Saturday, May 3, 2008

New and Updated Bios

In Memory April 21
Natalie Fay We will miss you always...



New Bio May 3
Cindy (ckelly37) is from Bensalem, Pennsylvania. She is not yet diagnosed with Cushing's but she is testing. She already has hypothyroidism.

New Bio May 2
Jackie (samsmom) is from Snohomish, Washington. She first started dealing with Cushing's in her family when her youngest child was born in 1999. Jackie and Sam were featured on a Discovery Health episode called Mystery Diagnosis. Later, the gene responsible for Sam's illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie's oldest daughter, has recently had her adrenals removed. Jackie and Jordan will be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series May 15, 7:30 The topic is Cushing's in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Archives will be available after the chat.

New Bio April 30
Kathy B (kathybair) is from Kauneonga Lake, New York. She is not yet diagnosed with Cushing's but has many symptoms. Doctors have told her she has possible fibromyalgia, chronic fatigue, depression, stress, and has been called a hypochondriac like many of us.

New Bio April 30
Kathleen (irishlass) is from Wisconsin. She had a transphenoidal pituitary resection December 5, 2007. A recent MRI revealed a good portion of the tumor remains.

New Bio April 28
Bridgette is from Tucson, Arizona. She is not yet diagnosed with Cushing's but thinks that she may have it. She is looking for doctors to do testing in her area.

New Bio April 27
Tiffany (engagedsenior) is from Ellwood City, Pennsylvania. She is not yet diagnosed with Cushing's but she has a prolactinoma and takes Bromocriptine. She also has five different blood disorders.

New Bio April 27
Lily (lilyalex) is from Montreal, Canada, Quebec. She has had Cushing's symptoms since 2002 but has not been diagnosed with Cushing's.

New Bio April 27
Kathi (Kathim) is from Palm Desert, California. She was diagnosed with Iatrogenic Cushing's in 1997.

New Bio April 27
Jennifer S (Jenni) is from Tallahassee, Florida. She is tentatively diagnosed with Cushing's. She will be going to Houston soon for petrosal sinus sampling and surgery, if indicated.

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posted by MaryO at 3:02 PM 0 Comments

Monday, April 21, 2008

New and Updated Bios

New Bio April 21

Leslie is from Newark, Ohio. She had a pituitary tumor removed at the University Of Michigan. She has had a recurrence and has had Gamma Knife Radiation April 3, 2008. She may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series.

New Bio April 21

Pat H (PatHidy) is from Plattsburg, Missouri. She has had many years of misdiagnoses and mistreatments and she feels she has had her "problem" for most of her 67 years. She has finally been diagnosed with idiopathic adrenal hyperplasia.


Updated Bio April 21

Nancy H is from Cleveland, OH. She had a transphenoidal adenomectomy in June 2003. She updated her bio five years post op when she learned that her little pug was with a pituitary tumor and Cushing's.

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posted by MaryO at 12:15 PM 0 Comments

Sunday, April 20, 2008

New Bios

New Bio April 20

Bonnie (Bonnie) is from Boca Raton, Florida. She had Cushing's in the '90s and had her left adrenal gland out. Now she's having symptoms again 13 years later and she has a mass on her right adrenal gland.

New Bio April 20

Joey (Joeykins) is from Northampton, UK. She is not yet diagnosed with Cushing's but has many symptoms and she has been diagnosed with Polycystic Ovary Syndrome (PCOS) and Hypertension so far.

New Bio April 20

Kathy (Kathy51) is from Lennox Head, Australia. She is not yet diagnosed with Cushing's but has many symptoms.

New Bio April 20

Theresa is from Huntington, West Virginia. Her 7 year old son has been diagnosed with Cushing Syndrome. he will have surgery on June 1, 2008 to remove his pituitary tumor.

New Bio April 20

Sharon is from Massachusetts. Her sister saw Sharmyn's Discovery Channel show on Cushing's. Sharon had an adrenal tumor removed but is still not feeling well.

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posted by MaryO at 9:32 AM 0 Comments

Friday, April 18, 2008

New Bios

New Bio April 18

Amy (missingdiane) is from Carlsbad, California. Her very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue.

New Bio April 18

Lee (Lee) is from Canberra, Australia. Her daughter had pituitary surgery in mid 2007. She is losing weight but still has other symptoms.

New Bio April 18
Melynette (Melynette) is from San Juan, Puerto Rico, US Territory. She has a pituitary adenoma. She found her current endo while waiting for her baby's eye doctor appointment. The endo did a CT scan just to be sure she didn't have an adrenal tumor as well.

