Saturday, April 18, 2009

Anne (kittiefoster), undiagnosed bio

My name is Annie Ellis.....I have had multiple symptoms of Cushings for years and have just now found this site..a list of my symptoms...

Early menopause..age 37 fsh level 66
osteoporosis... age 40
unilateral galactorhea 10 years ...normal prolactim...normal mammo and normal galactogram
severe fatigue muscles very weak in thighs
mood swings
red face
very fat neck and shoulders thin arms
purple stretch marks hips abdomen breast.. attributed to three pregnancies, but had them prior to pregnancies as a teen
multiple kidney stones
SEVERE bilateral achilles tendinitits now casted in left ankle ...right ankle will be casted in six weeks
weight only 136 (5' 2'') but weight gain primarily in abdomen and face and neck 3 chins!
Will see endocrinologist on may 15, referred by rheumatologist who just ruled out rhuematic diseases
NO HIGH BLOOD PRESSURE

Email Anne

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1 Comments:

Blogger Colin said...

Sounds like you have Cushings. Although high blood pressure is common ( mine was 180 over 120) not all symptoms are always present. I wish you could get things rolling faster. Our conditionis very dangerous. Purple Stretch marks and the a-typical weight gain( have you lost hair on your legs?) I'm certain you've got it. I also had severe osteo. a bone density scan revealed i lost 30% bone density. If it's possible for you to get international coverage, I suggest getting reffered to Dr. Harley Smythe in Toronto, Canada. He is the top specialist in the world for cushings. He told me most neuro surgeons deal with cushings patients a possible 10 times in their careers. I was his 251st cushings patient. I had a complication that he said many surgeons may have given-up on, causing my surgery to be unsuccessful. But he had seen it a couple of times before and knew how to proceed. He works out of the Trillium Health Centre in Toronto.

April 23, 2009 1:27 PM  

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