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The very newest bios on the site (2009)

Newest Bios:
There are currently over 1,600 bios on the website.

Add or Update your bio here

Names in parens are user names on the message boards

New Bio December 28, 2009
Jenny Z (Jenny Z)
is from Providence, Rhode Island. She was diagnosed in November of 2006, at age 26, with Pituitary macroadenoma. The following January (2007) she underwent Transsphenoidal Neurosurgery at Mass General Hospital in Boston.

New Bio December 27, 2009
Korey (korkeeper)
is from Boise, Idaho. She was diagnosed with Cushing's Syndrome in her right adrenal gland. Her gland was removed May of 2007.

Updated Bio December 22, 2009
Lor
is from Minnesota. She has updated her bio after been diagnosed twice then UNdiagnosed, which is how it currently stands. She was diagnosed with pituitary Cushing's in May of 2009. She had symptoms for two years.

Updated Bio December 21, 2009
Kim (lil dickens)
is from Greencastle, Pennsylvania. She has updated her bio after her acromegaly (pituitary) diagnosis. She was diagnosed by Dr Holmes and had surgery with Dr Jho.

New Bio December 15, 2009
Jade (jadeh)
is from Australia. She has recently been diagnosed with Cushings after a PCOS diagnosis.

Updated December 14, 2009
Renata (Marisa)
is from St. Augustine, Florida. After years of symptoms, a 3.8cm tumor was found on her left adrenal gland. Her endo said that she did not fit in to the category of Cushing's or Addison's, or a Pheo. He told her that the tumor seemed to just be a lump and did nothing. UPDATE: Renata now has a surgeon.

New Bio December 12, 2009
Nancy (REDFLAME09)
is from Pittsburg, California. In 1987 she was in a surgical study (microsurgery) at UCSF and had an extensive but successful transsphenoidal resection On August 4, 1987.

New Bio December 10, 2009
Vickie C (vicky cannon)
is from Benton, Tennessee. She just found out she has adult ghd and she has had a pituitary adenoma for about 8 years.

New Bio December 8, 2009
Jessinta (Jessinta)
is from Kathryn, North Dakota. She was recently diagnosed with Cushing's and had treatment at the Mayo Clinic in Rochester, MN.

New Bio December 3, 2009
Angela F (Frazier)
is from Atlanta, Georgia. She is not yet diagnosed with Cushing's but has many symptoms and is seeing a Cushing's specialist at Emory University.

Updated Bio November 23, 2009
Elizabeth E (Beth)
is from Baltimore, Maryland. She has been sick for about 5 years. She was diagnosed with the start of cervical cancer so she had a LEEP done. Her cortisol was still high so she went to Johns Hopkins and an endo there diagnosed her with Cushing's in May of 2009. Her pituitary tumor was removed in June 2009. She updated her bio after her surgery at Johns Hopkins Bayview.

New Bio November 22, 2009
Heather (hramage)
is from Commerce, Georgia. She was recently diagnosed with a pituitary tumor and will have surgery with Dr. Nelson M. Oyesiku at Emory in Atlanta.

New Bio November 21, 2009
Cheryl (shadow)
is from Santa Rosa, California. She is testing for Cushing's and 9mm pituitary tumor was found after she had stroke-like symptoms 9 months ago.

New Bio November 21, 2009
Jen (Jen)
has cyclical adrenal Cushing's. She has lowered her cortisol and blood sugar by taking Holy Basil twice a day. She has been referred for adrenal surgery.

New Bio November 18, 2009
Kim (Kim 39)
is from Sierra Vista, Arizona. She has been diagnosed with pituitary Cushing's this year but has not yet had surgery.

New Bio November 17, 2009
Ele
is 17 and is testing for Cushing's.

Updated Bio November 16, 2009
Sherry C
updated her bio November 16, 2009. Her pituitary surgery was March 23, 2006. She has all the symptoms, moon face, buffalo hump, weight gain, acne but also very dry skin, nausea, depression, hair places it should not grow, fatigue, and much more. Her Second Pituitary surgery, did not work and she had a BLA November 7, 2006.

New Bio November 16, 2009
Angie (angie)
is from Cupar, United Kingdom. She was diagnosed with adrenal Cushing's in September, 2009 and her right adrenal has been removed.

New Bio November 15, 2009
Elizabeth (laurie31)
was recently diagnosed with "probable" Cushing's Syndrome due to Cortisone Toxicity. She was involved in a motor vehicle accident on April 5, 2006 then diagnosed with Vascular Thoracic Outlet Syndrome (nerve entrapment), bulging discs (cervical/ lumbar) and Degenerative Disc Disease shortly after.

New Bio November 12, 2009
Estela (Estrela)
is from Oxnard, California. She has been diagnosed with adrenal hyperplasia, PCOS, alopecia so far. An endo suggested Cushing's and she is planning to see Dr. Ted Friedman.

New Bio November 2, 2009
Patti's son
is from Beachwood, New Jersey. Her 9 year old son was recently diagnosed with Cushing's and is still testing.

New Bio October 29, 2009
Shontelle (shon)
is from Montreal, Canada. She is now 22 and first started having symptoms at 17. She recently learned that she has a pituitary tumor.

New Bio October 29, 2009
Joy (coztumegrl)
is from Newark, Delaware. She was first diagnosed with Cushing's in 1994 at the age of 14. She had had symptoms since she was 11. After pituitary surgery, she was also diagnosed with PCOS and had a recurrence of her Cushing's.

New Bio October 26, 2009
Dolores (80sQueen)
is from Dallas, Texas. An MRI shows a 2mm pituitary tumor. Her doctor looked at her labs and said that while she doesn't look like a typical Cushing's patient, he believes that she has Mild or Cyclic Cushing's.

New Bio October 23, 2009
Renata (Marisa)
is from St. Augustine, Florida. After years of symptoms, a 3.8cm tumor was found on her left adrenal gland. Her endo said that she did not fit in to the category of Cushing's or Addison's, or a Pheo. He told her that the tumor seemed to just be a lump and did nothing.