New Bio April 18
Nancy (chance) is from Olympia, Washington. She has Iatrogenic (steroid-induced) Cushing's due to being on steroids for 30 years. She also has Adrenal Insufficiency and a doctor told her to say she has Addison's.

New Bio April 18
Lori (larrysdaughter) is from Coeburn, Virginia. Her father has many diagnoses including Hypertensive Urgency, electrolyte imbalance, TIAs and a small CVA, Diastolic Dysfunction, Bradycardia, with trace Tricuspid regurgitation, mild Mitral regurgitation, a small patent foramen ovale in the Interatrial septum, Glaucoma, a hydrocoele, and periodontal disease. He has an 18 x 13 mm left adrenal lesion and high cortisol but is not yet diagnosed with Cushing's.

New Bio April 17
Lindsay (Lindsay) is from Ipswich, United Kingdom. She is not yet diagnosed with Cushing's but has many symptoms. Her diabetic clinic sent her for a dexamethasone test.

New Bio April 17
Maria (Izzabel78) is from El Centro, California She is not yet diagnosed with Cushing's but she has suffered with Rheumatoid Arthritis since she was a child. Following a terrible car accident, she has had a lot of pain and has been on a lot of meds. A new doctor in Mexico is concerned about all the prednisone she has taken for her RA.

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posted by MaryO at 12:27 PM 0 Comments

Thursday, April 17, 2008

New Bios

Elizabeth (Lizabug) is from West Virginia. She has cyclic pituitary Cushing's and sees Dr. Ted Friedman. She is still testing and hasn't yet had surgery.


Tania (taniag) is from Gold Coast, Australia. She had an adrenal gland and benign tumor removed in late January 2008.


Kenny (ken2501) is from St. Louis, Missouri. He was diagnosed with Cushing's at the end of his freshman year of high school. He has had two pituitary surgeries and Gamma Knife radiation.


Mattie is from Cambridge, Ohio. Her husband has Cushing's. He was diagnosed June 2007, after collapsing and suffering a tramatic brain injury. He now goes to the Cleveland Clinic but they are unable to find his tumor after repeated petrossal sinus samplings.


Jenn (Jenn) is from London, Canada. She has had two pituitary surgeries, one with a CSF leak, and is considering a BLA.


Eric (Eric O) is from Artesia, California. He is not yet diagnosed with Cushing's but has had CSR for almost 13 years.

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posted by MaryO at 2:45 AM 0 Comments

Friday, March 28, 2008

Today's New bio

Lesa (Lesa) is from Elkland, Missouri. She had a golfball sized tumor on her right adrenal gland. The gland was removed in July, 2007.

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posted by MaryO at 11:47 AM 0 Comments

Thursday, March 27, 2008

Today's New bios

Alison (aearly) is from Portland, Oregon. She is not yet diagnosed with Cushing's but has many symptoms. Her testing has come back normal so far so her endo wants to try metformin. She has submitted a request to speak with the OHSU pituitary clinic.


Mary F is from Brawley, California. She had steroid induced Cushing's brought on by arthritis meds she bought in Mexico. After six weeks in the hospital for a blackened leg, her leg was saved and her diabetes gone. After six months, her Cushing's was gone.


Sue (sue3708) is from Danbury, Connecticut. She is not yet diagnosed with Cushing's but an MRI showed a prominence of the pituitary with a convex superior border but no tumor. She is testing and waiting for answers.

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posted by MaryO at 12:55 PM 0 Comments

Tuesday, March 25, 2008

Today's New bio

Rachelle (shel) is from Calgary, Canada. She had pituitary surgery in February 2003. Following that, she learned that the tumor had hemorrhaged so she had radiation in 2004 followed by a BLA in 2006. She now has Nelson's Syndrome.

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posted by MaryO at 12:13 PM 0 Comments

Monday, March 24, 2008

Today's New bio

Pamela (P Counts) is from Havre de Grace, Maryland. She had a pituitary adenoma removed on March 6, 2008.

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posted by MaryO at 1:50 PM 0 Comments

Saturday, March 22, 2008

Today's New and Updated bios

Lisa is from Oklahoma City, Oklahoma. She had her right adrenal gland removed May 23, 2007. She developed colitis post-op. Lisa updated her bio March, 2008 after a checkup with her endo.


Kelli is from Auburn, Washington. She originally read an article in a Weight Watchers Magazine and that started the diagnostic process. She met Karen (rooon55) at Dr Ludlam's office.

