotcoccius in 1997. She had surgery and LINAC radiation
1997/1998/1999.
New Bio March 25, 2011
Susie (turbulentstorm) is from
Atwater, California. She has recently been diagnosed as having Cushing's syndrome brought
by the use of steroids.
New Bio March 23, 2011
Marlene (Marlene) is from Corner
Brook, Newfoundland Labrador (NL), Canada. She has been going to the Doctor since 2005
trying to find out what it wrong with her. They can"t seem to find what is going on.
New Bio March 21, 2011
earthmom (earthmom) is from
Nashville, Tennessee. She has not yet been diagnosed with Cushing's but she has an
appointment for a doctor.
New Bio March 13, 2011
Amber (dizzymommywith3) is from
Tacoma, Washington. She has not yet been diagnosed with Cushing's but she has many
symptoms and will see an endo soon.
New Bio March 11, 2011
Stephanie (Stephanie) is from
Connecticut. She has not yet been diagnosed with Cushing's but she has many symptoms and
is testing now.
New Bio March 10, 2011
Karen (karenY) is from Sudbury,
Ontario, Canada. Her 12-year-old daughter has recently been diagnosed with Cushing's but
they are still awaiting ACTH results, so the cause is still unknown.
New Bio March 6, 2011
Donald M is from Hillsborough, New
Jersey. He was misdiagnosed in 1957 and 1960 when it was said that his problem was due to
conversion reaction. He had a left adrenalectomy in 1994.
New Bio March 5, 2011
Andrea M (PrincessAzkabulah) is from
South Carolina. She has not yet been diagnosed with Cushing's but she will see an endo
soon.
New Bio March 4, 2011
LizMc (LizMc) is from Spring
Hill, Florida. She has steroid induced myopathy after taking Prednisone and Solu-Medrol
for her COPD.
New Bio March 3, 2011
Jennifer K (JennKend) is from
Climax, North Carolina. She has not yet been diagnosed with Cushing's but she is seeing an
endo now.
New Bio March 1, 2011
Sue (MomofAmanda) is from
Orefield, Pennsylvania. She has not yet been diagnosed with Cushing's but she is testing
now.
New Bio February 21, 2011
Matthaios (Omrider) is from
Portland, Oregon. He is currently attempting to get diagnosed by Dr. Theodore
Friedman.
New Bio February 12, 2011
Jesi (Jeslookin4answers) is from
Niagra Falls, NY. She has been looking for answers since 1996. Her symptoms match either
Cushing's or Conns.
New Bio February 12, 2011
Jeanette (JC) is from Virginia. She
had her pituitary tumor for Cushing's removed in July 09. Since her surgery her pain level
has increased so badly that she uses a chair to get around. It is difficult to walk and
her energy level is crazy off.
New Bio February 9, 2011
Ann is from
Canada. She shares her cyclical pituitary success story.
New Bio February 9, 2011
Cathy (Cathy) is from England. She
is about to start tests for Cushing's.
New Bio February 7, 2011
Alicia (Alikaye) is from White Bear
Lake, Minnesota. She started having Cushing's symptoms in 2008 and had pituitary surgery
at the Mayo Clinic in June, 2009.
New Bio February 6, 2011
p27jojo is from Chicago Heights, Illinois. She
has not yet been diagnosed with Cushing's but she is testing now. She has taken Metformin
for PCOS.
New Bio February 4, 2011
Yvonne (Gabbie1) is from Leawood, Kansas. In
early 2011, she had successful transphenoidial surgery to remove the pituitary tumor that
was wreaking havoc on her life.
New Bio February 1, 2011
Patrick (Patrick) is from New York,
New York. He is 20 months into recovering from a transphenoidal adenectomy to treat his
Cushing�s disease.
New Bio January 29, 2011
CA44 (CA44) is trying to decide
between radiation vs. bilateradrenalectomy after an unsuccessful transsphenoidal
surgery.
New Bio January 29, 2011
Sean (Sean) is from Pennsylvania. His
diagnosis was Bialateral macronodular adrenal hyperplasia with Cushing's Syndrome.
Updated Bio January 28, 2011
Diana (dcrosley) is from
Indialantic, Florida. She her bio about 5 years after her BLA.
New Bio January 28, 2011
Michelle (Mitchie) is from Husum,
Washington. She recently had her pituitary tumor removed.
New Bio January 27, 2011
Wendy (wendy mcilwrick) is from Gold
Coast, Queensland, Australia. She has not yet been diagnosed but her GP thought she might
have cyclical Cushing's.
New Bio January 26, 2011
Dalygirl (Dalygirl) is from Elkhart,
Indiana. She has not yet been diagnosed with Cushing's but she is testing now.
New Bio January 22, 2011
Gunhild had an adrenalectomy for a
cortisol producing adenoma in January 2010. She has some post-surgery problems and
symptoms.
New Bio January 20, 2011
Desiree (Desiree) is from Rochester, New
York. She has a large tumor on her adrenal gland. She has a consultative appointment next
week with a surgeon at Roswell Cancer Institute who specializes in endocrine/adrenal
surgery and oncology.
New Bio January 13, 2011
Rosemary (Lollypup) is from St
Marys, Ontario, Canada. She has not yet been diagnosed with Cushing's.
New Bio January 12, 2011
Trisha (Trisha) is from Rolesville,
North Carolina. She was officially diagnosed with Cushings in December 2009 and has had
two pituitary surgeries.
New Bio January 10, 2011
Jennifer (Jen H) is from
Ankeny, Iowa. A year ago Jennifer was diagnosed with stage 4 Carcinoid Cancer (a
neuroendocrine cancer). She is now having symptoms of Cushing's, as well and is testing
for it. The connection with carcinoid is that carcinoid cancer can cause cushings if it's
spread to the lungs. Hopefully they'll find the tumors on the adrenal glands or the
pituitary - higher likelihood of being benign and easier to remove.
New Bio January 8, 2011
Cathy (sheardo94) is from Liverpool,
England, UK. After diagnosing herself with Cushing's, she is awaiting referral for
radiotherapy as she does not want pituitary surgery.
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