New Bio October 21, 2009
Adrienne (adrienne)
is from Gilbert, Arizona. She is not yet diagnosed with Cushing's but has been in and out of hospitals for the last 3 years with various issues. She has elevated cortisol levels and a small growth on her adrenal gland.

New Bio October 18, 2009
Oanh (one)
is from Portland, Oregon. he is not yet diagnosed with Cushing's but has many symptoms and has had a lot of tests over the years.

New Bio October 17, 2009
Laura (LauraNG)
is from Plymouth, Michigan. She has been struggling since 2007 with various odd things happening to her body. In March of 2009 she was diagnosed with Hashimoto's Disease and Hypothyroid. Her bio contains a long list of symptoms she has and she has been misdiagnosed with Obesity, Diabetes, Kidney stones, Depression, MS, Manic/Depressive, TIA, Anxiety - stress, Not exercising enough, Not eating properly, Abusive relationship (due to bruising).

New Bio October 15, 2009
April (April81)
is from Maysville, Kentucky. She is still being diagnosed but a small tumor was found on her pituitary gland. She has a one year old daughter.

New Bio October 14, 2009
Kristen H
is from Palmetto, Florida. She is 17 and has many Cushing's symptoms although she has not yet been diagnosed.

New Bio October 13, 2009
Melissa P (Missy33)
is from Kentucky. She is not yet diagnosed with Cushing's but has many symptoms.

New Bio October 13, 2009
Mara (mara)
is from Washington, DC. She is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with Diabetes and PCOS so far.

New Bio October 12, 2009
Angela (Jezibelle74)
is from Atlanta, Georgia. She is not yet diagnosed with Cushing's but has many symptoms and has done a lot of testing.

New Bio October 9, 2009
Cheryl (clground)
is from Temecula, California. Her 19 year daughter has been diagnosed with Cushing's Syndrome and is currently taking Ketoconozole. The doctor feels that she has familial Cushing's although there is no one else in the family diagnosed yet.

New Bio October 8, 2009
Ashley (Ashley)
is from Houston, Texas. She is not yet diagnosed with Cushing's but has many symptoms.

New Bio October 7, 2009
Pat (halfpint)
is from Winchester, England. She had her pituitary gland removed 5 years ago. She is testing for a recurrence.

New Bio October 7, 2009
Karita (Karita)
is from Ohio. She is not yet diagnosed with Cushing's but she has a diabetes diagnosis as well as an osteoporosis diagnosis. She is testing for Cushing.s

New Bio October 6, 2009
Joe C
and his wife Selva (joecasas) are from Denton, Texas. He is not yet diagnosed with Cushing's but he has many symptoms and has been diagnosed with diabetes.

New Bio October 3, 2009
Stephanie (PiccaPounce)
is from Tokyo, Japan. She is trying to figure out what is wrong with her while living in a foreign country. She indicated she has both adrenal and PCOS.

New Bio October 2, 2009
Webwalker (Webwalker2009)
is from Sheboygan, Wisconsin. His wife has had many medical issues over the years and has taken strong arthritis meds. An endo recently suggested testing for Cushing's.

New Bio October 1, 2009
Elvira (amor)
is from Kittchener, Canada. Her daughter's dietician thinks that Elvira's daughter has Cushing's but her family doctor doesn't agree.

New Bio October 1, 2009
Amanda (mandarae)
is from Murfreesboro, Tennessee. She is not yet diagnosed with Cushing's but has had a mystery illness for 5 years.

New Bio September 29, 2009
Amber (Hunter's Mom)
is from Walker, Iowa. Hunter has recently been diagnosed with Cushing's. His doctors tested him because he hasn't grown in nearly 3 years. His tumor is putting pressure on his optic nerve although his vision has not yet been affected.

New Bio September 29, 2009
Emily
is from Dunedin, Florida. She is not yet diagnosed with Cushing's but has been diagnosed with hypertension, PCOS and Hypothyroidism (which was later switched to Hashimoto's).

New Bio September 20, 2009
Kim (kadykim)
is from North Carolina. She is not yet diagnosed with Cushing's but she has many symptoms. A doctor first mentioned Cushing's to her.

New Bio September 19, 2009
Nadine (lvdesertrose)
is from Las Vegas, Nevada. She has had a recurrence of her pituitary Cushing's.

Updated Bio September 17, 2009
Cathy Tia
is from Wellington, New Zealand and had the left side of her pituitary gland removed and a BLA. Cathy has been through 2 cycles of IVF fertility treatment and the second one worked. She had a baby girl. Cathy updated her bio in September 2009. She has another new 5mm tumour on the right side of her pituitary gland. She has Nelsons Syndrome and Addison's after having both adrenals removed. They want to give her radiation and she's looking for suggestions.

Updated Bio September 14, 2009
Kim (lil dickens)
is from Greencastle, Pennsylvania. She is not yet diagnosed with Cushing's but has many symptoms. When she was a child she cracked her skull open. She is now in the process of testing after going through 2 more Endos and meeting a great Endo in Maysville, KY.

New Bio September 14, 2009
Jeanine
is from South Carolina. She thinks that her 8-year old daughter may have Cushing's. She has been on asthma maintenance medication for several years (pulmicort).

New Bio September 11, 2009
Robin (kegansmom)
is from Baltimore, Maryland. Her 19 year old son was diagnosed with a mass on his brain on 12/12/08. He had many issues after surgery. He is taking Kepra.

New Bio September 8, 2009
Michelle (michelle)
is from Denver, Colorado. She has been on and off steroids all her adult life. She now has a lump on her back and a huge abdomen. She wonders is this is because of the steroids or if something else is going on.

New Bio September 8, 2009
Jef's son
is 14. His pituitary adenoma was removed at Childrens Hospital of Boston. He had none of the classic symptoms of Cushing's except a lack of growth development.

