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Cushing's on MySpace, FaceBook, YouTube, Multiply, Ning, SparkPeople, Yahoo! Video and Blogs

A means that the owner is a member of the message boards.

• Allison:
  • Cushing's video on YouTube
  
  
• Brook's Cushing's page

  Brook's space on myspace.com has Cushing's information and her pictures

• Cathy:
  • Cushing's Blog
  • MySpace page


• Cushing's Syndrome

  This site includes a downloadable chart to keep a record of all your blood tests, abstracts, photos, personalstories and much more.

• D'Shawns Journey to Germany

  Shawn lists her Cushing's symptoms in Blog format (Note: watch out for the pop-ups)

• Diane's Radiotherapy journal

  On the message boards - you must be a member to read. Diane posts all her experiences with radiotherapy to help others going through the same process or trying to decide if its for them.

• Erella Ganon

  Erella had her second transphenoidal surgery in 2004 for a pituitary tumour, in Toronto. The CBC did a one hour documentary about her first surgery. She is wondering about some of her symptoms and whether anyone else had something similar occur.

• Exercise with Cushing's Disease video (Powerful Illustration of Exercising While Handicapped) on YouTube
• FerolV's Blog

  Diagnosed with Cushings Disease in 05, after YEARS of mis-diagnosed symptoms, I want to share my experience with others.

• IBOVERW8 SparkPeople page
• Jennye's (surpriseaz2007) MySpace page

  I do have a Myspace page that talks about my Cushing's issues. Right now, I have it set to private, but I will gladly add anyone (PM surpriseaz2007 on the message boards). I set it to private after I kept getting a lot of advertisments and weird messages.

• Judy's Cushing's Family Blog

  This is a story of one familys' survival through the trials of living with and diagnosing a "rare" disease, one that not many doctors believe exists in the general population. It is a story of fear and mistrust and excruciating sadness for the family.

• Kate:
  • Cushing's segment on YouTube
  • Cushing's segment on Yahoo! Video


• Kiri's Adrenal Source Health Issues
• Kristin's Blog
• Lisa C

  (Blog) The Cushing's Disease Journey

  I've suffered with Cushing's Disease for 20+ years. Soon I should be hearing from the neurosurgeon's office to schedule surgery to remove two pituitary adenomas and a Rathke Cleft Cyst. Now that I am beginning to see the light at the end of the tunnel, I am blogging the end of my journey.

• Lorrie's (LorrieI) MySpace page
• MaryO:
  • Cushing's and Cancer Blog on CaringBridge
  • CushingsHelp on ning.com
  • Cushing's Help on multiply.com
  • Cushing's Help on Yahoo! Videos
  • Cushing's Help Cause on Facebook
  • Cushing's Help Group on Facebook
  • MaryO on Facebook


• Melissa:
  • Cushing's Moxie Blog


• Monica:
  • Addison's and Adrenal Insufficiency SparkPeople page
  • Cushing's Syndrome SparkPeople page
  
  
• Natalie F's webpage, with her pictures

• Nicole's (cocobanana) space on myspace.com with Cushing's discussions
• Robin (staticnrg):
  • Robin's Blog
  • Robin's Cushing's "Flake

    Robin writes: Getting "Flakey" in a geeky way, Research, bookmarks, and general info to share

    I've been having a lot of fun "flaking"..... I'm exploring the new Web 2.0 technologies which include wiki's, podcasts, newsfeeds, and flakes.....

    I've built a flake for Cushing's to share what info I have with anyone who wants to use it. I'm still working on it and have a lot more to add, but I'll do it as I can. A lot of things I've put there point back to this site, and if it's a link to the boards, only board members will be able to see it.

    http://www.pageflakes.com/staticnrg.ashx?

    I've put a feed of my bookmarks on the flake site, but I also have another public site for them, too:

    http://del.icio.us/staticnrg

    The neat thing about all this is you can do this, too, and we can "network", sharing with each other. You can incorporate my stuff in to your flake, and I can incorporate yours. It's a way for us to share info with each other. MaryO may want to put links to all this on here...I don't know. But it's the "new" thang, and predicted to be how things are going.



• Rain's blog, Rain has Cushing's disease, chronic uticaria, bilateral compartment syndrome

• Sarah (samhaaiello)'s space on myspace.com

  with Cushing's information

• Victoria: The Largest of All

  Victoria's weight gain journey