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posted by MaryO at 1:11 PM 0 Comments

Thursday, March 20, 2008

Today's Newest Bio

StaceyJenn (StaceyJenn) is from New Jersey. She has steroid-induced (Iatrogenic) Cushing's. She has taken steroids for allergies. She has also been diagnosed with adrenal insufficiency, hypothyroidism, candidiasis, intestinal permeability and 22 latent food allergies.

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posted by MaryO at 8:47 AM 0 Comments

Tuesday, March 18, 2008

Today's Newest Bios

Katie (kvb927) is from Philadelphia, Pennsylvania. She is not diagnosed with Cushing's yet but has a number of diagnoses - panic disorder, major depression, bipolar disorder, hypothalamic amenorrhea, female hypogonadism, and pituitary adenoma. Her abnormal hormones are low FSH, LH, estradiol, insulin, and free T4. Imaging found a 2 mm. adenoma on her right pituitary and an 11 mm. pineal cyst.


Linda (lsfranz2001) is from Arlington, Texas. She has steroid-induced Cushing's from epidural injections.


Jamie (synthia) is from Buckfield, Maine. She has many Cushing's symptoms and has been diagnosed with PCOS because of high androgen levels.

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posted by MaryO at 1:35 PM 0 Comments

Sunday, March 16, 2008

Today's Newest BIos

Barbara is from California. She is going to have her left adrenal gland removed soon but is afraid of the surgery.


Carmie (Carmmaui) is from Murphys, California. She has not yet been diagnosed with Cushing's but has many symptoms and was considering bariatric surgery.


mm (Feb2008) is from mid-state, North Carolina. She had a 5mm tumor removed at Univ of Va in February 2008. The tumor was resting against the carotid artery.


Dawn (chazah) is from Kempton Park, South Africa. She has not been diagnosed with Cushing's but has a great many symptoms. She has been diagnosed with diabetes, Spondylitis, Hypothyroidism, Hashimoto's Thyroiditis and possible lupus.


Gail (Gail) is from Swansea, South Wales, Great Britain. She is not yet diagnosed with Cushing's but has many symptoms.


Colette (micheline) is from Winnipeg, Canada. She is not diagnosed with Cushing's but has had symptoms of MSL or Madelung's Disease for over 25 years.

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posted by MaryO at 1:57 PM 0 Comments

Saturday, March 15, 2008

Today's Newest Bio

Lisa is from Oklahoma City, Oklahoma. She had her right adrenal gland removed May 23, 2007. She developed colitis post-op.

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posted by MaryO at 5:12 AM 0 Comments

Thursday, March 13, 2008

Today's Newest Bio

Chris (Chris) is from Clairton, Pennsylvania. She is not yet diagnosed but she is testing for Cushing's.

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posted by MaryO at 12:45 PM 0 Comments

Monday, March 10, 2008

Today's Newest Bios

Lisa is from Fredericksburg, Virginia. She has a right adrenal tumor and was about to have surgery when her endo canceled her surgery. Her surgery is now scheduled for April 4, 2008.


Lindsay (LynziMarie) is from Salt Lake City, Utah. She is not yet diagnosed with Cushing's but her test results were "high, but within normal range".


Michelle (micgonza) is from West Covina, California. She was diagnosed with Cushing's in November of 2007 with a tumor on her right adrenal gland. She had surgery in January 2008.


Jevlin (Jevlin) is from Richlands, North Carolina. She has been dealing with Cushing's symptoms for about 9 years. Her pituitary tumor has grown from 4mm to 8.2mmX5mm so she hopes that someone will finally listen.

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posted by MaryO at 5:33 PM 0 Comments

Friday, March 7, 2008

Today's Newest Bios

Diana is from Escondido, California. She was diagnosed in September 2006 with a pituitary adenoma. Her surgery was March 21, 2007.


Debra is from Weatherford, Texas. She's waiting for test results. Both her PCP and endo think she has Cushing's.


Kelly (KellyDeen) is from Burleson, Texas. She was diagnosed with an adrenal adenoma in November, 2007.

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posted by MaryO at 12:04 AM 0 Comments

Friday, February 29, 2008

Today's Updated Bios

Dawn (Dawn) is from Bethlehem, Pennsylvania. While she is not diagnosed with Cushing's yet, she has been diagnosed with high blood pressure, depression, anxiety, panic attacks, migraines, diabetes mellitus, chronic fatigue syndrome, sjogrens symdrome, fibromyalgia, nueropathy, hiatal hernia, fatty liver and had several surgeries. Dawn updated her bio February 29, 2008.