New Bio September 4, 2009
Nancy G
is from Seattle, Washington. She is not yet diagnosed with Cushing's but has many symptoms. She will be making an appointment at Swedish as soon as she can.

New Bio August 31, 2009
Laurie P (LollyP)
is from Martinez, California. Her son was diagnosed with pituitary Cushing's in 2002, had surgery in May of that same year, and then in July, had additional surgery for hypoparathyroidism.

New Bio August 31, 2009
Robin (Robin)
is from Lakeland, Minnesota. She was diagnosed with adrenal Cushing's 16 years ago.

New Bio August 28, 2009
Jen (jennigan)
is from Sydney, Australia. She had pituitary surgery in November, 2008.

New Bio August 27, 2009
Tanja (Tanja Maria)
is from Roseville, California. Her endo suspects Cushing's and she is testing now. Her boss' father passed away 8/1/09 from complications due to Cushing's.

New Bio August 26, 2009
Fred & Julia
are from Nyack, New York. She just received a diagnosis for Cushing's on the left side of the pituitary gland.

New Bio August 25, 2009
Jon
is from Boise, Idaho. His first pituitary surgery was with an inexperienced surgeon. He took Ketokonozole until his second surgery at UC San Francisco June 2nd, 2009.

New Bio August 25, 2009
Amanda (AMANDA-O)
is from Colorado Springs, Colorado. She had a stroke at the age of 32. While in the hospital an adrenal tumor was discovered. Doctors think that Cushing's may have caused the stroke.

New Bio August 25, 2009
Amanda (Amanda)
is from Plant City, Florida. She is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with PCOS and is doing testing for Cushing's.

Updated Bio August 24, 2009
Michelle (ingledoo)
is from Richmond BC. She is not yet diagnosed but has an endo and is testing. She updated her bio after her recent cyclical pituitary diagnosis

New Bio August 22, 2009
Kyle (Kyle)
is from Williston, North Dakota. Kyle is not yet diagnosed but has many symptoms.

New Bio August 19, 2009
Trinity (trinity9058)
is from Springfield, Missouri. She is not yet diagnosed with Cushing's but started showing symptoms when she was sixteen.

New Bio August 19, 2009
Kerri (KerriAnn)
is from Pittsburgh, Pennsylvania. She is not yet diagnosed with Cushing's but her PCP has referred her to an endo because she has elevated cortisol.

New Bio August 19, 2009
Valencia (valjac49)
is from Lumberton, New Jersey. She is not yet diagnosed with Cushing's but has many symptoms. She is on 14 different medications for diabetes, hypertension, depression, and arthritis in her back

New Bio August 18, 2009
Marisol (Marisol)
is from Naples, Florida. She has many symptoms of Cushing's but is not yet diagnosed.

New Bio August 17, 2009
Melinda (Texas51)
is from Woodbridge, Virginia. She is not yet diagnosed with Cushing's but has many symptoms. She saw Kate's show on the "The Science Of Obesity".

New Bio August 13, 2009
Ashley
is from Mesa, Arizona. She is not yet diagnosed with Cushing's but has many symptoms. She will get the results of her 16 tests soon.

New Bio August 12, 2009
Constanza (Coni)
is from East Boston, Massachusetts. She has had a recurrence and will have radiation.

New Bio August 10, 2009
Grace C (graciec)
is from Fort Worth, Texas. She is not yet diagnosed with Cushing's but has many symptoms. She has been accepted to medical school but has had to postpone this due to her Cushing's symptoms.

New Bio August 7, 2009
Ann F
is from Liverpool, England. She is not yet diagnosed with Cushing's but she has many symptoms. A doctor suggested she be tested for Cushing's but her own GP refused.

New Bio August 6, 2009
Elizabeth
is from Willowick, Ohio. She is not yet diagnosed with Cushing's but her doctor thinks she has adrenal Cushing's.

New Bio August 5, 2009
Sharon (grammy2kenzi)
is from Carrolton, Georgia. She had a radical bi-lateral adrenalectomy in 1985 and still has Cushing's symptoms. She continues to have severe adrenal crisis every year.

New Bio August 5, 2009
Susan
is from Saskatoon, Canada. She is not yet diagnosed with Cushing's but an adrenal CT scan showed a left adrenal tumor. She is still testing

New Bio August 4, 2009
Jaimie
is from Willard, Missouri. She is not yet diagnosed with Cushing's but has many symptoms and has a fibromyalgia diagnosis.

New Bio August 4, 2009
Rachel
is from Massachusetts. She diagnosed herself with Cushing's after reading all the available information. She is waiting to have her pituitary tumor removed.

New Bio July 31, 2009
Karen S (karlas202)
is from Birmingham, Alabama. In 1991 she was diagnosed with a brain tumor on her cerebellum--it was benign and partially removed. She has many Cushing's symptoms.

New Bio July 30, 2009
Jamie (jamieofGa)
is from Carrolton, Georgia. Jamie was diagnosed with Cushing's in 2003 and had her pituitary microadenoma removed. She has had a recurrence and stereotactic radiation.

New Bio July 25, 2009
Chrissy (dreamchasers)
is from Lafayette, Louisiana. She is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with Dysautonomia and POTS.

New Bio July 22, 2009
Laura (LauraG)
is from Christchurch, New Zealand. She is not yet diagnosed with Cushing's but has many symptoms. She was diagnosed with PCOS and a very high mercury toxicity so far.

New Bio July 21, 2009
Becca
is from Phoenix, Arizona. She is not yet diagnosed with Cushing's but has many symptoms. Her pituitary MRI revealed an adenoma, so now she just needs another high cortisol and Dr. Friedman says she can be diagnosed.

