Tuesday, February 24, 2009

Christina (chris1228), undiagnosed bio

My name is Christina, and I am 28 years old.

As long as I can remember I have ground and clenched my teeth. I was always a little chubby and was suspected of having a growth hormone deficiency when I was a child. I had some growth hormone so my parents chose not to give me the injections.

I spent my teens and twenties drastically cutting calories, eating low carb, taking diet pills, and exercising to lose weight. Taking drastic measures I was able to lose weight until I was 26. All of the sudden I was depressed, developed a lipoma, and gaining weight.

I knew I needed to make some changes. I quit smoking, drinking, and ate a diabetic diet. I worked out everyday for no less than 60 minutes. With no weightloss, I went to the doctor and he diagnosed me with depression. Went on cymbalta and felt happy, but it made me gain more weight. I also made my already horrible insomnia worse.

However, I knew something was wrong. I thought I was hypothyroid. I read all these boards on subclinicial hypothyroidism and was convinced that's what was wrong. I had an endo test my growth hormone and the stim test showed that I had more growth hormone than he has ever seen. I am only 4'9". I guess I never received the benefits of all that GH.

In march I went of the antidepressent and I hired a personal trainer. I thought maybe these docs are right. Its all in my head. My therapist and my boyfriend told me to stop going on the internet to figure out what was wrong. I weight trained 2 days a week from March to Oct. I did cardio on the off days for no less than 45 minutes. Between this period I went from 139 poinds to 156 pounds. I was so frusterated!

My therapist recommended a doctor who combined holistic and conventional medicine. Right away the saliva tests said my adrenals were all screwed up. She put me on Bio-identical hormone therapy, vitamin D, iodine and adrenal support. I also started using light therapy for the depression. I felt 100% better with my moods. The only thing missing was the weight loss.

I have stopped the BHRT because of my cortisol levels, and all my symptoms are coming back. More weight gain, stretch marks, hair loss, acne, slight lip hair, depression, anxiety, and panic attacks! I am going to a new endo on March 20.

I feel this is genetic. My mom has the body type, the cholesterol, inability to lose weight, vertigo, hypertension, and the hump. I don't have all these symptoms, but I know its genetic.

Even if its not cushings, I know it has to do with my adrenals and cortisol levels. I cried when I read this website. I'm scared that I'm doing the same thing I did when I thought it was hypothyroidism and GH. I just know there is something wrong. Its not normal to gain 30 lbs in a year, especially with the amount of diet and exericise efforts I put in. I just pray the endo listens to me.


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Friday, November 7, 2008

Lindsay (mamaleeisme), undiagnosed bio

My name is Lindsay and I found this site in an attempt to figure out what is wrong with my six year old daughter.

I came across Cushings and I am sure that this is what she has. She is 101 lbs and has gained 40 lbs of that in the last 6 months. She has a round (completely circular) face, a significant buffalo hump, her midsection is much larger than her arms or legs, she has behavioral, social and learning disablilities.

My husband's cousin had a pituitary tumor that caused cushings and while I know that cushings is not usually genetic, it is the only thing that I have found that could cause all these things. The endocrinologists that we have seen have been less than helpful and they don't even seem concerned. I am so frustrated and I hope that maybe I can find some help on here.

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