Monica (monicaroni) is currently living in Texas but grew up in Milwaukee. She has Cyclical Cushing's and is taking Ketoconazole. Monica updated her bio September 3, 2007 after pituitary surgery and a BLA and again February 29, 2008 1 year post-op.

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posted by MaryO at 10:49 AM 0 Comments

Tuesday, February 26, 2008

Today's Newest Bio

Brandy (FLBrandy22) is from North Port, Florida. She was diagnosed with pituitary Cushing's and had two transphenoidal surgeries. The first surgery showed that she had hyperplasia, so she had her whole pituitary removed.

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posted by MaryO at 10:38 AM 0 Comments

Monday, February 25, 2008

Today's Newest Bios

Cathy W (cathyw) is from Illinois. She is not yet diagnosed with Cushing's but has been sick for 15 years.


Kelsey (Kelsey) is from Highlands Ranch, Colorado. She has had two pituitary surgeries so far and both were unsuccessful. They are contemplating a BLA as the next step. Kelsey has tried meds (ketoconazole and metyropone) with limited results. Kelsey's mom has also posted her own bio.

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posted by MaryO at 9:28 PM 0 Comments

Sunday, February 24, 2008

Today's Newest Bio

Karen (Karen F.) is from Vancouver, Canada. She was diagnosed with Pituitary Cushing's in December 2007 and had transphenoidal surgery on February 15, 2008.

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posted by MaryO at 10:45 AM 0 Comments

Saturday, February 23, 2008

Today's New and Updated Bios

Kim (eureka) is from Eureka, Missouri. She has full blown Cushing's symptoms from steroid use. She has asthma and dealt with pneumonia. She now has APBA (Allergic bronchopulmonary aspergillosis) which is a lung condition treated by more steroids.


ReneeMarie is from Florida. She had pituitary Cushing's. She is having complications after her surgery.


Diane (worriedmom) is from Highlands Ranch, Colorado. Her daughter Kelsey has had two pituitary surgeries so far and both were unsuccessful. They are contemplating a BLA as the next step. Kelsey has tried meds (ketoconazole and metyropone) with limited results.

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posted by MaryO at 1:01 PM 0 Comments

Friday, February 22, 2008

Today's Newest Bio

Donna (DonnaMR) is from Philadelphia, Pennsylvania. Her daughter is not yet diagnosed with Cushing's but has PCOS and insulin resistance. Donna's sister had a pituitary tumor.

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posted by MaryO at 2:12 PM 0 Comments

Wednesday, February 20, 2008

Today's New and Updated Bios

Jacqueline (Jacqueline) is from Toronto, Canada. Her internist thought she had Cushing's right away but changed his mind with a negative dex. test. An endo put her on Meridia for appetite and didn't listen to her other symptoms. Jacqueline updated her bio in February 2008 to let us know that she is going to see Dr. Ted Friedman March 11, 2008.



Carolina (Carolina) is from Puerto Varas, Chile. She was treated for bipolar disorder and in a mental institution before her pituitary Cushing's was discovered. She had surgery at UVa February, 2007.



Rebecca (Re[Becca]) is from Petaluma, California. She is not yet diagnosed with Cushing's but has many symptoms. She feels pressure in her nasal cavity and is afraid that might be a tumor.



Dawn (Dawn) is from Bethlehem, Pennsylvania. While she is not diagnosed with Cushing's yet, she has been diagnosed with high blood pressure, depression, anxiety, panic attacks, migraines, diabetes mellitus, chronic fatigue syndrome, sjogrens symdrome, fibromyalgia, nueropathy, hiatal hernia, fatty liver and had several surgeries.



Heather (Heather) is from Wagga Wagga, Australia. She is not yet diagnosed with Cushing's but has many symptoms. She recently took prednisone and things got worse. She is having a CT scan and 24-hour urine.



Amy (mindylindy) is from Harrisburg, Pennsylvania. She is not yet diagnosed with Cushing's. Routine bloodwork for her PCOS came back with really high testosterone numbers. She is being scanned for an ovarian or adrenal tumor.



MicheleP (MicheleP) is from Wolcott, Indiana. She is not yet diagnosed with Cushing's but she has been sick for about a year. MicheleP may be the subject of a future Live Interview in the Cushings Help Voice Chat / Podcast series. More information as it becomes available.

