And It's About Time There Was Some Support For Cushing's!
Also, see Webcasts from NIH Pituitary Symposium and Endo 2004.
Click for Cortisol and Cardiovascular disease video
Baby Alison
Exercise with Cushing's Disease video (Powerful Illustration of Exercising While Handicapped)
Pituitary Cushings: Barbara on local TV
Pituitary Cushings: Kate and Dr. Ted Friedman on National Geographic TV were featured on the National Geographic channel. The show, called the Science of Obesity, has a segment on Cushing's syndrome.
Today, 127 million adult Americans are considered overweight, but few reach the extreme proportions of the exceptionally obese. What are the physical stresses of weighing more than 500 pounds and what steps can reverse it? NGC provides an understanding of what happens inside the bodies of these massive people & why a person can pack on hundreds more pounds than those with typical weight challenges. The show explores the genetics behind weight gain & medical advances available to help prevent it.
I hope that all of you can watch this. Please consider contacting your local media about doing your story! There is still much work to do to increase Cushing's awareness.
Pituitary Cushing's: Sharmyn (sharm on the boards) was featured on the Montel Show.
In 1993 at the age of 31, Sharmyn went from a socially acceptable dress size two and full of life to an obese size 22 and barely able to function in just one year. Despite the years of dedication to maintain a shapely muscular body, she suddenly had no control over the rapid weight gain. Her hours of personal fitness training and a healthy diet did nothing to stop the pounds from piling on. Sharmyn gained as much as eleven pounds in four days, 85 pounds in six months and 100 pounds in a year. Soon the weight gain was the least of her health problems; her hair fell out by the handfuls, her stomach stuck out like she was pregnant with twins, emotionally she felt like a misfit, and much more.
For seven horrific years Sharmyn searched the medical community for help, but over and over doctors told her there was nothing medically wrong with her...nothing some good old dieting and exercise couldn’t fix.
In spite of the many years of challenges within our healthcare system, Sharmyn ultimately diagnosed herself via the Internet and was fortunate to find a team of experts at UCLA Medical Center who confirmed her diagnosis. On April 14, 2000 Dr. Daniel Kelly, a world-renowned pituitary neurosurgeon—her angel - successfully removed the tumor and literally gave Sharmyn her life back.
The Endocrine System
Click for HPA Axis video
Pituitary Brain Tumors - A Neurosurgeons Perspective
Chicago Institute of Neurosurgery & Neuroresearch - Dr. Gail Rosseau, neurosurgeon at the Neurologic & Orthopedic Hospital of Chicago, provides an educational insight on pituitary tumors - the conditions and treatments for certain cases...
This Topic on the Message Boards
Pituitary Cushing's: Sharmyn (sharm on the boards) was featured on the Montel Show.
In 1993 at the age of 31, Sharmyn went from a socially acceptable dress size two and full of life to an obese size 22 and barely able to function in just one year. Despite the years of dedication to maintain a shapely muscular body, she suddenly had no control over the rapid weight gain. Her hours of personal fitness training and a healthy diet did nothing to stop the pounds from piling on. Sharmyn gained as much as eleven pounds in four days, 85 pounds in six months and 100 pounds in a year. Soon the weight gain was the least of her health problems; her hair fell out by the handfuls, her stomach stuck out like she was pregnant with twins, emotionally she felt like a misfit, and much more.
For seven horrific years Sharmyn searched the medical community for help, but over and over doctors told her there was nothing medically wrong with her...nothing some good old dieting and exercise couldn’t fix.
In spite of the many years of challenges within our healthcare system, Sharmyn ultimately diagnosed herself via the Internet and was fortunate to find a team of experts at UCLA Medical Center who confirmed her diagnosis. On April 14, 2000 Dr. Daniel Kelly, a world-renowned pituitary neurosurgeon—her angel - successfully removed the tumor and literally gave Sharmyn her life back.
You are also welcome to listen to the "Pituitary Disorders Lecture Series" or the "Doctor-Patient Discussions" for more information on pituitary tumors and pituitary disorders.
Welcome to our streaming video discussions about pituitary disorders. These short videos are in Real Media format. Click here for more information about Real Media Player.
You are also welcome to listen to the "Pituitary Disorders Lecture Series" for more information on pituitary tumors and pituitary disorders.