New Bio July 20, 2009
Emily (emilymargaretcatherine)
is from Wildwood, New Jersey. She was scheduled for pituitary surgery March 11, 2009 but the surgeon through that her rumor was ambiguous so her surgery was rescheduled for April 29, 2009 and was successful.

Updated Bio July 18, 2009
Steve
is from Myrtle Beach, South Carolina. He had transphenoidal surgery on Feb. 7, 2004 at UVa with Dr. Laws. Steve updated his bio in July, 2009 after being in remission for almost 5 years. His doctor is recommending Gamma Knife.

New Bio July 17, 2009
Elizabeth E (Beth)
is from Baltimore, Maryland. She has been sick for about 5 years. She was diagnosed with the start of cervical cancer so she had a LEEP done. Her cortisol was still high so she went to Johns Hopkins and an endo there diagnosed her with Cushing's in May of 2009. Her pituitary tumor was removed in June 2009.

New Bio July 17, 2009
Melissa (Melissa)
is from Derby, New York. She never hears anything about Cushing's until her doctor suggested she might have it. Her initial 24 hour cortisol was normal but she has many symptoms and will see an endocrinologist soon.

New Bio July 15, 2009
Tabatha
is from Woodbridge, Virginia. She was told earlier this month that she may have Cushing's. She has had many different symptoms over the years.

New Bio July 14, 2009
justbcuz (LarryN)
is from Nevada. He has had multiple medical problems since 1983. In April 2007 he underwent brain surgery to remove a lesion from the left occipital lobe which was found to be benign. He is now checking into his many symptoms which could be Cushing's.

New Bio July 13, 2009
Cai (caiguise)
is from Ames, Iowa. She has been sent to an endocrinologist because the internalist noted strong clinical signs of Cushing's, but she have not had positive results on tests. Cai has many Cushing's symptoms.

New Bio July 13, 2009
Erica (Ericaop)
is from Lithonia, Georgia. She is not yet diagnosed with Cushing's but she has been treated for symptoms of PCOS and was suspected of having metabolic syndrome (syndrome X) that was ruled out. She saw Mystery Diagnosis and thinks she has Cushing's so she called that Pituitary Center at Emory University Hospital in Atlanta.

New Bio July 10, 2009
Christine (Christine)
is from Wakefield, England. She has been testing since September 2008 and still doesn't have a final diagnosis. She has questions about her midnight blood draw.

New Bio July 9, 2009
lmn1220 (lmn1220)
is from Pennsylvania. She recently had her pituitary tumor removed at the Cleveland Clinic.

New Bio July 8, 2009
Brenda
has had Cushing's for two years. She has been to Mayo Clinic four times in the last two years, and just recently was accepted and seen at the National Institute of Health's Rare Disease Program in Bethesda, Maryland.

New Bio July 8, 2009
Mary (Mary)
is from Beaverton, Oregon. She has had three transphenoidal surgeries for Cushing's and a BLA.

New Bio July 2, 2009
Shirley (Shirley)
is from Tauranga, New Zealand. She had pituitary surgery in August 2008 after years of illness, weight gain, depression, etc. She is off all meds bus is still tired and sore.

New Bio July 6, 2009
Shon (Shon)
is from El Reno, Oklahoma. Two months before her 31st birthday, she was diagnosed with diabetes. She has many Cushing's symptoms and will test for Cushing's in early August.

Updated Bio July 2, 2009
Cynthia (cmo)
is from San Francisco, CA. She updated her bio in May 2009 after an MRI showed a pituitary tumor. She was finally diagnosed with ACTH Dependent Cyclical Cushing's after all these years of problems. Her Endo is looking at MEN1 also. This bio includes pictures.

New Bio July 1, 2009
Amber (AmberP)
is from Martinsburg, West Virginia. Several doctors have told her that she most likely has Cushing's but after testing say she has PCOS. She has taken meds for PCOS and doesn't feel any better so she is still testing for Cushing's. She has has many symptoms for at least 15 years.

New Bio June 29, 2009
Dina (Dina G)
is from Newington, Connecticut. She was diagnosed with Cushing's in November 2008 and just had pituitary tumor removed on June 3rd 2009. She is weaning off steroids now.

New Bio June 29, 2009
Melissa (Melissa G)
is from Evans, New York. She is not yet diagnosed with Cushing's but has many symptoms. She has an appointment with an endocrinologist on July 29 and she is undergoing more testing.

New Bio June 29, 2009
Angela (AngelaK)
is from Howell, Michigan. She had gastric bypass surgery in December 2006. As more symptoms showed up her PCP treated them individually. A recent MRI shows a pituitary tumor and she is consultation with a neurosurgeon at the University of Michigan who only does pituitary operations (2000+).

New Bio June 28, 2009
Aly (Aly H)
is from Poughquag, New York. She has been dealing with Cushing's for the past 4 years and has seen at least 10 different doctors. She recently had her Petrosal Sinus Sampling and hopes to have pituitary surgery soon.

New Bio June 27, 2009
Katie
is from St Augustine, Florida. She is not yet diagnosed with Cushing's but has many symptoms. her cortisol level is elevated and she is undergoing more testing.

New Bio June 26, 2009
Beth (bounceback01)
is from Lexington, Kentucky. She is not yet diagnosed but her endo is pretty sure she has Cushing's and they're discussion treatment options.

New Bio June 24, 2009
Robert (Robert)
is from Portland, Oregon. He had pituitary surgery about 18 months ago and his symptoms are returning. He is not happy about starting testing again.

New Bio June 22, 2009
Leah (cushiemom4)
is from Goodlettsville, Tennessee. She had adrenal surgery August 8, 2009 and is now pregnant. She was diagnosed partly due to Mystery Diagnosis.

New Bio June 21, 2009
Kim (Kim K)
is from Olathe, Kansas. Her story started about 7 years ago. A resident did a CT scan and saw that her left adrenal was enlarged 4 years ago but didn't report it. 2 years ago she was diagnosed with severe heart disease. Kim has 2 stents and ended up in January with Congestive Heart Failure. A recent CT scan shows that her left adrenal gland is nodular and she is trying to find a new endo.