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posted by MaryO at 8:35 PM 0 Comments

Saturday, February 16, 2008

Today's New Bios

Bev is from Manchester, United Kingdom. She was diagnosed with adrenal Cushing's in May 2007 and had surgery October 3, 2007. She feels like she is just existing, not living.


Lauren (Lauren) is from Galloway, Ohio. She is not yet diagnosed with Cushing's but has an endo appointment next week. She was diagnosed with bipolar disorder when she was 17.

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posted by MaryO at 12:29 PM 0 Comments

Friday, February 15, 2008

Today's New and Updated Bios

Mary (KatieSamsMom) is from Columbus, Ohio. She is not yet diagnosed with Cushing's but she has PCOS and adrenal nodule.

Renai (Nai) is from Gunnedah, Australia. She has had Cushing's symptoms for many years and she has high prolactin levels. She has been told she has fibromyalgia.

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posted by MaryO at 12:52 PM 0 Comments

Today's New and Updated Bios

Mary (KatieSamsMom) is from Columbus, Ohio. She is not yet diagnosed with Cushing's but she has PCOS and adrenal nodule.

Renai (Nai) is from Gunnedah, Australia. She has had Cushing's symptoms for many years and she has high prolactin levels. She has been told she has fibromyalgia.

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posted by MaryO at 12:52 PM 0 Comments

Monday, February 11, 2008

Today's Newest Bios

Carol (carryule) is from Canton, Ohio. She is not yet diagnosed with Cushing's but her doctor has found an adrenal mass. She has had a 24-hour urine test so far.

Bobbie (Bobbie) is from Elk Grove, California. She is not yet diagnosed with Cushing's but a doctor at a PCOS seminar at UC Davis suggested that she check out Cushing's disease. She has many Cushing's symptoms.

Renai (Nai) is from Gunnedah, Australia. She has had Cushing's symptoms for many years and she has high prolactin levels. She has been told she has fibromyalgia.

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posted by MaryO at 1:44 PM 0 Comments

Saturday, February 9, 2008

Today's New Bios

Becca (Becca) is from Petaluma, California. She is not yet diagnosed with Cushing's but has many symptoms.

Sydni (Sydni) is from the United States. She was just diagnosed with Cushing's Syndrome. She has Reiter's Disease (which is similar to Rheumatoid Arthritis) and has taken Prednisone for many years.

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posted by MaryO at 11:07 AM 0 Comments

Thursday, February 7, 2008

Today's Newest Bios

Aimee (Daggersmom) is the daughter of a Cushing's patient, Pat. Pat is due to have a BLA in February, 2008. She has also had two back fusions, two knee replacements, pituitary surgery, gamma knife and chemical treatment.


Crystal is from Spruce Pine, North Carolina. She was originally diagnosed with pseudo Cushing's. After broken bones she got to NIH (the National Institutes of Health) but they couldn't find the tumor, although they believe it's behind a hernia. Surgery is too risky and Crystal is contemplating a BLA.


JoAnn (Flojo3) is from Thunder Bay, Canada. During a kidney ultrasound it was found that JoAnn has an abnormality in her adrenal glands.


Kathryn (Kathryn) is from West Yorkshire, England. She had a pituitary adenoma removed and is on replacement of cortisol, thyroxine and soon to be on growth hormone. She will be having a hip replacement soon.

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posted by MaryO at 11:25 AM 0 Comments

Tuesday, February 5, 2008

Today's Newest Bios

Melissa (Melissa) is from Franklin, Kentucky. She had a pituitary tumor removed 10 years ago but had symptoms return two years ago.


Lynn (Lynn1201) is from Ohio. She is newly diagnosed with a second adrenal insufficiency and hypothyroidism.


RiAna (bizzysgirl) is from East Alton, Illinois. She thinks she has Cushing's or Pseudo Cushing's. She has diabetes and was told she is bipolar.

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posted by MaryO at 2:49 PM 0 Comments

Monday, February 4, 2008

Today's Newest Bios

Gys is from Bloemfontein, South Africa. He was diagnosed with acromegaly in 2007 and had a tumor removed. His hGH and Somatomodine C are still extremely high so he has been hospitalized again for testing and to see if another surgery is needed.

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posted by MaryO at 4:30 PM 0 Comments

Friday, February 1, 2008

Today's Newest Bios

MamaBibbs is from Fort Wayne, Indiana. She had MRIs of her brain, pituitary, adrenal, kidney, pancreas and CT of lungs before a petrossal sinus sampling showed a probably pituitary tumors. She has not yet had surgery.


