Lor, pituitary bio
9-07
COLON SURGERY: 1’ colon removed (pre-cancerous pulup/tumor removed.)
10-07
HEAD/NECK/SHOULDER/THROAT PAINS: hundreds of daily: “pops” in neck, terrible stabbing pains in base of skull, throat, shoulder, with hundreds of random screams of “ouchhh” daily for months. Tests or Treatments tried: chiropractors, ibuprofen, hot packs, x-ray on neck normal, physical therapy, MRI on neck normal
1-08
BODY JOLTS & INVOLUNTARY MOVEMENTS START: electric jolt sensations and myoclonic type jerks and involuntary movements - mostly when relaxed. Movements will stop if I get up and move around. These come with or without loud screams, gasps or other vocal noises. Tests or Treatments tried: EMG normal, MRI of head and normal, pain meds no help, oral steroid by Physiatrist no help,
1-08
SLEEPING PROBLEMS: wake up every night and sometimes stay awake for many hours – happened entire 2008, but 2009 was better.
2-08
MOUTH/JAW/TONGUE START: randomly the tongue tingles or twtiches, the jaw & cheek have pain (like someone is pulling off my face), the mouth/throat/tongue/and/or gums get ice cold, the mouth waters for hours. Tests or Treatments tried: more blood work normal, except a 7x higher than normal inflammation which neuros said had to be a lab error. Got steroid shot in head where the stabbing pain is. EEG recommended due to small seizure like movement when injecting the steroid.
4-08
MUSCLE TWITCHES START: randomly, different muscles twitch, hundreds of times daily (it is like body is making popcorn). Tests or Treatments tried: took a coupld stress free vacations. (I now its not stress related anyway but since the doctors cannot diagnois me, they don’t know what else to think. No help - same symptoms. Seen Neurologists with no answers. Got another steroid shot in head.
8-08
KNEE POPPING STARTS: just like neck from 10-07, one day it started to “pop” with pain hundreds of times daily. This made it hard to walk for months. Tests or Treatments tried: knee x-ray-normal and a special Lymes Blot test in California = negative.
11-08
Another Neurologist: Repeated inflammation test=normal.
12-08
Rheumatologist ran more blood test=normal
OTHER SYMPTOMS IN 2008-2009:
INVOLUNTARY MOVEMENTS / TWTICHED CONTINUE
ALL MOUTH SYMPTOMS CONTINUE
GASPING FOR AIR (take in a huge gasp of air, happens randomly, a several times daily)
LEG WEAKNESS / PAIN
INSIDE ELBOW AND MIDDLE FINGER, LOWER BACK AND BIG TOE PAIN
FATIGUE
HIGH PULSE 130+ doing nothing
HIGH BLOOD PRESSURE 145/97 average
HEART HURTS (just occasionally)
EAR ACHES/RINGS (CT of sinus area was normal)
NIGHT SWEATS (occasionally / only on head/neck area)
NECK HUMP
SKIN (acne, ichy, sweaty)
1-09
Tests or Treatments tried: Tried depression pills for 2 months with no help. I do not believe I have depression/anxiety issues though.
3-09
Tests or Treatments tried: Went on another fun trip to Disney World - had very strong symptoms most days
3-09
WEIGHT GAIN: (necklace didn’t even fit because my neck / stomach is getting fat).
Cortisol level checked and was high, so Endo specialist was recommended).
5-09
DIAGNOSED WITH Cushing's
4x6mm tumor on pituitary and high cortisol level. Scheduled for consult/surgery at Mayo in July.
7-09
UNDIAGNOISED and called Borderline Cushing because symptoms not are typical of Cushings.
They reviewed MRI - says its either a tumor or a rathke’s cleft cyst
CHEST XRAY - normal
EKG - normal
EMG - normal
ENT Dr. – normal exam – cannot explain mouth symptoms
COLONOSCOPY
MAMMOGRAM
DERMOTOLOGY - skin cancer diagnosed, shaved and treated
MRI on neck & spine- normal
EEG - normal
CERVICAL SPINE MRI - normal
MOVEMENT LAB: my movements don’t fall into the myroclonis catagory because I move faster than 100 milliseconds (?), even though they are a split second movement
SENSORY PROVOKED POTENTIAL NEUROLOGY LAB - normal
DEX SUPPRESSION & CRH & CORTISOL TEST, did not suppress, and had high and normal cortisol
OTHER URINE AND BLOOD TEST
PARANEOPLASTIC PANEL blood work - results show striated muscle antibodies which is either a neuro, myasthenia gravis, or a hidden tumor so get a lung scan recommended
9-09
LUNG/ADRENA CT SCAN: did not show lung tumor but showed enlarged or nodules on both adrenal glands
10-09
blood test & urine- (did 24 hr urinary metanephrines and fractionated catecholamines and blood aldosterone concentration and renin activity – all normal) (cortisol at highest end of normal)
11-09
new MRI - same as before
12-09
new CT of adrenals – no change. Await new results of striated muscle antibody test.
Dr recommends I wait 6 months to see what changes.
