And It's About Time There Was Some Support For Cushing's!
Lori's sister-in-law wrote: "I am Kimberly, sister-in-law to Lori from Monmouth IL.
During the first few days of September 2007, Lori had surgery to remove her adrenal gland. She experienced extreme difficulty post surgery and never recovered.
I wish to inform all who might have known her on this board that she passed away on Sunday, January 6, 2008.
She was hopeful that the surgery would help her, and loved and appreciated her many friends and others who supported her.
Thank you to everyone here who knew her and offered encouragement and hope."
Lori's sister-in-law wrote again : "I apologize for the time that has passed since you wrote the last e-mail. I have sent Lori's obituary to you in an e-mail from a newspaper. (http://www.thehawkeye.com/Story/obit_Holt_010808)
There is one error in the obituary. She obtained her graduate degree from Northeast Missouri State Univ., not Southwest as stated.
Lori was truly remarkable, and especially so in her fight with Cushing's Syndrome (adrenal).
Lori lived in a small town in west-central Illinois, not far from the Mississippi River. As you know (because I learned it on your website!), most doctors never see a case of Cushing's. At some point during the summer of 2007, Lori diagnosed herself by doing research online. This is evident by some written things she left behind in her home, and in letters she wrote to doctors as she went about putting together a medical team.
She worked to find doctors who would perform the specific diagnostic tests to find the Cushing's. She clearly knew by that point what she was looking for. Remarkably, she found several doctors who worked with her on this. Sadly, it was too late. In the last few years, she'd begun to gain weight, which perplexed her a great deal. She would occasionally call me or write e-mails, and in addition to telling about things going on with her life and work, she would mention her frustration at not being able to quite sort out just what was causing her health problems.
Lori was a deeply kind and caring person. She was a gentle soul, and loved her preschool children so very much. She never missed sending my two sons a card not only for birthdays but on every single holiday you can imagine -- Halloween, Thanksgiving, Valentine's Day, St. Patrick's Day. She was a single woman and worked with great determination to be self-sufficient.
She really loved her brothers, and was so glad as they married so she could have some "sisters" around. Once we moved from the Chicago area to northern Michigan in 1998, we didn't see her often, and I regret that so much.
Lori fought her disease intelligently and valiantly. She suffered a lot while in the hospital between Labor Day weekend and when she died on Sunday, 1/5/08. At different points, she suffered from MRSA, shingles, and extreme breathing distress. I am quite certain that her body was just too spent by the disease to recover itself.
I thank you and all who might have been in contact with Lori during the very brief time she may have spent on your message board. I wish you all the very best in your continued struggle with disease and your on-going work to educate the public.
Lori A. Holt, 47, of Monmouth, Ill., died at 1:52 p.m. Jan. 6, 2008, at OSF St.Francis Medical Center in Peoria, Ill.
Born Oct. 7, 1960, in Galesburg, Ill., she was the daughter of Patrick M. and Patricia Noonan Holt.
Ms. Holt was a teacher at the Lutheran Preschool and Daycare Center in Monmouth for 11 years. She graduated from Galesburg High School and then graduated from Monmouth College with a bachelor's degree. She also lettered all four years in volleyball, basketball and softball. She earned two master's degrees in physical education and health from Western Illinois University and Southwest Missouri State. Ms. Holt played for the State of Illinois softball team at the national level for two years. She was head coach of women's volleyball, basketball and softball at Spoon River College and was head coach of softball and basketball at Illinois College in Jacksonville, Ill. She was coach and athletic director at Costa Catholic High School in Galesburg for a number of years. Ms. Holt was a fan of the Green Bay Packers, the Boston Celtics and the St. Louis Cardinals. She was a member of Immaculate Conception Church in Monmouth.
Survivors include her parents of Knoxville, Ill.; five brothers, Frank Felz of Fort Worth, Texas, Michael Felz of Evanston, Ill., Paul Felz of Denver, Colo., Patrick Felz of Buffalo Grove, Ill., and Martin Holt of Grant Ranch, Colo.; nieces and nephews.
She was preceded in death by her grandparents.
No visitation is planned. The body has been cremated. Turnbull Funeral Home in Monmouth is in charge of arrangements.
A memorial mass will be at 10 a.m. Thursday at Immaculate Conception Church in Monmouth.
A memorial fund is being established for Lutheran Preschool and Daycare Center in Monmouth.