Sarah (sisnlaw) is from Austria. Her sister in law was diagnosed with Cushing's January 2008. Although she was happy to get the diagnosis, she's scared today and extremely depressed. She returns to the hospital February 11, 2008.

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posted by MaryO at 8:42 PM 0 Comments

Wednesday, January 30, 2008

Today's Newest Bios

FerolV (FerolV) is from Charlotte, NC. She had pituitary surgery September 30, 2005. She saw the special on DISCOVERY Health. She has updated her bio at about 1 1/2 years post-op. She updated her bio again January 30, 2008, 2 1.5 years post op.

Claudia (clauchelo) is originally from Colombia, now living in Germany. She had pituitary tumor surgery in April 2007 and her doctor has told her it's possible she may need another surgery.

Suzanne (Suzanne) is from Lexington, South Carolina. She has an incredible medical history that includes over 50 surgeries since she was 12. She has been diagnosed with Slipped Capital Femoral Epythesis, JRA (Juvenile Rheumatoid Arthritis, Lupus, fibromyalgia and has had two amputations. Through all this she has taken massive doses of steroids. She saw Sharm's episode of Mystery Diagnosis and believes she has Cushing's. Suzanne is testing for Cushing's now.

Bubbles (Bubbles) is from Wichita, Kansas. She has Metabolic syndrome (also known as syndrome x or insulin resistance). Scans have shown both pituitary and adrenal tumors. She is trying to decide if her symptoms are bothersome enough to warrant surgery and following through with a petrosal sinus sampling.

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posted by MaryO at 8:28 PM 0 Comments

Monday, January 28, 2008

Today's New and Updated Bios

Tracey (Tracey) is from Bethlehem, Pennsylvania. She was diagnosed with pituitary Cushing's in October 2007 and will have surgery at Johns Hopkins in February 2008.


Gail is from Warrington, UK. She is not diagnosed with Cushing's but is a diabetic and has trouble keeping her sugar levels down even with insulin.


Stephanie is from Prince George, Canada. She was diagnosed with adrenal Cushing's in July of 2007 and had her left adrenal gland removed in November, 2007. She is still on prednisone and has pain on her side.


Mary (marym) is from Grand Blanc, Michigan. She has not had a positive diagnosis for Cushing's as of yet. She has been diagnosed with PCOS and subclinical hypothyroid.


Alicia (medcats10) is from Tucson, Arizona. She is not yet diagnosed with Cushing's but has many symptoms. Alicia will be the subject of a Live Interview in the Cushings Help Voice Chat / Podcast series February 7, 2008, 7:30 PM. Archives will be available after the chat.


Renai (rossi) is from Australia. She is not yet diagnosed with Cushing's but has many symptoms.


Hallie (hrgendron) is from Boynton Beach, Florida. She is not diagnosed with Cushing's but has Grave's Disease and has had her thyroid destroyed. Hallie has many Cushing's symptoms and has updated her bio with more information.

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posted by MaryO at 4:23 PM 0 Comments

Thursday, January 24, 2008

Today's Newest Bios

Hallie (hrgendron) is from Boynton Beach, Florida. She is not diagnosed with Cushing's but has Grave's Disease and has had her thyroid destroyed.


Ellyse (ellyse) is from Cumming, Georgia. She had her left adrenal gland removed in January, 2008 and wants to lose weight for a wedding in May.


Bexx (Bexx) is from New York, New York. She has struggled with her health since she was a small child around the age of 7 or 8.


Dick (Dick) is from Harrison City, Pennsylvania. He has had extensive MRI's CAT scans and PSST to locate a tumor in his body. As a result of these tests he has had two surgeries in the past two and a half years. One to his thymus that was successful and one to his pituitary. He still produces a large amount of cortisol.

Dick has also indicated that he is interested in being interviewed during a CushingsHelp Voice Chat. More information on that will be provided after the date and time are set.



Christine is from East Rutherford, New Jersey. She had transphenoidal removal of a pituitary macroadenoma on July 11, 2006. She had remaining tumor growing around her carotid artery that was inoperable. She also had Gamma Knife surgery on December 12, 2007.



Karen (Karen) is from Austin, Texas. She had her right adrenal gland removed January 7, 2008. She has some questions about her cortisol replacement.

Karen has also indicated that she is interested in being interviewed during a CushingsHelp Voice Chat. More information on that will be provided after the date and time are set.