COLON SURGERY: 1’ colon removed (pre-cancerous pulup/tumor removed.)
10-07
HEAD/NECK/SHOULDER/THROAT PAINS: hundreds of daily: “pops” in neck, terrible stabbing pains in base of skull, throat, shoulder, with hundreds of random screams of “ouchhh” daily for months. Tests or Treatments tried: chiropractors, ibuprofen, hot packs, x-ray on neck normal, physical therapy, MRI on neck normal
1-08
BODY JOLTS & INVOLUNTARY MOVEMENTS START: electric jolt sensations and myoclonic type jerks and involuntary movements - mostly when relaxed. Movements will stop if I get up and move around. These come with or without loud screams, gasps or other vocal noises. Tests or Treatments tried: EMG normal, MRI of head and normal, pain meds no help, oral steroid by Physiatrist no help,
1-08
SLEEPING PROBLEMS: wake up every night and sometimes stay awake for many hours – happened entire 2008, but 2009 was better.
2-08
MOUTH/JAW/TONGUE START: randomly the tongue tingles or twtiches, the jaw & cheek have pain (like someone is pulling off my face), the mouth/throat/tongue/and/or gums get ice cold, the mouth waters for hours. Tests or Treatments tried: more blood work normal, except a 7x higher than normal inflammation which neuros said had to be a lab error. Got steroid shot in head where the stabbing pain is. EEG recommended due to small seizure like movement when injecting the steroid.
4-08
MUSCLE TWITCHES START: randomly, different muscles twitch, hundreds of times daily (it is like body is making popcorn). Tests or Treatments tried: took a coupld stress free vacations. (I now its not stress related anyway but since the doctors cannot diagnois me, they don’t know what else to think. No help - same symptoms. Seen Neurologists with no answers. Got another steroid shot in head.
8-08
KNEE POPPING STARTS: just like neck from 10-07, one day it started to “pop” with pain hundreds of times daily. This made it hard to walk for months. Tests or Treatments tried: knee x-ray-normal and a special Lymes Blot test in California = negative.
11-08
Another Neurologist: Repeated inflammation test=normal.
12-08
Rheumatologist ran more blood test=normal
OTHER SYMPTOMS IN 2008-2009:
INVOLUNTARY MOVEMENTS / TWTICHED CONTINUE
ALL MOUTH SYMPTOMS CONTINUE
GASPING FOR AIR (take in a huge gasp of air, happens randomly, a several times daily)
LEG WEAKNESS / PAIN
INSIDE ELBOW AND MIDDLE FINGER, LOWER BACK AND BIG TOE PAIN
FATIGUE
HIGH PULSE 130+ doing nothing
HIGH BLOOD PRESSURE 145/97 average
HEART HURTS (just occasionally)
EAR ACHES/RINGS (CT of sinus area was normal)
NIGHT SWEATS (occasionally / only on head/neck area)
NECK HUMP
SKIN (acne, ichy, sweaty)
1-09
Tests or Treatments tried: Tried depression pills for 2 months with no help. I do not believe I have depression/anxiety issues though.
3-09
Tests or Treatments tried: Went on another fun trip to Disney World - had very strong symptoms most days
3-09
WEIGHT GAIN: (necklace didn’t even fit because my neck / stomach is getting fat).
Cortisol level checked and was high, so Endo specialist was recommended).
5-09
DIAGNOSED WITH Cushing's
4x6mm tumor on pituitary and high cortisol level. Scheduled for consult/surgery at Mayo in July.
7-09
UNDIAGNOISED and called Borderline Cushing because symptoms not are typical of Cushings.
They reviewed MRI - says its either a tumor or a rathke’s cleft cyst
CHEST XRAY - normal
EKG - normal
EMG - normal
ENT Dr. – normal exam – cannot explain mouth symptoms
COLONOSCOPY
MAMMOGRAM
DERMOTOLOGY - skin cancer diagnosed, shaved and treated
MRI on neck & spine- normal
EEG - normal
CERVICAL SPINE MRI - normal
MOVEMENT LAB: my movements don’t fall into the myroclonis catagory because I move faster than 100 milliseconds (?), even though they are a split second movement
SENSORY PROVOKED POTENTIAL NEUROLOGY LAB - normal
DEX SUPPRESSION & CRH & CORTISOL TEST, did not suppress, and had high and normal cortisol
OTHER URINE AND BLOOD TEST
PARANEOPLASTIC PANEL blood work - results show striated muscle antibodies which is either a neuro, myasthenia gravis, or a hidden tumor so get a lung scan recommended
9-09
LUNG/ADRENA CT SCAN: did not show lung tumor but showed enlarged or nodules on both adrenal glands
10-09
blood test & urine- (did 24 hr urinary metanephrines and fractionated catecholamines and blood aldosterone concentration and renin activity – all normal) (cortisol at highest end of normal)
11-09
new MRI - same as before
12-09
new CT of adrenals – no change. Await new results of striated muscle antibody test.
Dr recommends I wait 6 months to see what changes.
Labels: bios, Lor, not yet diagnosed