Today is

I am 38 and had three transphenoidal surgeries for Cushing's.

I had a CSF leak with the 2nd and when they went in to repair it and look for more tumor my remaining pituitary gland was necrotic and I lost the whole gland.

That did not cure my Cushing's so I went on to have a laproscopic adrenalectomy followed quickly by galbladderproblems and appendicitis. Dr. Ludlan, Deleshaw and Sheppard at OHSU worked with me. I had my pituitary surgeries in 03 and my adrenals and other 2 surgeries in 04.

I have not been able to return to work as a nurse and feel thie surgeries have greatly reduced my quality of life. I would love tro talk with other people.

I have two adopted kids from China as a single mom who are 12 and 13.

I know have problems with fibromyalgia and arthritis.

Email Mary

Labels: bios, fibromyalgia, Mary, pituitary, steroids

Hi, I am a newly diagnosed cushy. I also have fibromyalgia.

I am 40yrs old. Live in Limerick city in Ireland.

I hope to give and receive support on my journy to recovery.

Email Dara

Labels: bios, Dara, fibromyalgia, pituitary

I am a 51 year old mother of 5, I have 6 grandchildren and have been married for 34 years.

I am a respiratory therapist, I have had fibromyalgia for 6 years.

i love to read and I am bleesed everyday with calls from my family to make sure I am ok.

Email Lori

Labels: bios, fibromyalgia, Lori2, not yet diagnosed