Sunday, April 5, 2009

Yol, mother of possible Cushing's Patient

I am a mother to a 12 year old. My daughter Jules, is going through testing for cushing which is what her pediatrician/ endocrinoligist seems to believe that she may have.

I am frustrated because to weeks ago today we sumbitted her 24 hour urine samples and they still do not have the results???

Julia has been putting on weigh almost weekly for the past few months, she has developed stretch marks on her thighs, she has complained about headaches, has been missing periods, apparently she has high pressure as well.

Our largest issue is that she has a very high tolerance for pain. I don't know what else to do. In my heart I have known for a while that something is wrong, yet no one took us seriously.

Any suggestions on what we should do to expedite testing? Is an endocrinologist the only one who deals with Cushings? I am open to any advise. Is there any testing we could perhaps do privately?

Many thanks,

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Tuesday, February 3, 2009

Melesa, undiagnosed bio

Hi My name is Melesa and i am looking for some information or advice on cushing's.

I have a 23 year-old daughter who is being tested for this desease or sydrome and i am wondering what i am to expect while she is going thruogh her testing,also if she is diagnose with this what can i expect.

Thank- you to anybody who can help me out with this.

Email Melesa

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Friday, November 7, 2008

Lindsay (mamaleeisme), undiagnosed bio

My name is Lindsay and I found this site in an attempt to figure out what is wrong with my six year old daughter.

I came across Cushings and I am sure that this is what she has. She is 101 lbs and has gained 40 lbs of that in the last 6 months. She has a round (completely circular) face, a significant buffalo hump, her midsection is much larger than her arms or legs, she has behavioral, social and learning disablilities.

My husband's cousin had a pituitary tumor that caused cushings and while I know that cushings is not usually genetic, it is the only thing that I have found that could cause all these things. The endocrinologists that we have seen have been less than helpful and they don't even seem concerned. I am so frustrated and I hope that maybe I can find some help on here.

Email Lindsay

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