And It's About Time There Was Some Support For Cushing's!
First diagnosed with Cushing's November 1999
Petrosal sampling confirms Cushing's in left lobe of pituitary March 2000
Transphenoidal surgery June 2000 (not successful)
From July 2000 - September 2001 on 200 - 400 mg of ketoconazole
Lost weight from July 2000 - November 2000
Began significantly gaining weight again in March of this year (2001)
Currently reshowing all signs of Cushing's (for a while the buffalo hump and purple striae all but vanished - oh well - they're back, as is the mid-riff bulge - urgh!)
Still hiking, biking, swimming, and cavorting and refusing to let this whole thing get me down (yeah, right - who am I kidding)
Endocrinologist currently encouraging me to consider stereotactic radiosurgery as I have made it clear I have no desire to allow anyone to remove my adrenal glands (not that I am any more interested in having my pituitary irradiated when it's a hit or miss deal).
And that's my history.
Edith Tobe
from Squamish, British Columbia, Canada