New Bio June 21, 2009
Anita (Anita)
is from Middletown, Delaware. She has been trying for 2 1/2 years to get a good diagnosis. She went to the Mayo clinic last fall and was seen by one Endocrinologist who was sure she had Cushing's. He felt that since my cortisol levels were not high enough that she may have Cyclical Cushing's. She will retest in August to see if her pituitary tumor has grown.

New Bio June 21, 2009
Michelle (Michelle)
is from Fayetteville, Pennsylvania. In April 2009 she was diagnosed with Congestive Heart Failure (CHF), one week later Diabetes, and one week later Cushing's. Her pituitary tumor was located by NIH (the National Institutes of Health).

New Bio June 18, 2009
Patricia (Patricia Hallam)
is from Cresco, Pennsylvania. She had gastric bypass surgery called a Biliary Pancreatic Diversion with Duodenal Diversion or BPD/ DS for short on Oct. 1, 2002. On June 16th 2009 she was diagnosed with adrenal Cushing's. She is scheduled to see an excellent Laprascopic Surgeon.

New Bio June 16, 2009
Elaine
is from Chelmsford, Massachusetts. She thinks that Cushing's is the answer to her health concerns for the past 27 years. She is just starting on her journey.

Updated Bio June 16, 2009
Sherry C
completely redid her bio June 16, 2009. Her pituitary surgery was March 23, 2006. She has all the symptoms, moon face, buffalo hump, weight gain, acne but also very dry skin, nausea, depression, hair places it should not grow, fatigue, and much more. Her Second Pituitary surgery, did not work and she had a BLA November 7, 2006.

New Bio June 14, 2009
Gail (RAMBOETTE)
is from Saluda, North Carolina. She was diagnosed with adrenal Cushing's in February 1009 and had a BLA April 10, 2009.

New Bio June 13, 2009
Tanya W
is from Buffalo, New York. She has had symptoms of Cushing's for the last 8 years and her endocrinologist has just given her the diagnosis. She is testing to determine the type of Cushing's.

New Bio June 12, 2009
Lianne (Kiwilady)
is from New Zealand. She is not yet diagnosed with Cushing's but has many symptoms.

New Bio June 9, 2009
Lor
is from Minnesota. She was diagnosed with pituitary Cushing's in May of 2009. She had symptoms for two years.

New Bio June 8, 2009
Joslyn (Joslyn)
is from Harrisburg, Pennsylvania. She was diagnosed this month with adrenal Cushing's Syndrome and will have surgery July 6, 2009. She will be interviewed in the Cushings Help Voice Chat / Podcast series after her surgery.

New Bio June 6, 2009
Verla (verlamom)
is from Bellwood, Nebraska. Her daughter has many symptoms of Cushing's. She has asthma and has used an inhaler. She also has had 4 back surgeries with 2 of them being fusions, diagnosed with PCOS with emergency surgery for a huge cyst which ruptured as they opened her abdomen and hysterectomy for endometriosis.

Updated Bio June 3, 2009
Fiona
is from Lydford, UK. She was first diagnosed in 1990 after a year of tests and years of symptoms. About 3 or 4 years ago her symptoms started returning. It appears that she has a recurrence after 18 years.

Updated Bio June 2, 2009
Jennifer (JWOLF74)
is from Connecticut. She was diagnosed with PCOS about 10 years ago and had gastric bypass surgery 7 years ago. She is currently testing high and has been referred to a new endo.

New Bio June 1, 2009
Jessa (Jessa)
is from Bathurst, St. John, Canada. She is not yet diagnosed with Cushing's but has many symptoms. Her cortisol level is now at 4200. She is waiting for a catscan to check for a pituitary tumor.

New Bio May 29, 2009
Lynn (Lynn)
is from Bend (OR). Lynn had a left adrenalectomy in 2000. In 2004 Lynn had a Thyroidectomy due to tumor which was malignant on the biopsy, yet benign at surgery. In May 2009 she learned she had a 3mm anterior pituitary tumor. She is a patient of Dr Ted Friedman.

Lynn was a guest in a Live Interview in the Cushings Help Voice Chat / Podcast series. Listen here, through our podcast page or on iTunes (search for "Cushie Chats").

Updated Bio May 29, 2009
Cynthia (cmo)
is from San Francisco, CA. She updated her bio in May 2009 after an MRI showed a pituitary tumor. She has an inferior sinus sampling set up for early June to see if the tumor is really there and is the cause of all these years of problems. Her Endo is looking at MEN1 also. This bio includes pictures.

New Bio May 29, 2009
Fiona
is from Lydford, UK. She was first diagnosed in 1990 after a year of tests and years of symptoms. About 3 or 4 years ago her symptoms started returning. It appears that she has a recurrence after 18 years.

New Bio May 27, 2009
Naira (nairav323)
is from Montebello, California. She has just been diagnosed with PCOS and is waiting to find out if she has Cushing's.

New Bio May 27, 2009
Evin (Evin)
is from Twin Falls, Idaho. She recently saw a rheumatologist who things she has Cushing's from an adrenal gland tumor. She has many Cushing's symptoms and is trying some self help therapies.

New Bio May 22, 2009
Cindy
is from New Port Richey, Florida. She was first diagnosed with Cushing's disease in January 2002. She had a recurrence and second transphenoidal surgery in February 2006. She has another recurrence and is thinking about a BLA.

New Bio May 21, 2009
Dee (DeeO)
is from Australia. Her daughter has a prolactinoma and Dee is wondering if she could have Cushing's.

New Bio May 21, 2009
Dara (Arkham69)
is from Limerick, Ireland. She is recently diagnosed with Cushing's and also has fibromyalgia.

New Bio May 16, 2009
Melanie (Melanie W)
is from Oklahoma. She has many Cushing's symptoms and has been diagnosed with PCOS and mild hypothyroidism so far.