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posted by MaryO at 9:08 PM 0 Comments

Tuesday, January 22, 2008

Today's Newest Bios

Dodie (Dodie) is from Maria Stein, Ohio. She sees Dr Friedman. An MRI showed a posterior pituitary tumor.

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posted by MaryO at 1:04 PM 0 Comments

Friday, January 18, 2008

Today's Newest Bios

Karen (Rooon55) Karen's disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing's, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries.

Shawna (bbwinbama) is from Cullman, Alabama. She was diagnosed with Cushing's Disease January 14, 2008 after having symptoms for many years.

Jodi is from Kenton, Ohio. She is not yet diagnosed with Cushing's but has many symptoms. Her dex suppression test came back normal but her doctor doesn't believe the results.

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posted by MaryO at 3:56 AM 0 Comments

Wednesday, January 16, 2008

Today's Newest Bios

Jenny (Jenny1107) is from Champlin, Minnesota. She is not yet diagnosed with Cushing's but has an appointment with an endo January 24, 2008.

Trena (Trena001) is from Pilot Mountain, North Carolina. She thinks that her daughter may have Cushing's. Trena's son was diagnosed with Hodgkin's Lymphoma and their doctor thinks it would probably be near impossible for two children in the same family to have unrelated rare diseases.

Barbara (Barbara522) is from Andover, Kansas. She was diagnosed with Cushing's last year and will need to have a Petrosal Sinus Sampling soon.

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posted by MaryO at 2:10 AM 0 Comments

Tuesday, January 15, 2008

Today's Newest Bios

Michelle (emilysmommie) is from Corona, California. She is not diagnosed with Cushing's but has many symptoms. She has had a 24-hour UFC which came back in the normal range. Her endo suggested Meridia.

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posted by MaryO at 2:01 AM 0 Comments

Monday, January 14, 2008

Today's Newest Bios

Mark (Mark) is from Louisville, Kentucky. He has Addison's Disease and would like to meet others who have this disease.

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posted by MaryO at 4:04 PM 0 Comments

Sunday, January 13, 2008

Today's New Bio

Babette is from Las Vegas, Nevada. She had laproscopic surgery for PCOS and took Clomid. She was successful in finally having a miracle baby.

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posted by MaryO at 3:13 AM 0 Comments

Friday, January 11, 2008

Today's New Bios

Hayley (silverstarprincess) is from South London, England. She doesn't have a full diagnosis yet but hopes to find out in a few weeks.


Leigh (crazyduck) is from French Settlement, Louisiana. She is not yet diagnosed with Cushing's but has many symptoms. She has just had several tests and an MRI or her pituitary gland. All that the bloodwork shows so far is that her thyroid is out of whack.


Kristin (KWDesigns) is from Portland, Oregon. She has ACTH Independent Cushing’s Syndrome and will have adrenal surgery January 29, 2008.


Rach is from Provo, Utah. She is now 21 and has been diagnosed with Cushing's 3 different time and she has had 3 transphenoidals and stereotactic radiation.

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posted by MaryO at 10:15 PM 0 Comments

Thursday, January 10, 2008

Today's New Bio

Michelle (MCheri) is from Penrose, Colorado. She has a pituitary gland tumor and will have surgery in February, 2008. It isn't prolactin producing but she isn't sure if it's Cushing's yet or not.

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posted by MaryO at 1:14 PM 0 Comments

Wednesday, January 9, 2008

Today's New Bio

JoAnn (flojo3) is from Thunder Bay, Canada. She is not yet diagnosed with Cushing's but a recent ultrasound of her kidneys showed an abnormality in her adrenal glands.

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posted by MaryO at 11:23 AM 0 Comments

Tuesday, January 8, 2008

Today's New Bio

Nate's wife (nderolph) is from Newark, Ohio. His wife was diagnosed with Cushing's about 2.5 years ago. She has had two pituitary surgeries and has just had a second recurrence.

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posted by MaryO at 8:57 PM 0 Comments

Monday, January 7, 2008

Today's New Bio

Judy H (Judy H) is from California. She first saw an endo in September 2006 and was diagnosed on October 26th, 2006. Judy had ectopic Cushing's due to a tumor on her lung which was removed in November 2006.

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posted by MaryO at 1:22 PM 0 Comments

Sunday, January 6, 2008

Today's new and Updated Bio

Travis is from Morgan City, Louisiana. He had ectopic Cushing's caused by a carcinoind tumor. He also had a pituitary tumor removed.