A conference on Adult and Pediatric Brain Tumors For Patients, Families and
Caregivers
October 11, 2003 - Cedars-Sinai Medical Center, Los Angeles, CA
Rick Friedman,
MD (26:34)
Audio And
Slides
Brian Pikul, MD (21:59)
Audio and
Slides
William Young, MD (16:55)
Audio And
Slides
Asha Das, MD (18:32)
Audio and
Slides
James Fontanesi, MD (37:34)
Audio And
Slides
Pedro Lowenstein, MD, PhD (32:10)
Audio and
Slides
John S. Yu, MD (25:31)
Audio And
Slides
Keith L. Black,
MD (4:04)
Audio Only
Henry Friedman, MD (51:24)
Audio And
Slides
11/14/2003
Integrative Medicine - Evan Ross, LAc,
DOM (31:17)
Audio and
Slides
11/13/2003
Radiation Treatments And The Side Effects
For Pediatric Brain Tumors - James Fontanesi, MD (32:41)
Audio and
Slides
11/10/2003
Novel Gene Therapies For Pediatric Brain
Tumors - Maria Castro, PhD (26:22)
Audio and
Slides
11/10/2003
Chemotherapy Treatments For Pediatric
Brain Tumors - Carol Hurvitz, MD (31:49)
Audio and
Slides
11/9/2003
The Neurologic Complications Of Pediatric
Brain Tumors - Asha Das, MD (21:01)
Audio and
Slides
11/9/2003
Novel Approaches To Treating Pediatric
Brain Tumors - Moise Danielpour, MD (26:58)
Audio and
Slides
2003
Pediatric Brain Tumor Conference: A Family Perspective
August 3, 2003 - Hackensack University Medical Center, NJ
9/21/2003
Optic Glioma - Paul Zeltzer, MD (34:47)
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9/28/2003
Brainstem Gliomas and Advances in
Pediatric Neurosurgery - Arno Fried, MD, FACS (28:09)
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9/29/2003
Advances in chemotherapy for pediatric
brain tumors - Steven Halpern, MD (31:06)
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9/30/2003
Neurologic and Cognitive Outcomes of
Pediatric Brain Tumors - Stephen Thompson, MD (29:32)
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10/3/2003
The many faces of brain tumors:
understanding the impact on the family - Stacey Bergman, M.A. LCSW (29:32)
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10/5/2003
Neurofibromatosis and associated
intracranial tumors in children - Catherine Ruebenacker-Mazzola, MD (27:28)
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Cleveland
Clinic Family Health Talk: Brain Tumors
July 13, 2003
7/13/2003
Introduction - Glen Stevens, DO, PhD
(18:14)
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7/13/2003
Laboratory And Clinical Research - Michael
Vogelbaum, MD, PhD (16:25)
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7/13/2003
Advances in Surgery For Brain Tumors -
Gene Barnett, MD (21:41)
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7/13/2003
Radiation options for brain tumor patients
- John Suh, MD (15:38)
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7/13/2003
Chemotherapy / targeted drugs - David
Peereboom, MD (15:48)
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7/13/2003
Role of brain tumor nursing, social
support, local and national resources available to patients - Gail Ditz, RN
(22:50)
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6/22/2003
David W. Andrews, M.D - Management of
patients with malignant glioma (35:07)
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6/22/2003
Dr. Henry Friedman - Brain tumor
chemotherapy (39:20)
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Brain Tumor Treatments
10/4/02
Dr. Friedman presents Gliadel® Wafer long term results. (Audio Only).
 4m 54s |
Overview - This program begins with an overview of the pituitary gland and how it regulates much of the endocrine system, as well as the roles played by several specific hormones. Expert physicians explain how secretory and non-secretory pituitary tumors affect the body and list the specific disorders that result from these benign tumors. |
4m 43s |
Acromegaly - In this segment of the video, physicians, patients and patients' families describe the symptoms, diagnosis and treatment of acromegaly. |
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How I Learned I Had Acromegaly Robert Violonto experienced massive headaches and years of unusual symptoms before an accidental encounter with a doctor and a handshake led to a diagnosis of acromegaly. |
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Current Treatments for Acromegaly |
5m 26s |
Cushing's Disease - In this segment of the video, physicians, patients and patients' families describe the symptoms, diagnosis and treatment of Cushing's Disease. |
6m 02s |
Gamma Knife Radiosurgery / Conclusion Many pituitary tumor disorders require treatment with gamma knife radiosurgery. This segment shows a patient with Cushing's Disease receiving the treatment and explains the procedure in detail. The issue of tumor recurrence is also discussed. Finally, physicians, patients and their families reiterate the importance of early diagnosis and treatment, taking your medication, talking to other patients and maintaining a positive outlook. Medical and support group information is listed. |
2m 21s |
Growth Hormone for Adults This segment explains the necessity of replacing hormones during and after treatment and also stresses the importance of regular monitoring of hormone levels. The relatively new option of replacing growth hormone in adults is also discussed. |
2m 13s |
MRI - This segment explores diagnostic tools, especially the magnetic resonance imaging scan, in more detail. |
5m 50s |
Non-Functioning Adenomas In this segment of the video, physicians, patients and patients' families describe the symptoms, diagnosis and treatment of non-functioning adenomas. |
4m 45s |
Prolactinoma - In this segment of the video, physicians, patients and patients' families describe the symptoms, diagnosis and treatment of prolactinomas. |
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Transsphenoidal Pituitary SurgeryNBC10 |
1m 36s |
Transsphenoidal Microsurgery Transsphenoidal surgery, including procedures and recovery time, is illustrated by an expert neurosurgeon who specializes in pituitary surgery. |