New Bio May 15, 2009
Shirley (SBett)
is from Ronan, Montana. After 6 years her doctor finally found a pituitary tumor on an MRI. She is testing and has high cortisol and growth hormone.

New Bio May 13, 2009
Jodi (Jodi)
is from Rochester, Michigan. She had surgery to remove half her pituitary. She is now having issues with adrenal insufficiency.

New Bio May 12, 2009
angelp (angelp)
is from London, England. She had her first pituitary surgery in January 2009 and a second in March 2009. She will have an adrenalectomy and radiotherapy to remove the rest of her pituitary tumor.

New Bio May 11, 2009
Sue (Sue)
is from Lombard, Illinois. She has many Cushing's symptoms and her cortisol levels are very high but the source of her Cushing's hasn't been found yet.

New Bio May 10, 2009
Kate (kate22)
is from Richmond, Virginia. She is not yet diagnosed with Cushing's but she is testing. She has many Cushing's symptoms.

New Bio May 10, 2009
Angie (dermpat)
is from Melbourne, Australia. She is not yet diagnosed with Cushing's but is testing for cyclic Cushing's.

New Bio May 10, 2009
Vanessa
is from Phoenix, Arizona. She has recently been diagnosed with a pituitary tumor and is looking for an endo.

New Bio May 10, 2009
Rachael (RachaelB)
is from Charlotte, North Carolina. She was recently diagnosed with Cushing's and will be having her pituitary tumor removed in August.

New Bio May 4, 2009
Shiloh (Shiloh)
is from Fort Collins, Colorado. She is not formally diagnosed. She is trying to manage her symptoms with healthy eating, massage and acupuncture.

New Bio May 3, 2009
Luisa (Luisa)
is from Knoxville, Tennessee. She was originally misdiagnosed with PCOS and is testing for Cushing's currently.

New Bio May 1, 2009
Song
is temporarily outside of U.S.A. She is not yet diagnosed. Someone at a party saw her buffalo hump and asked is she knew about Cushing's. Her own research says she might have this and testing shows elevated cortisol.

New Bio May 1, 2009
Alisha (gbsawyer)
is from Kirksville, Missouri. She is not yet diagnosed but has many symptoms and is seeing a new endo.

New Bio April 30, 2009
Lulu
is from Corona, California. She had transnasal surgery 10/2007 and stereotactic surgery 8/2008. Both surgeries have failed. She tried Ketoconozole for a month and ended up in the hospital because the medication was affecting her liver. She is currently doing nothing for her Cushing's.

New Bio April 29, 2009
Melissa (meltizzle)
is from Santa Fe Springs, California. She was recently diagnosed with Cushing's and thinks she had it since 2007.

New Bio April 29, 2009
Aly
is from Arizona. She has had diabetes for 18 years and is a brand new mom. About two years ago she started getting Cushing's symptoms and is scheduling adrenal surgery.

New Bio April 27, 2009
Patty (pattycakes)
is from Cincinnati, Ohio. She has many Cushing's symptoms but doctors are calling her pituitary tumor a Rathke Cleft cyst so she is still trying to get answers.

New Bio April 24, 2009
McCall (McKenzie)
is from Fairfax, Virginia. She was diagnosed with central adrenal insufficiency after an ITT (Insulin Tolerance Test) and is taking 15mg of Hydrocortisone a day for the ACTH replacement therapy. She is wondering if it is possible to have both adrenal insufficiency AND Cushing's.

New Bio April 22, 2009
Kirsty (kirstymnz)
is from Hamilton, New Zealand. Her doctors couldn't find the source of her ectopic Cushing's. She had a lung nodule but removal didn't help so she had a BLA (bilateral adrenalectomy).

New Bio April 22, 2009
Jeff (akflier)
is from Palmer, Alaska. He was diagnosed with pituitary Cushing's in July 2008 and had surgery in August 2008.

New Bio April 18, 2009
Anne (kittiefoster)
is from San Lorenzo, California. She is not yet been diagnosed but has had multiple symptoms of Cushing's for years. She will see an endocrinologist on May 15.

New Bio April 10, 2009
Debi (debkelly)
is from Palmdale, California. She is not yet diagnosed but has a lot of symptoms.

New Bio April 6, 2009
Betty (bettyd)
is from Cedar Hill, Missouri. Her daughter has been in the diagnostic process of Cushings for several months. It was also suggested that she might have "cyclic" Cushings.

New Bio April 6, 2009
Yol
is from Toronto, Canada. Her 12 year old daughter is going through Cushing's testing.

New Bio April 1, 2009
Sandra (sandra b.)
is from Hammond, Louisiana. She had Cushing's in 2002 and is still affected by high cortisol levels. She had surgery to remove an adreno cortical carcinoma.

New Bio March 30, 2009
Tami (TamiinGA)
is from Calhoun, Georgia. In May of 2008 she was diagnosed with 2 tumors on her left adrenal gland. She is on her 4th endo who just recently diganosed her with Cushing's.

New Bio March 26, 2009
Lisa Lee
is from Swansea, Wales, UK. She was brought up a boy because of a rare medical condition called ‘congenital adrenal hyperplasia’ (CAH).

New Bio March 26, 2009
Jada (Jada71)
is from Baton Rouge, Louisiana. She has been diagnosed with pituitary Cushing's and has been to see Dr Ludlam. A local endo told her: "You don't have Cushing's Disease, you have psuedo- Cushing's caused by insulin resistance." Jada asked how he knew this and he replied, "Because it's too rare and too hard to diagnose."

New Bio March 25, 2009
Leslie
is from Chislehurst, Kent, United Kingdom. She was diagnosed with an adrenal tumour 15 months ago, then eventually diagnosed with Cushings and the adrenal gland and tumour were removed in July 2008. The other adrenal gland was found to be not functioning and she now hydrocortisone dependant and classified with secondary addisons. She suffers from various Cushing's problems.