Jody (jodiann) is from Tacoma, Washington. She was diagnosed with Cushing's syndrome about 3 years ago. She also was diagnosed with bliateral multinodular adrenal hyperplasia. Her mom died from complications from a bilateral adrenalectomy (BLA) in 1978. She had Cushing's syndrome with pheochromocytomas. Jody updated her bio in December 2007 and January 2008.

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posted by MaryO at 6:30 PM 0 Comments

Friday, January 4, 2008

Today's New Bios

Liv (Liv) is from Rochester, Washington. Her mother has Cushing's and Liv is unhappy with the testing that her mother is having locally.


Lisa (ldyaquarius) is from Columbus, Indiana. She is not yet diagnosed with Cushing's but she takes prednisone for asthma and Bells Palsy. She wonders how she will get better if she can't get off the steroids.

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posted by MaryO at 9:33 PM 0 Comments

Tuesday, January 1, 2008

Today's New Bios

Gerald (Jerry) is from Warren, Michigan. His wife had Cushings about 10 years ago, about 7 years before they met.

Catrina (Catrina) is from Manchester, England. She is not yet diagnosed but is waiting for her first Endo appointment for Cushing's testing on January 9, 2008. She has been having symptoms since she was around 18.

Tracey (trayseejaw) is from Franklin, New Jersey. Her 10 year old son may have Cushing's.

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posted by MaryO at 10:37 PM 0 Comments

Monday, December 31, 2007

Today's New Bio

Jenny (Jenny) is from Minneapolis, Minnesota. Her doctor referred her to an Endo and her appointment will be at the end of January 2008.

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posted by MaryO at 12:29 PM 0 Comments

Sunday, December 30, 2007

Today's New and updated Bios

Jody (jodiann) is from Tacoma, Washington. She was diagnosed with Cushing's syndrome about 3 years ago. She also was diagnosed with bliateral multinodular adrenal hyperplasia. Her mom died from complications from a bilateral adrenalectomy (BLA) in 1978. She had Cushing's syndrome with pheochromocytomas. Jody updated her bio in December 2007.

Jennifer (jqatar07) is from Doha, Qatar. She is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with hypothyroidism and she takes Toprol XL for heart palpitations. She saw a Cushing's Expert in Dubai UAE in November.

Jennifer updated her bio after seeing an endocrinologist in Dubai UAE. Two pituitary tumors were found and the endo referred her to see Dr. Bill Ludlam.

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posted by MaryO at 1:20 PM 0 Comments

Saturday, December 29, 2007

Today's New Bio

Maria is from Pittsburgh, Pennsylvania. She was diagnosed at the age of 16 with a pituitary tumor, 17 when she had removed the first time and 19 the second time.

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posted by MaryO at 12:30 PM 0 Comments

Friday, December 28, 2007

Today's New Bio

Mary S (ladysslipper) is from Frostburg, Maryland. She recently completed a clinical trial at NIH because of an adrenal nodule. She also has hyperplasia of both adrenals and primary hyperaldosteronism as well as elevated cortisol.

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posted by MaryO at 2:56 AM 0 Comments

Thursday, December 27, 2007

Today's New Bio

Tamera (AlaskaNurse) is from Kasilof, Alaska. She had pituitary surgery at Shands in Florida. She was also tested for pheochromocytosis.

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posted by MaryO at 8:23 PM 0 Comments

Wednesday, December 26, 2007

Today's New and updated Bios

Tammyis from Augusta, Georgia. She started by having foot pain, then had more symptoms arise. She has an appointment with both a rheumatologist and an endocrinologist in January 2008.


Jacquie (Jacquie) is from Hamilton, Canada. She had a pituitary surgery November 30,2007 but her doctors think that they did not remove the whole tumor so she will probably have a repeat surgery soon.


Linda P (Jusmom1) is from Harleysville, Pennsylvania. Her son has elevated ACTH, Cortisol and Prolactin but is dexamethasone suppression was normal and he was told he didn't have Cushing's. Linda updated her son's bio after finding a doctor to take him seriously. They'll see Dr. Serge Jabbour at Jefferson Hospital in Philadelphia January 7, 2008.

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posted by MaryO at 10:57 AM 0 Comments

Saturday, December 22, 2007

Today's New Bio

Wendy (wendy) is from Margate, Florida. She was diagnosed with Cushing's around 1989 and had her surgery at the NIH (National Institutes of Health). She had a recurrence and had her second surgery there, too. She now has adrenal insufficiency and epilepsy.

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