Lory, pituitary bio
9-07 SURGERY: 1’ colon removed (pre-cancerous tumor removed)
10-07 SYMPTOMS STARTED: hundreds of daily: “pops” in neck, stabbing pains in base of skull, throat, shoulder, with hundreds of random screams daily for months
1-08 BODY JOLTS START: myoclonic jerks and involuntary movements - mostly when relaxed. These come with or without loud screams, gasps or other vocal noises. They movements and screams are ongoing and continue to get stronger.
2-08 MOUTH/JAW/TONGUE: randomly the tongue tingles, the jaw & cheek have pain, the mouth, tongue or teeth get ice cold, the mouth waters for hours. This is ongoing.
4-08 MUSCLE TWITCHES: randomly, different muscles twitch, hundreds of times daily (like body is making popcorn). This is ongoing.
8-08 KNEE POPS: just like neck, initially, it pops and has pain hundred of times daily. This is ongoing.
9-08 FATIGUE: have less strength and stamina after a few hours of work. This is ongoing.
5-09 DIAGNOSED: small tumor on pituitary and high cortisol level. Scheduled for surgery at Mayo in July.
My symptoms all started after a major surgery, so I thought something, like a pinched nerved happened during surgery or something to do with surgery, but doctors kept saying not possible. (I have since found out that surgery can trigger a dormant disease.)
Since my symptoms initially seemed like nerve or muscle problems, I spent several months trying the chiropractor, physical therapy, ibuprofen, hot packs, MRI’s EMG, steroid shots, alpha-stim treatments, and different pain killers. Nothing helped. The different neurologists couldn’t find anything wrong and thought maybe it was stress/anxiety/depression even though I told them it wasn’t. I even went on relaxing vacations and tried depression pills with no improvement. We continued with different blood test throughout 2008-09.
One day when I put on a necklace and it was too small, I knew I had gained too much weight (25lb in 1.5 yrs). I started a diet, but found that my pulse rate would get way too high. I mentioned the weight gain and suggested checking the endocrine system to my doctor. So I did a urine test and the cortisol level came back high and we pursued that direction and Cushing’s was diagnosed.
The above symptoms were the most severe ones. There were alot of strange symptoms that came and went but the ones listed above were the main complaints. Most of my symptoms do not seem to be typical of Cushing’s, so I hope that is the only problem I have and that surgery will take care of it.
I would be very curious to hear if anyone else has had these types of symptoms. Now that I look at Cushing’s symptoms, there are several that apply and most were never mentioned to the doctor as we tried to find a diagnosis, such as:
Weight gain, Fatigue, Muscle weakness, Rounding face, Easily bruised, Slow healing of cuts, insect bites and infections, Acne
10-07 SYMPTOMS STARTED: hundreds of daily: “pops” in neck, stabbing pains in base of skull, throat, shoulder, with hundreds of random screams daily for months
1-08 BODY JOLTS START: myoclonic jerks and involuntary movements - mostly when relaxed. These come with or without loud screams, gasps or other vocal noises. They movements and screams are ongoing and continue to get stronger.
2-08 MOUTH/JAW/TONGUE: randomly the tongue tingles, the jaw & cheek have pain, the mouth, tongue or teeth get ice cold, the mouth waters for hours. This is ongoing.
4-08 MUSCLE TWITCHES: randomly, different muscles twitch, hundreds of times daily (like body is making popcorn). This is ongoing.
8-08 KNEE POPS: just like neck, initially, it pops and has pain hundred of times daily. This is ongoing.
9-08 FATIGUE: have less strength and stamina after a few hours of work. This is ongoing.
5-09 DIAGNOSED: small tumor on pituitary and high cortisol level. Scheduled for surgery at Mayo in July.
My symptoms all started after a major surgery, so I thought something, like a pinched nerved happened during surgery or something to do with surgery, but doctors kept saying not possible. (I have since found out that surgery can trigger a dormant disease.)
Since my symptoms initially seemed like nerve or muscle problems, I spent several months trying the chiropractor, physical therapy, ibuprofen, hot packs, MRI’s EMG, steroid shots, alpha-stim treatments, and different pain killers. Nothing helped. The different neurologists couldn’t find anything wrong and thought maybe it was stress/anxiety/depression even though I told them it wasn’t. I even went on relaxing vacations and tried depression pills with no improvement. We continued with different blood test throughout 2008-09.
One day when I put on a necklace and it was too small, I knew I had gained too much weight (25lb in 1.5 yrs). I started a diet, but found that my pulse rate would get way too high. I mentioned the weight gain and suggested checking the endocrine system to my doctor. So I did a urine test and the cortisol level came back high and we pursued that direction and Cushing’s was diagnosed.
The above symptoms were the most severe ones. There were alot of strange symptoms that came and went but the ones listed above were the main complaints. Most of my symptoms do not seem to be typical of Cushing’s, so I hope that is the only problem I have and that surgery will take care of it.
I would be very curious to hear if anyone else has had these types of symptoms. Now that I look at Cushing’s symptoms, there are several that apply and most were never mentioned to the doctor as we tried to find a diagnosis, such as:
Weight gain, Fatigue, Muscle weakness, Rounding face, Easily bruised, Slow healing of cuts, insect bites and infections, Acne
posted by MaryO at
11:30 AM
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