Updated Bio March 24
Elisabeth (eals)
is from Nanaimo, Canada. She updated her bio after pituitary surgery with Dr. Akagami at Vancouver Regional General Hospital on March 3, 2009

New Bio March 20, 2009
Jennifer (JWOLF74)
is from Connecticut. She was diagnosed with PCOS about 10 years ago and had gastric bypass surgery 7 years ago. She is currently testing high and has been referred to a new endo.

New Bio March 16, 2009
Christina (happygirl)
is from West Point, UT. She was diagnosed March 2009 with a pituitary source of her Cushing's Disease.

New Bio March 14, 2009
cris (cris)
is from Michigan. She has finally been diagnosed with pituitary Cushing's after more than 20 years of trying to find out what's wrong. She has also been diagnosed with Hashimoto's Thyroiditis; Unstable Hypothyroidism;Hyperparathyroidism; Hypocalcemia; Severe D (hormone) deficiency; Adult GH Deficiency and Pituitary Tumor in MRI 2009.

New Bio March 12, 2009
Xchicagoan (xchicagoan
) is from Huntersville, North Carolina. She is not yet diagnosed with Cushing's but has many symptoms including Adrenal Hyperplasia and thyroid issues.

New Bio March 11, 2009
Maryanne
is from Sidney, BC, Canada (Vancouver Island). She has tumors on each adrenal gland and an MRI showed a 2 mm pituitary tumor. She is taking Ketoconazole until surgery

New Bio March 9, 2009
Jen (AuntieNoWay
) is from Seattle, WA. All it took was one blood test and she was diagnosed. I had a tumor on her left adrenal gland that was causing her left adrenal gland to over produce the hormone cortisol. She was diagnosed but they waited 2 months to get her in for surgery and during that time her weight jumped dramatically from 180Lbs to 239Lbs and she was sicker than ever.

New Bio March 7, 2009
Gail (dolly)
is from San Rafael, CA. She had her pituitary tumor removed in 1988, then her pituitary was removed. In 2003 her adrenals were removed and now she may have Nelson's Syndrome.

New Bio March 7, 2009
LaDawn (NanaX3)
is from Huntsville, TN. She has been terribly ill for 17 months with adrenal insufficiency and a prolactinoma. Over the years she has also been diagnosed with been diagnosed for years, Fibromyalgia, IBS, Sleep Apnea, Insomnia, hypertension, hypotension, digestive disorders, and early pancreatitis.

New Bio March 6, 2009
Stephanie (steph)
is from Wimberley, Texas. About 2 and a half to 3 yrs ago, she was being treated for a condition called Reflex Sympathetic dystrophy. She was injected with steroids and was found to have Cushing's. She still has some of the symptoms of Cushing's even though she has been cured.

New Bio March 5, 2009
Jenny
is from Calgary, Alberta, Canada. She is not yet diagnosed with Cushing's but from her research she believes that she has pituitary Cushing's.

New Bio March 2, 2009
Barry
is from San Francisco, California. He is not diagnosed with Cushing's but was just diagnosed with (ICSR) Idiopathic Central Serous Retinopathy.

New Bio February 25, 2009
Brenda (Juneau)
has had pituitary surgery. They took out most of the pituitary but couldn't safely remove it all. The remaining portion has a tumor. She will have a BLA soon.

New Bio February 24, 2009
Christina (chris1228)
is from Manchester, Connecticut. She was suspected of having a growth hormone deficiency when she was a child but she didn't get the injections. She now has many symptoms of Cushing's and saliva testing shows an adrenal problem.

New Bio February 22, 2009
Joe (Joe)
is from Fredonia, New York. he had adrenal gland surgery June 5,2005. He just recently weaned off cortisone and is currently on disability retirement.

Updated Bio February 22, 2009
Joselle (Jo)
is from Fredonia, New York. Although she didn't present as a typical Cushie, a doctor gave her a cortisol suppression test and she was diagnosed with a pituitary tumor. Joselle was the subject of a Live Interview in the Cushing's Help Voice Chat / Podcast series. Archives are available. Joselle was the subject of a newspaper article February 22, 2009.

New Bio February 19, 2009
Frank (franbony)
is from New York. After 2 years of know knowing what was happening, she started testing and is on the long road to finding out what is wrong.

New Bio February 18, 2009
Shawna (cushings in colorado)
is from Ft Collins, Colorado. She had robotic surgery July 19, 2007 to remove her adrenal gland. She lost 80 pounds in 5 months.

New Bio February 17, 2009
Amber (AmberC)
is from Pittsburgh, Pennsylvania. The diagnosis of Cushing's due to a pituitary adenoma was made after MRI in June of 2007. Her first surgery was in September of 2007. She is now seeking the advice of a specialist to help get pregnant and have a baby before going back for her fifth surgery!

New Bio February 16, 2009
Sandy (jsdewys)
is from Holland, Michigan. She was diagnosed with steroid-induced Cushing's and has many symptoms.

New Bio February 13, 2009
Lori (Frog)
is from Longmont, Colorado. She was diagnosed with Cushing's Syndrome in December 2008 but despite all the testing, her doctors have yet to locate the source.

New Bio February 11, 2009
Lori
is from Chester, South Dakota. She is not yet diagnosed with Cushing's but has had fibromyalgia for 6 years.

Updated Bio February 9, 2009
Heike (PeeQueen)
is from Tallahassee, Florida. Heike has decided to go through another, third, transsphenoidal surgery scheduled for August 22, 2006. Her second pituitary surgery was June 28, 2006. It was not successful and she had to choose between a bilateral adrenalectomy or stereotactic radiation. Her first surgery was in Hamburg, Germany 13 years ago and was exploratory. She developed Diabetes Insipidus after her third surgery. She has added pictures to her bio. Heike updated her bio again after starting on Synthroid for thyroid issues.

