Today is

In Memory April 21
Natalie Fay We will miss you always...

New Bio May 3
Cindy (ckelly37) is from Bensalem, Pennsylvania. She is not yet diagnosed with Cushing's but she is testing. She already has hypothyroidism.

New Bio May 2
Jackie (samsmom) is from Snohomish, Washington. She first started dealing with Cushing's in her family when her youngest child was born in 1999. Jackie and Sam were featured on a Discovery Health episode called Mystery Diagnosis. Later, the gene responsible for Sam's illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie's oldest daughter, has recently had her adrenals removed. Jackie and Jordan will be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series May 15, 7:30 The topic is Cushing's in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Archives will be available after the chat.

New Bio April 30
Kathy B (kathybair) is from Kauneonga Lake, New York. She is not yet diagnosed with Cushing's but has many symptoms. Doctors have told her she has possible fibromyalgia, chronic fatigue, depression, stress, and has been called a hypochondriac like many of us.

New Bio April 30
Kathleen (irishlass) is from Wisconsin. She had a transphenoidal pituitary resection December 5, 2007. A recent MRI revealed a good portion of the tumor remains.

New Bio April 28
Bridgette is from Tucson, Arizona. She is not yet diagnosed with Cushing's but thinks that she may have it. She is looking for doctors to do testing in her area.

New Bio April 27
Tiffany (engagedsenior) is from Ellwood City, Pennsylvania. She is not yet diagnosed with Cushing's but she has a prolactinoma and takes Bromocriptine. She also has five different blood disorders.

New Bio April 27
Lily (lilyalex) is from Montreal, Canada, Quebec. She has had Cushing's symptoms since 2002 but has not been diagnosed with Cushing's.

New Bio April 27
Kathi (Kathim) is from Palm Desert, California. She was diagnosed with Iatrogenic Cushing's in 1997.

New Bio April 27
Jennifer S (Jenni) is from Tallahassee, Florida. She is tentatively diagnosed with Cushing's. She will be going to Houston soon for petrosal sinus sampling and surgery, if indicated.

Labels: bios

New Bio April 21

Leslie is from Newark, Ohio. She had a pituitary tumor removed at the University Of Michigan. She has had a recurrence and has had Gamma Knife Radiation April 3, 2008. She may be the subject of a future Live Interview in the Cushing's Help Voice Chat / Podcast series.

New Bio April 21

Pat H (PatHidy) is from Plattsburg, Missouri. She has had many years of misdiagnoses and mistreatments and she feels she has had her "problem" for most of her 67 years. She has finally been diagnosed with idiopathic adrenal hyperplasia.


Updated Bio April 21

Nancy H is from Cleveland, OH. She had a transphenoidal adenomectomy in June 2003. She updated her bio five years post op when she learned that her little pug was with a pituitary tumor and Cushing's.

Labels: bios

New Bio April 20

Bonnie (Bonnie) is from Boca Raton, Florida. She had Cushing's in the '90s and had her left adrenal gland out. Now she's having symptoms again 13 years later and she has a mass on her right adrenal gland.

New Bio April 20

Joey (Joeykins) is from Northampton, UK. She is not yet diagnosed with Cushing's but has many symptoms and she has been diagnosed with Polycystic Ovary Syndrome (PCOS) and Hypertension so far.

New Bio April 20

Kathy (Kathy51) is from Lennox Head, Australia. She is not yet diagnosed with Cushing's but has many symptoms.

New Bio April 20

Theresa is from Huntington, West Virginia. Her 7 year old son has been diagnosed with Cushing Syndrome. he will have surgery on June 1, 2008 to remove his pituitary tumor.

New Bio April 20

Sharon is from Massachusetts. Her sister saw Sharmyn's Discovery Channel show on Cushing's. Sharon had an adrenal tumor removed but is still not feeling well.

Labels: bios

New Bio April 18

Amy (missingdiane) is from Carlsbad, California. Her very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue.

New Bio April 18

Lee (Lee) is from Canberra, Australia. Her daughter had pituitary surgery in mid 2007. She is losing weight but still has other symptoms.

New Bio April 18
Melynette (Melynette) is from San Juan, Puerto Rico, US Territory. She has a pituitary adenoma. She found her current endo while waiting for her baby's eye doctor appointment. The endo did a CT scan just to be sure she didn't have an adrenal tumor as well.

New Bio April 18
Nancy (chance) is from Olympia, Washington. She has Iatrogenic (steroid-induced) Cushing's due to being on steroids for 30 years. She also has Adrenal Insufficiency and a doctor told her to say she has Addison's.

New Bio April 18
Lori (larrysdaughter) is from Coeburn, Virginia. Her father has many diagnoses including Hypertensive Urgency, electrolyte imbalance, TIAs and a small CVA, Diastolic Dysfunction, Bradycardia, with trace Tricuspid regurgitation, mild Mitral regurgitation, a small patent foramen ovale in the Interatrial septum, Glaucoma, a hydrocoele, and periodontal disease. He has an 18 x 13 mm left adrenal lesion and high cortisol but is not yet diagnosed with Cushing's.

New Bio April 17
Lindsay (Lindsay) is from Ipswich, United Kingdom. She is not yet diagnosed with Cushing's but has many symptoms. Her diabetic clinic sent her for a dexamethasone test.

New Bio April 17
Maria (Izzabel78) is from El Centro, California She is not yet diagnosed with Cushing's but she has suffered with Rheumatoid Arthritis since she was a child. Following a terrible car accident, she has had a lot of pain and has been on a lot of meds. A new doctor in Mexico is concerned about all the prednisone she has taken for her RA.

Labels: bios

Elizabeth (Lizabug) is from West Virginia. She has cyclic pituitary Cushing's and sees Dr. Ted Friedman. She is still testing and hasn't yet had surgery.


Tania (taniag) is from Gold Coast, Australia. She had an adrenal gland and benign tumor removed in late January 2008.


Kenny (ken2501) is from St. Louis, Missouri. He was diagnosed with Cushing's at the end of his freshman year of high school. He has had two pituitary surgeries and Gamma Knife radiation.


Mattie is from Cambridge, Ohio. Her husband has Cushing's. He was diagnosed June 2007, after collapsing and suffering a tramatic brain injury. He now goes to the Cleveland Clinic but they are unable to find his tumor after repeated petrossal sinus samplings.


Jenn (Jenn) is from London, Canada. She has had two pituitary surgeries, one with a CSF leak, and is considering a BLA.


Eric (Eric O) is from Artesia, California. He is not yet diagnosed with Cushing's but has had CSR for almost 13 years.

Labels: bios

Analytic Review: Pituitary Tumor Apoplexy: A Review

Pituitary tumor apoplexy is an uncommon syndrome resulting often spontaneously from hemorrhage or infarction of a pre-existing pituitary adenoma. As the primary event involves the adenoma, the syndrome should be referred to as pituitary tumor apoplexy and not as pituitary apoplexy. The sudden increase in sellar contents compresses surrounding structures and portal vessels, resulting in sudden, severe headache, visual disturbances, and impairment in pituitary function..

This Topic on the Message Boards

Journal of Intensive Care Medicine

Labels: news

Journey to the center of the skull

After leaving the nasal cavity, you emerge at the site of the pituitary gland, deep inside the skull and roughly halfway between the ears. The pituitary gland is a common location for tumors that are usually not cancerous, but can still be dangerous. The reason: These tumors can disrupt the all-important release of hormones by the various glands controlled by the pituitary gland...

This Topic on the Message Boards

Labels: news