New Bio February 8, 2009
Lorrie (lorrie)
is from St Louis, Missouri. She is not yet diagnosed with Cushing's but she has had many symptoms and is testing.

New Bio February 6, 2009
Melody (Melody73)
is from California. She is a newly diagnosed Cushing's patient but she doesn't yet know the origin. She has had a pituitary MRI and is awaiting the results.

Updated Bio February 5, 2009
Coleen (EyeRishGrl)
is from Philadelphia, Pennsylvania. She has pituitary Cushing's and PCOS. Coleen updated her bio in February 2009 after her pituitary surgery. She has secondary adrenal insufficiency (Addison's disease) now.

New Bio February 3, 2009
Melesa
is from Chapleau, Canada. Her 23 year old daughter is being tested for Cushing's and she Melesa doesn't know what to expect.

New Bio February 2, 2009
Heather (HeatherKY)
is from Kentucky. In 2002, she developed a case of Bell's Palsy and was put on prednisone. In December 2008, after many years of feeling hopeless and alone, she was diagnosed with cyclical Cushing's Disease caused by a pituitary tumor. Transphenoidal pituitary surgery has been scheduled for February 2009.

New Bio February 1, 2009
Tammie (makeitgreen)
is from Hemet, California. She has been diagnosed with PCOS and has taken glucophage and clomid. She is still not feeling well and is seeking a diagnosis to help with her many symptoms. She will be the guest speaker in an interview February 26, 2009.

New Bio January 30, 2009
Michelle (Map820)
is from Brookfield, Connecticut. She is not yet diagnosed with Cushing's but she has many symptoms.

New Bio January 30, 2009
Ellen (esg31)
is from Wilmington, Delaware. Her son has been struggling for almost a year with unexplained physical and psychological symptoms. He has been tested for thyroid issues, Cushing's and pheochromocytoma.

New Bio January 28, 2009
Michele (blakeanddbrycemom)
is from Wentzville, Missouri. She has suffered from a variety of mysterious symptoms including hydrocephalus. Two MRIs show a abnormal pituitary and a meningioma.

New Bio January 27, 2009
Michelle
is from Hamilton, New Zealand. She was diagnosed with Cushings Disease when she was 21. She had a recurrence 3 years later. Her ACTH levels are high again.

New Bio January 25, 2009
Gina (ginapooh1969)
is from Franklin, Massachusetts. She isn't sure if she has Cushing's but has many symptoms and a pituitary tumor.

New Bio January 24, 2009
Sarah (saskgurl26)
is from Biggar, Saskatchewan, Canada. She was originally diagnosed with PCOS but doctors found what they thought was a prolactinoma. She was finally diagnosed with Cushing's and had pituitary surgery November 12, 2008.

New Bio January 22, 2009
Sara (SaraR)
is from Birmingham, Alabama. She is not yet diagnosed bus has been suffering from Cushing's symptoms for over 2 years.

New Bio January 19, 2009
Harley (HBW)
is from Sturgis, South Dakota. He has Addison's Disease and a pituitary tumor. He has steroid induced Cushing's.

New Bio January 19, 2009
Gerri (Gerri)
is from Kitchener, Ontario, Canada. She has a non-cancerous cyst 1.38 cm on her adrenal gland. She has been diagnosed with 44 illnesses - so far.

New Bio January 16, 2009
Rebecca (preacherteacher)
is from Madison, Alabama. She is not yet diagnosed with Cushing's but has many symptoms and is testing.

New Bio January 15, 2009
Susan (susan911)
is from Dedham, Massachusetts. She is not yet been diagnosed with Cushing's but has many symptoms and a 1.1 cm adrenal adenoma

New Bio January 12, 2009
Kristen (ricepudding1)
is from Monroe, Washington. She was diagnosed 6 years ago and has had pituitary surgery and gamma knife without success. She has been taking Ketoconozole. Adrenal adenomas have been recently discovered.

New Bio January 12, 2009
Elaine
is from Goffstown, New Hampshire. She has both pituitary and adrenal tumors so her doctors don't know which is secreting the cortisol.

New Bio January 12, 2009
Tina (tinadianne)
is from Beaumont, Texas. She is not yet diagnosed with Cushing's but has many symptoms and is testing.

New Bio January 10, 2009
Kim S (lil dickens)
is from Greencastle, Pennsylvania. She is not yet diagnosed with Cushing's but has many symptoms. When she was a child she cracked her skull open.

New Bio January 8, 2009
Tina (Tina)
is from Lufkin, Texas. She has ectopic Cushing's. Her CT Scan picked up a very small lesion in her lung and the octreotide scan picked up one in her adrenal gland.

New Bio January 7, 2009
Lori (MSdawg)
is from Evans, Georgia. She has been diagnosed with Cushing's Disease (pituitary tumor) after after having symptoms for at least 7 years .

Updated Bio January 7, 2009
Katie (kvb927)
is from Philadelphia, Pennsylvania. She updated her bio one week after successful pituitary surgery. Katie had a number of diagnoses - panic disorder, major depression, bipolar disorder, hypothalamic amenorrhea, female hypogonadism, and pituitary adenoma. Her abnormal hormones are low FSH, LH, estradiol, insulin, and free T4. Imaging found a 2 mm. adenoma on her right pituitary and an 11 mm. pineal cyst.

New Bio January 7, 2009
Joanne (Josie426)
is from Pennsylvania. She has taken steroids for asthma and her endo thinks damage has been done to her pituitary because of sinus surgery.

New Bio January 5, 2009
Randy (burrman)
is from Portland, Maine. He is not yet diagnosed with Cushing's. He saw a news item on Fox News and he thinks his symptoms match Cushing's.

New Bio January 1, 2009
Dina (Dina)
is from Newington, Connecticut. She has recently been diagnosed with Cushing's Disease and plans to have her pituitary tumor removed in the summer.

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